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Multi septated with solid elements and mural nodules ovarian cyst!!

Posted , 8 users are following.

Michellestar87
Michellestar87

Hi just an update of my recent scan and I'm petrified !! This is my 3 rd scan.it shows 3 small irregular cysts with thick septation and mural nodules !! The largest cyst is 20 x 14mm but overall the ovary has grown in size slightly.they have advised repeat scan in two months !!! Why why why if I have features of malignancy on the cysts are they not removing it straight away ?! Please can anyone help I'm beside myself with anxiety as I've googled solid parts,thick septations and mural nodules are high signs of malignancy.there is no blood flow to the cysts and my ca 125 was normal. please has anyone been through this ???? Thanks Michelle xxx

1 like, 63 replies

63 Replies

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  • rosa59701
    rosa59701 Michellestar87

    Posted

    Hi!

    Although I have not gone through the exact same experience as you I can understand the frustration.

    Sometimes it takes going to a few specialists to get an action plan going, the "wait and see" approach is awful and only causes more anxiety! I myself saw a few different doctors before I found one willing to remove my cyst! I would ask your GP for a referral!

    Hopefully you can get the answers you need soon!

  • didi1956
    didi1956 Michellestar87

    Posted

    i have something similar i was wondering how yours has turned out so far have they removed it
    • Michellestar87
      Michellestar87 didi1956

      Posted

      Hello through mri it has showed as an endometrioma and endometriosis was found everywhere.my cyst is only tiny so they're not concerned now but was before the mri as it had solid parts etc.what are your features of your cyst ? X
  • didi1956
    didi1956 Michellestar87

    Posted

    Mine was misdiagnosed by my gyno in june of last year when i started bleeding postmenopausal but because of 65 on my ca 125 sent me to a onclogist he treated me for endometrial hyperplasia. I have a very large cysts bigger than a baby septations and mural noduals.
    • Michellestar87
      Michellestar87 didi1956

      Posted

      Who's did he say your cysts are? How many cysts do you have ?isnt hyoerolasia thick womb lining ? X
  • didi1956
    didi1956 Michellestar87

    Posted

    Sorry i wasnt clear on this my gyno treated me for endometrial hyperplasia in June of last year, after he gave me a ultra sound in his office. He should have treated me for a very large complex Cysts mesurements are e 15.5 x 27.5 x 34.2 cm.  I saw a surgeon yesteday that is going to help my oncologist with the operation because i have some large hernias from a previous surgery she said it was bigger than a baby and taking up most of space pushing my organ up.the ct scan says septated with mural nodules and suspect cancer. Cant get in for surgery until 6 weeks but will probably call a patient advcate to see if they can speed things up as i saw one of their doctors in the first place and this sould have  been properly diagnosed and removed 11 mnths ago
  • Guest
    Guest Michellestar87

    Posted

    Hi....

    I know this post is a little older... but I am going through the same thing. Complex Ovarian cyst with mural nodule.

    Ca125 was low...20.

    No ascites.

    No free fluid...

    But my stress level...is bad...

    Hope you're well...

    • Michellestar87
      Michellestar87 Guest

      Posted

      Hi Emily if you look above read my latest post and my cyst ended up being an endometrioma,I still have it as its a small cyst and an mri diagnosed it after the scans showed a huge concern,so please please do not worry.how big is your cyst and do you suffer with heavy periods etc? Xx
    • didi1956
      didi1956 Guest

      Posted

      Emilystrange I had the same thing.I had a 37cm ovarian cyst septated mural noduels low ca 125 65 no free fluid also. I too was woried sick because what I read about nodules. Mine wasnt cancer no free fluid is a very good sign.Its been two months since my surgery and im doing great. Please try not to worry I know its hard most cysts arent cancerous.I also lost 30 lbs from the surgery (happy face)
    • Guest
      Guest Michellestar87

      Posted

      Hi Michelle!  

