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Meniere's no more

Posted , 5 users are following.

terry60070
terry60070

Does anyone here follow Meniere's no more page on facebook. I find it very helpful A lot is from the USA but i have also been in contact with UK citizens.

 

0 likes, 9 replies

9 Replies

  • Guest
    Guest terry60070

    Posted

    I will definitely be joining it if I am diagnosed, all these support groups are great. There is currently an 11 week wait to see the ENT through the NHS! I am slightly dizzy every day now since the last attack 3 weeks ago so they have bought mine forwards to a 6 weeks wait. I'm on count down. Still hoping it turns out to be something that will go away. I don't know how you lot have managed with this for so long!x
    • angela79369
      angela79369 Guest

      Posted

      If you're bad, get some Stugeron from the chemist. Take 2 every few hours. Hopefully the ENT will get you on a drug regime to help. You had the attack, which causes damage in the ear, and afterwards your ear is repairing, it just takes some time.
    • terry60070
      terry60070 angela79369

      Posted

      I am already on Betahestine and Stemil have been for quite a number of years nows. Had meniere's for 25 years and nothing up to now has worked neither diet or these pills. I go see my ENT specialist in september again and i am just not going to let him fob me off again he just keeps on telling me its the hearing aids their amplified when i know myself this is not the case. I now have hyperacusis whic to me has aggravated the meniers even more.

       

    • terry60070
      terry60070 Guest

      Posted

      It is very tough going but... these forums are very helpful. I have found out now that maybe upper neck pain can cause an attack, i was diagnosed with cervical sponderosa in the neck and shoulders many years ago after a road accident so just maybe i can look into that and get more help.

       

    • poppy37
      poppy37 terry60070

      Posted

      I take bethahistine and was given stemitil to take with it but made me feel ill, ENT is talking about injections into the ear
  • poppy37
    poppy37 terry60070

    Posted

    I am a member boff meniers support, and Tinnitus, and we have tinnitus I find them helpful, although the meniers one goes off the subject alot lol
    • terry60070
      terry60070 poppy37

      Posted

      I don't think they go off the subject as much as give different accounts and remedie's and such I have never heard of a neuromascular dentist helping people with vertigo, this and more came from the forum.

       

  • Guest
    Guest terry60070

    Posted

    I am taking prochlorperazine maleate. Not sure if any of you have tried that before? It definitely brings it down a level.
    • poppy37
      poppy37 Guest

      Posted

      I take serc (bethahistine) doesn't seem to help much
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