1. Community
  2. Ears, nose, throat and mouth
  3. Meniere's Disease

Meniere's Disease...

Posted , 6 users are following.

Batuhan
Batuhan

Hi everyone. First of all English is not my main language so there may be mistakes sorry for that. I am 16 years old and i have Menier's disease for 2 years. My doctor said that Meniere's disease is rare for my age. I am tired of fullness and the ringing in my ear. I am posting this because i need some advice i want to live like a normal person.

1 like, 17 replies

17 Replies

Next
  • poppy37
    poppy37 Batuhan

    Posted

    It's not nice , I didn't get it till my 60ties, go back to doctor get him to send you to ENT specialists
  • JinaMarie
    JinaMarie Batuhan

    Posted

    Hi there...I'm 35 and was just diagnosed 3 weeks ago but have been having trouble since last November. If you google: computer monitor triggering vertigo, you will see an article....the second one: vertigo causes/symptoms /treatment /uc Irvine ca. It is a very good read. I have issues with my computer screen triggering my vertigo so that is why I was searching it like that.
  • poppy37
    poppy37 Batuhan

    Posted

    Hope its not the computer screen
    • JinaMarie
      JinaMarie poppy37

      Posted

      Yeah...seems to me everyone is different...some get different triggers but for me so far it is the computer screen, driving, weather changes, and sometimes just being in a store...it's so strange. I am doing the low sodium thing...not perfectly but I'm trying and I cut out all caffeine which I believe has helped with my tinnitus. I also take 3 Valium a day...one benadryl and these histamine phosphate drops under my tongue. Something has helped...I think it is a combo of the meds and the weather stabilizing more recently. However I have been having a harder time today but we have a storm system moving in. If I could just get the computer and driving issues fixed...those are major things for me...I work all day on a computer.
  • poppy37
    poppy37 Batuhan

    Posted

    I have tinnitus and meniers which causes the vertigo I belong to a support group on Facebook called tinnitus, it is very helpful
  • wen06862
    wen06862 Batuhan

    Posted

    Hi, Can I just add-

    I've had this horrid disease since I was 40 (now 54)... My father had it from the age of 26 to the day he died at 78...My partner has had it since the age of 32 (now 55).... His father had it from the age of 28 until the day he died at 75....

    It affects us all differently....

    It didn't make a jot of difference what I didor didn't do - for the first year I had full blown, lie on the floor, vertigo attacks for 12 hours at a time, every other day - I took pills, cut out salt, saw the top docs,  etc.... My dad had clusters of vertigo attacks which lasted 6 months at a time.... Oh and I didn't have a computer then...

    Yes MD is fairly rare in 16 year olds but my specialist has seen quite a few 14 to 18 year olds with MD.... just ask to be referred to a specialist to be sure of a correct diagnosis.

    I'd like to say that my life with MD has been ok, but it hasn't - I will never work again - have no balance (partly due to surgery) I'm not allowed to drive, and have lost count of the suicidal tendencies because of the "no cure" situation

    Contact the Meniere's Society - the have the true facts about MD

     

    • JinaMarie
      JinaMarie wen06862

      Posted

      That's just awful! I have read about people that are so bad they practically live in their bed! I can't imagine...I thought having to crawl from the bathroom to my bed was the worst! I tell myself that regardless of how bad I have it, someone out there has it worse...
    • wen06862
      wen06862 JinaMarie

      Posted

      The trouble is it can fluctuate such a lot, i seem to get vertigo attacks in clusters like my dad did, then the vertigo goes away for a while. My partner has random attacks with no pattern to them at all, it's so soul destroying - i know there are worse things to have out there, but this is such a pain sometimes, my life seems to be permanently on hold

       

    • JinaMarie
      JinaMarie wen06862

      Posted

      Yeah I feel like something is coming because of the weather...I have woke up with a headache the last two mornings and the tinnitus seems louder...those are usually signs for me. :-/
  • Batuhan
    Batuhan

    Posted

    I always felt like i was alone with this disease but now i see that its not just me.
    • JinaMarie
      JinaMarie Batuhan

      Posted

      There are so many more than you think once you get to looking around!
  • poppy37
    poppy37 Batuhan

    Posted

    had tinnitus for 2 years vertigo started last christmas, went to ENT may and he said i had meniers, trying serc tablets and caffeine free diet if that doesnt work going to try injection into ear, i belong to a support group on facebook called Tinnitus its been a life saver talking to people who have the same

     

  • Batuhan
    Batuhan

    Posted

    I have been trying acupuncture for 2 months and it helped me a lot. my vertigo attacks lasted 6 or 8 hours before acupuncture after 2 months it decreased to 4 or 5 hours. you should try it too maybe it can help.
    • jackie72283
      jackie72283 Batuhan

      Posted

      I tried acupuncture too. Not sure if it helped or not. I was better after it, but I think I would have been anyway, as the stress in my life was reduced.
Back to top
Next

Report or request deletion

Thanks for your help!

We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.