      Yes, thank you.  I have been reading a lot here.  I saw your posts... and am so glad that you're doing well.  It's terrible and scary.  The feeling of isolation is enormous.  No one gets it.   This is my last ovary.  I had the right one removed 20 years ago and did not want to be thrown into a harsh surgical menopause.  I figured I would get to keep my ovary but the cyst took over... No hope for me.

      Now the doctor said that I MIGHT have some kind of issue with my colon.  Just what I do not want to hear.... 

      She keeps saying that she thinks this is a benign tumor.  I hate the word tumor...  She calls it a cystadenoma - but they only did ultrasounds, so, how should they really know?  

      Worst summer of my life. It's been 3 straight months of HELL.

      I have hope when I read posts like yours.  THANK YOU for taking the time to respond!

      _ Em

    • Guest
      Guest didi1956

      Posted

      Didi, thank you.

      Your post made me smile.  

      My cyst is kinda small but has suspicious traits, so.. it took over my last ovary - and now I'm going in next week to have it removed.  Every moring I wake up before the birds - it's still dark out. I cry out in my room all by myself - usually God - for help.  My mental state is shot. 

      It does not seem fair that I have to go through this - and maybe it IS cancer.... and I will die in my 50's like so many others....

      I am kicking myself for not going to a gyn oncologist for a second opinion - fear took me over because my GYN said it grew a little.  

      Now i'm going in - and they'll take my ovary along with the cyst.... and I see nothing but symbolism all around me.

      Hottest summer ever here where I live..  I saw a flower that fell from a tree today - and I picked it up.  I feel as though I am like that flower... only, I am not going to be allowed to have my flowers wither and stay with me ... my last flower will be cut from me and so will all of the remaining estrogen.  I was NOT in menopause yet.

      Forgive my long email... just need to express my feelings and I do thank you for trying to ease my mind.  

      I can't wait to be over this nightmare and deal with the next phase of my life will be... I have not done one fun thing ALL SUMMER...

      sad  Write back if you feel like it.  

    • didi1956
      didi1956 Guest

      Posted

      I was thrown into menopause at 48 and never had a problem with it.I had a previouse abdominal sugery so I had hernias that needed fixing too.I was cut from pelvic bone to breast bone. I had three doctors gyno oncologist general surgeon and a plastic surgeon to help close me as my abdominal muscles were so strectched out. The plastic surgeon took  some from  my sides.I probably had my cysts for years. I know how you feel I was sure mine was cancer too. I am 63 the age most women get ovarian cancer.I had a 3 cm cyst on the right side so wanted them to remove everything after that worry of cancer I didnt want to have to worry about it ever again. I feel great now. Because my cyst was huge. I had lots holes where they removed them that our body wants to fill with water.  They gave me three drains two I have had removed and am waiting on the last one to slow down enought to have it removed.I am in Michigan and we are also having the hottest summer ever and im not able two swim until two weeks after my last tube is out.  I am so grateful its not cancer it dosent matter.As far as estrogen I havent had any for years and I have been told I look much younger than my age so dont worry about that part of it. I will pray yours will turn out fine as well ask for prayers from friends as the more the better.As  far as the colon I had part of my intestine removed years ago and im fine now. I read a lot of people had complex cyst and it was fine Try not to worry as you dont know if there is anything to worry about yet. I do know how you feel as ive been there.Most cysts arent cancerous. you can write me anytime smile

    • Guest
      Guest didi1956

      Posted

      Thank you for sharing your experience! I'm so sorry you suffered like that but glad you're feeling great now.

      I never thought I'd be going through this right now. I just can't stop the bad thoughts. I'm just so depressed.

      The heat here is terrible too. No relief. I'm hiding in my cellar.

      I will write more this weekend...

