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MD or Vestibular Migraine?

Posted , 4 users are following.

Remle
Remle

Hi Guys,

I've consulted 2 specialists for my symptoms - Hearing loss, Aural fullness, Tinnitus and Vertigo. 

My ENT diagnosis is MD and no migraine. However, neurologist diagnosis is Vestibular Migraine. Neurologist can't confirm MD due to some inconsistencies of my symptoms. What is your opinion? Thanks.

0 likes, 11 replies

11 Replies

  • just_john
    just_john Remle

    Posted

    Remie,

    Inconsistency of symptoms seems to be one of the constistent features of MD.  Follow the MD chat rooms and you will hear much "inconsistency".  There is varieation on intensity of symptoms.  Some, like me, have milder symptoms hwile others are disabled. Response to the various medications prescribed for symptoms management varies significantly.  Onset, frequency of attacks and episodes of remission vary.  Physician awareness of the disorder varies.  It is not infrequent for it to be diagnosed as anxiety.

    Your ENT has diagnosed MD. You have the full symptom array.  Forget the nurologist.

    just john

    • Remle
      Remle just_john

      Posted

      Hi Guys,

      Thank you for all your comments. Neurologist can't confim my MD because I'm also having days of severe headaches prior to MD episodes and balance disorder during MD episodes. He said that MD symptoms should not have headache and balance disorder. What do you think?

       

  • donna16710
    donna16710 Remle

    Posted

    Just john is right, especially if your hearing loss is nerve conduction loss. That is being caused by the cochlea being too full and putting pressure on the vestibular nerve. Vestibular migraines are also part of the MD pattern. Whatever your ENT gave you to control the symptoms should be used. I used to teach LPN students and I would tell them that diseases do not know how to read, they just do what they do.  Don't look at the symptoms but at the whole person.
    • Remle
      Remle donna16710

      Posted

      Hi Guys,

      Thank you for all your comments. Neurologist can't confim my MD because I'm also having days of severe headaches prior to MD episodes and balance disorder during MD episodes. He said that MD symptoms should not have headache and balance disorder. What do you think?

       

  • NeddyO
    NeddyO Remle

    Posted

    If possible consult a Specialist Aural Physiologist to nail down diagnosis. Certainly sounds like MD with your symptoms. I hope you are able to have Betahistine tablets, a drug that over time reduces the vestibular pressure. In my case this resulted in a reduction  in the level of tinnitus and prevented further hearing loss. To be effective it needs to be given in high dosage - 48mg tds in my case - and may be needed for a prolonged period. I was fortunate and able to come off it after about 9 months with no relapse so far, but I have heard of patients being given far higher doses. The leading authority on this is Prof Michael Strupp in Hamburg. Good luck.
    • Remle
      Remle NeddyO

      Posted

      Hi Guys,

      Thank you for all your comments. Neurologist can't confim my MD because I'm also having days of severe headaches prior to MD episodes and balance disorder during MD episodes. He said that MD symptoms should not have headache and balance disorder. What do you think?

       

    • donna16710
      donna16710 Remle

      Posted

      I had severe migraines with mine, I think it was sound sensitiity that brought it on. Is it possible to have a combination of the two diseases? I am thinking that you probably can.
    • Remle
      Remle donna16710

      Posted

      Hi Donna,

      My neurologist also suspect I might have both MD and Vestibular Migraine. He wants me to log everyday symptoms for few months then he will review again his diagnosis. 

    • donna16710
      donna16710

      Posted

      Sounds like it. My guess is that the treatments may be very similar. I think I have a mixed diagnosis also since I very rarely have associated vertigo. If my experience is any indicator, it gets better. Hang in there.
  • NeddyO
    NeddyO Remle

    Posted

    Have you had  MRI / CAT scans yet  to exclude tumours around the vestibular structures and auditory nerve or a vascular abnomaly??
    • Remle
      Remle NeddyO

      Posted

      Hi NeddyO,

      I had 2 MRI done on 2014 and 2015 both with negative results. Numerous blood tests, neuro/nerve diagnostic tests, optic nerve tests - all normal. ENT so far, unable to find the root cause. However, for Neurologist, most probably due to migraine. He also suspect it may be a combination of both MD and migraine?

       

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