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medical records on gall bladder surgery

Posted , 5 users are following.

coral2786
coral2786

Hi everyone i thought i would post this as it could be interesting for others. I contacted my hospital and requested an application form for photocopies of my medical records it did explain theres a cost involve but i thought i dont care i need to see what the surgeons and other consultant have wrote in there clinics letter because i am at the end of my tether and sick of being fobbed off all the time. I have now paid for these records and received them today. Very interesting in what i have read and can honestly say im shocked that they have wrote stuff that no one has actually physically told me.

I started with all my symptoms december 2013 and was being admitted to hospital every other week the decision was made march 2014 to remove my gall bladder which i had done as an emergency however even now i am still suffering. Reading one letter from the gastro doctor its states in black and white and i quote " being this lady is still suffering and her symptoms precede the gall bladder removal it is in my opinion the problems she is experiencing, the gall bladder is not the cause and was not necessary more investigations should have been carried it". Also have a letter stating i was put on the cancer register marked as urgent and it states has the patient been informed urgent investigations need to be carried out to investigate cancer? and it is ticked yes. Yet no one has ever mentioned this to me. There is also a letter from gynaecologist from the surgery he did december 2014 stating his findings which states various things which i am aware of but it also states that my uterus is odd and that it is suggestive of adenomyosis which after doing my own research has alot of the same symptoms as the gall bladder which include nausea vomiting bloating severe abdominal pain and cramping change in bowel habits weight gain fatigue disturbed sleep and finally foods can aggrivate the condition. Which once i read this i was so surprised as the symptoms sort of go hand in hand with gall bladder symptoms. So in my opinion i am very glad i have requested my medical records and i will be taking this information to my next appointment. I thought i would put this info on here for anyone else that is suffering or still suffering after surgery as it may or may not be helpful.

3 likes, 12 replies

12 Replies

  • emwilson
    emwilson coral2786

    Posted

    Thanks for the info. I've had a very similar thing happen to me. Whenever I've read any notes from an er visit, to notes from my GI doctor there's always way more info in there then the doctor's ever even come close to telling us. I had no idea that I had ever had pancreatitis in Feb of 02 until years later and that's what I thought I had at the time and so someone felt that there wasn't a need to tell there patient labour ie me about it. Through out the years I've found may other conditions that were found by er doctor's but the info very reached my ears. I even have a chart note that said I cried when I was told I had crohns disease for sure. I actually asked my GI doctor about it and he told me that when they give patients news about crohns some patient's actually say thank you and since I was just barely 19 years old he said he put it in there so anyone who reads it knows how smart or we'll enformed I was on the subject because I had had an older sister that has had it already for four year's and one surgery and I knew that she was well into her own private hellish nightmare already suffering with crohns for 4 1/2 year's when I was first diagnosed in sept 24 2002.
    • coral2786
      coral2786 emwilson

      Posted

      I think it is not acceptable. If there are writing to another doctor about there findings they should have the decency to inform the patient of all aspects not be left in the dark. On one letter i have it states about it not being my gall bladder and that investigations should have been carried out to check for inflammatory bowel disease. So after reading the information i havent got a clue what is going on
  • peasblossom
    peasblossom coral2786

    Posted

    Wow coral xx thank you for sharing xx I too will be requesting my medical records as I'm in the same boat at you xx
    • coral2786
      coral2786 peasblossom

      Posted

      Originally i was only requesting copies of my records as i have an appointment with a professor at a different hospital so i wanted to take the information with me so this professor could see everything that has happen over the past 14 months . After reading the records i am quite shocked about the amount of information that hasnt even been told to me. I will wait until my appointment on the 22nd june to see what this professor says and i then see my gynaeacologist on the 10th july if i get a definate answer that my gall bladder didnt have 2 come out i will go absolutely mental. Its not like they can put the gall bladder back in. I honestly believe that doctors are to quick to remove it without doing full investigations. I have spoken to a couple of people now that have had gall bladder surgery one ladys husband died and another lady ended up in intensive care.
    • peasblossom
      peasblossom coral2786

      Posted

      They have cancelled yap on 22nd now so I'm there Wednesday grrr xxx go and I hope to hear from u after yours xx
  • boyzmummy
    boyzmummy coral2786

    Posted

    That's terrible but I am not surprised, the NHS is so understaffed it's frightening.  Due to a cock up with my sons bloods going to a specialist Lab in London we had to wait 4 months to see if he needed a bone marrow transplant, thankfully it was no,  but 6 months on and they don't know what is wrong!

    i begged for another type of scan before surgery but the surgeon GP and head of the practice refused.  Now it turns out that because I am still loosing weight they are testing for Coeliac and Thyroid!  I just want the increasing spreading pain and sickness to stop.  

