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Meniere

Posted , 8 users are following.

gloria70226
gloria70226

I was recently diagnosed with meniere. I had a high caffeine intake

But I have reduced it tremendously. I need feedback on medication. I recently had a severe attack which included vertigo, vomiting, ear ringing,and headache. Is this normal?

0 likes, 16 replies

16 Replies

  • gloria70226
    gloria70226

    Posted

    I've lost 25% hearing in my left ear.

  • robert31613
    robert31613 gloria70226

    Posted

    Good Morning Gloria

    May I wish you a happy New Year hopefully with minimal interference of the Menieres.

    Sorry you've been so poorly. Unfortunately it is quite typical of an acute Menieres attack.

    Although symptoms vary widely between people and also at different times with an individual.

    I have had Menieres for 20 years including drop attacks and have upmost sympathy for what you are going through.

    I have found that buccastem , which is a vestibular sedative, usually calms things down and helps prevent vomiting and the subsequent nausea.

    I wonder what medication you are currently taking as it does seem a bit of a lottery as to which ones get prescribed.

    There are treatments that help including some surgical interventions, injections through the tympanic membrane directly into the inner ear and when things are stabilised balance rettraining

    Hope this is helpful and try not to despair too much .

    Good luck and best wishes

    Robert

    • robert31613
      robert31613 gloria70226

      Posted

      Hi you're welcome.

      My understanding is the pain is caused by pressure in the inner ear something like the fullness often experienced when taking off and landing . Some ENT consultants use tablets to reduce the fluid and hence the pressure . But I would think it's worthwhile trying pain killers to help. Sounds horrible poor you

      Robert

  • eleftherio33095
    eleftherio33095 gloria70226

    Posted

    First line therapy is now agreed to be intratympanic steroids (injection of a steroid through the eardrum).  This gets at the problem more directly.  Discuss this with your ENT doctor.

    Eleftherios S. Papathanasiou, PhD, FEAN

    Clinical Neurophysiologist

    Fellow of the European Academy of Neurology

    • gloria70226
      gloria70226 eleftherio33095

      Posted

      Thank you! I'm trying to make an appointment with an ear specialist. I have an appointment later with my ENT.

    • claire46793
      claire46793 eleftherio33095

      Posted

      Hello I have this plus anxiety around food because eating brings the pain on and the sensation of pressure increasing in my left ear something catching the left side of my throat I also have thyroid nodules non cancerous.

      For the last three mornings I have woken up with a severe headache. I am seriously fed up feeling ill like this and worrying about food and if I am going to choke or lose my swallowing reflex. Thabks for reading.

    • eleftherio33095
      eleftherio33095 claire46793

      Posted

      Where do you experience the pain?

      Eleftherios S. Papathanasiou, PhD, FEAN

      Clinical Neurophysiologist

      Fellow of the European Academy of Neurology

       

    • claire46793
      claire46793 eleftherio33095

      Posted

      Hello Thanks for replying. In my left ear and discomfort on the left side of my throat.  I had a peritonsilar abcess a long time ago followed by a tonsillectomy. It feels like ressure all the time especially after eating or drinking something. I also have a burning sensation in my mouth. I am truly fed up.

      My temperature is normal at the moment byut has been 37.3 to 37.9.

      I also have had a hacking cough which has not cleared up I am on Bricynal and seretide inhalers and had a course of prednisolone about four weeks ago without an antibiotic. I am allergic to abs and also habve LOng QT syndrome.

    • eleftherio33095
      eleftherio33095 claire46793

      Posted

      To clarify, are all your symptoms and diagnoses laryngological (throat), rather that otological (ear)?

      Eleftherios S. Papathanasiou, PhD, FEAN

      Clinical Neurophysiologist

      Fellow of the European Academy of Neurology

    • eleftherio33095
      eleftherio33095 claire46793

      Posted

      I am wondering if your ear symptoms are related to what is happening in your throat, as they are both connected, especially when you talk about your left ear and the left side of your throat.  Have seen an ENT doctor up to know?

      Eleftherios S. Papathanasiou, PhD, FEAN

      Clinical Neurophysiologist

      Fellow of the European Academy of Neurology

    • sally81965
      sally81965 eleftherio33095

      Posted

      Thanks for your reply.No I haven't seen an ent dr. My GP said he is going to prescribe a nasal steroid spray which I will receive tomorrow.

      ?Should I ask him for an ENT referraal as I cannot stand this. Do you think it is something serious?

  • NeddyO
    NeddyO gloria70226

    Posted

    The acute symptoms can be helped with powerful antinausea drugs like Prochlorperazine and Cinnerazine but they are powerful sedatives and will not help the underlying problem.

    Betahistine is a drug designed to improve the blood flow and reduce the pressure in the inner ear and hence reduce tinnitus and reverse hearing damage as well as stopping the vertigo attacks. It needs ar least a month to become fully effective.

    The standard listed dose is 16mg tds but is unlikely to be effective. Based on the work of Prof Michael Strupp in Munich much higher doses are being used by some Consultants. I am currently on 64mg tds and under control.

    Head ache should respond to normal pain medication.

    Good luck.

  • Bluesmann
    Bluesmann gloria70226

    Posted

    See an ent. Probably out you on diuretic low salt keep reading here after first attack I was good for a long time once in the diuretic
    • sally81965
      sally81965 Bluesmann

      Posted

      hi Sorry to hijack your reply to Gloria but I feel desperate with ear pain, ear pressure and pain increasing after eating and drinking anything now. I also feel short of breath and depressed.

       

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