    Have any of you been tested for these please.

    good luck with your doctors xx

    • peasblossom
      peasblossom boyzmummy

      Posted

      I haven't been tested for those but also they've changed my gall bladder app from 22nd June to 7th July I'm livid xx that's both app changed I could go nuts at them so frigging fed up of being ill and they don't give a dam sad hope your son is sorted now hunni xx
    • coral2786
      coral2786 boyzmummy

      Posted

      Yeah your right and to many mistakes keep being made yet we are meant to trust these people with our lives. No not been tested for those. Im currently waiting on a repeat MRI scan and waiting to see if the head radiographer thinks its a good decision to do an MRCP test
  • jeannine53554
    jeannine53554 coral2786

    Posted

    I am going to request my records! I'm still having pinching pain in my liver and I'm concerned it may be the clamps they used. When I called the surgeon the nurse I spoke with said it was normal and she's had it for years.  Well, I am not you and I don't truly feel this pain is totally normal.  With my family's history of liver and digestive issues I feel there may be more.  Who knows maybe there is something in my surgical notes that I wasn't told post op.
    • coral2786
      coral2786 jeannine53554

      Posted

      In my experience from requesting a copy of my health records i have read quite a few things that no one has told me. So you need know they maybe something in there. I am really annoyed at the moment i saw my surgeon on the 12th may and he emailed the consultant radiologist asking him to review my MRI scan images from last year and asked him if he would agree to an MRCP test i am still waiting for an answer so im going to be ringing round everywhere today its now the bloody 2nd of july. I know they have other patients but the longer they are leaving me the more i am suffering
  • brianlee73
    brianlee73 coral2786

    Posted

    I tried getting my random back seen to in 2000. Long story really short. Had MRI.. EMG.. XRAY.. saw a few people, wasnt in pain at the time so it was awkward maybe. Point is I went to see about my back and my walking 'looking funny' and pain when walking distance etc. I ended up coming through neurology into psychiatry and out onto the curb wondering wtf just happened there!? 1 year wasted. So I gave up all hope of 'services' helping me. Nobody told any results other than the rheumatology dr at the time. He said ''your xray seems to show your spine has not separated properly from here..  '' in laymans terms.. and he showed me a model on the desk. He said ''Id like another xray to be sure'' and then I stressed out and cant remember now I dont think I got one. Because I didnt trust xrays, one is enough I thought, plus I dont want to keep walking around this hospital I have embaressment complex, ambulophobia nobody has even heard of even myself until last year via GOOGLE ! Anyway.. Next thing I know Im seeign neurology whom also missed the entire point.. then hurt my back himself doing a leg raise test. None of that noted down though. But to the point. My Xray shows sacralisation of the L5 ..  ?cauda equina / ?chronic neurogenic condition e.g spinal atrophy ... .. written like that with the question marks which I assume? means  'could be this or that cause' ? I dont know] and the pain in my back today.. also in the right side, my hips, does look like the L5 and also center spine low back. I looked up cauda equina its serious, acute or gradual. Or spinal atrophy comes in types 1-4 so id be 4 if I have that. Nobody has paid attention to my complaints over time and they conveniently dont show my physio reports, at all, which to be honest are all clear because it takes me 5 months to get seen to, by which time I am ot of pain ! it subsides. I have some of those progressive symptoms of the cauda equina though so Im concerned. Sciatica, at times both legs but mainly one side more... weakness of bladder [ cant hold it anymore I rush to the toilet] to incontinence, rarely, in the morning. It also progressed to 'foot drop' for about 2 months then healed before I reached hospital and then when I got there the  young nurse had no idea what foot drop was anyway and I nearly lost the plot. They then mark me down as a let down when I dont turn up to something and blame me for it.  I will book an appointment with the dr and bring this to light but I consider this negligence on somebodies part surely? to find out 15 year later after doing a Subject Data Access Request via SLAM [shoddy] Services? I have too much other stuff on my plate right now I think a dr should read records and ask you to come in to see his findings ! not the other way around. 

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