    • didi1956
      didi1956 Guest

      Posted

      Emily they gave me a epidural for pain releif and never felt a thing.had it for five days and then they switced me to pain pillsI was in the hospital for 10 days. surgery took five hours it caused my heart to go off ryth

      m so they had to fix that before they could send me home. Do you know what type surgery they plan on doing ? They have one that after two weeks your as good as new. Are you in pain at all ? Do you have a lake or ocean near you.That would be a good way to beat the heat and maybe take your mind of the surgery. Thinking of you my friend. please ignor the spelling if I fix it it erases the next letter lol

    • Guest
      Guest didi1956

      Posted

      I am so grateful for your response.

      No..they're doing renovations at my house so I have not had a moment of peace...

      I slept in my cellar again...not ideal. No air.

      Will be in touch after my surgery.

      Thanks again for the support.

    • didi1956
      didi1956 Guest

      Posted

      We will all be thinking about you. Your going to be finebiggrin Keep us posted

    • Michellestar87
      Michellestar87 Guest

      Posted

      Please keep calm and remember after tomorrow you can put this all behind you Emily keep in touch xxx
    • Guest
      Guest Michellestar87

      Posted

      Cyst is 3.7 x2.8 x3,7 cm.

      Nodule is 5x5x6 mm

      ...

      No acsites no blood flow on doppler.

      Ca125 is 19.

    • didi1956
      didi1956 Michellestar87

      Posted

      Michelle Yes hers could be the same as mine they ususally occur in 40s to 50s
    • Michellestar87
      Michellestar87 Guest

      Posted

      It's all looking good Emily no ascites no colour flow ca normal all this so positive.mine was all exactly the same but my 1st ca was 32 and 2nd 17 but mri diagnosed the endometrioma and endometriosis everywhere but the scan it was a huge concern seeing the nodules etc and septations.so please please everything's looking good for you xxx

    • Guest
      Guest Michellestar87

      Posted

      Thank you...

      I have been napping all afternoon. I took a Xanax..

      I appreciate your message!

    • Guest
      Guest didi1956

      Posted

      Thank you so much for the message. I will try and post this week..

      smile

    • Michellestar87
      Michellestar87 Guest

      Posted

      Yes please do I will be looking out for you positive thoughts you're going to be just fine xxxx

    • didi1956
      didi1956 Guest

      Posted

      emily when your up to it. I will be thbiggrininking about you GOOD LUCK I know your going to be fine

    • Guest
      Guest Michellestar87

      Posted

      Thank you so so much.

      I made through... throat is sore, but pain is not bad until I try to move.

      Was told and my family were told the it is benign by the look of it. Pathology will tell.

      You all have been so kind to me. What would I do without you? I mean it sincerely.

      This has been hard for me mentally... this site helped me. I am touched by the kindness.

      I will write again when I get final word.

      Love, me.

    • jennyhasacow
      jennyhasacow Guest

      Posted

      Did you have any other symptoms?? My doctor won't even consider surgery and I have three cysts with peripheral nodularity. They're 5.2, 3.9, and 3.4 and I'm hardly able to get out of bed I'm in so much constant pain. My doctor won't even prescribe pain pills which I'm okay with but I want this pain gone. 4 months and going strong ? I've been following your posts for almost four weeks and gave in to making an account. I'm glad you're doing well after surgery!

    • didi1956
      didi1956 Guest

      Posted

      Emily Glad you made it through and its benign. I knew it would be hoping you have a speedy recovery. Keep us updated. biggrin

    • Michellestar87
      Michellestar87 Guest

      Posted

      That's fab news Emily !!! Are you home thanks for letting us know xxx

    • Guest
      Guest didi1956

      Posted

      Thank you so much...

      Still will wait for the pathology.

      More pain today but it's all part of the experience of life ...

      Grateful to you here.. smile

    • Guest
      Guest Michellestar87

      Posted

      Hi Michelle. smile

      Yes thank you . Home same day ..

      Now just will wait for pathology.

      Thank you!!!!

    • didi1956
      didi1956 Guest

      Posted

      Emily what type of surgery did they do laparoscopy? Udate as you can  take your pain pills drink lots of liquids ...
    • Guest
      Guest Michellestar87

      Posted

      I haven't gotten a straight answer from my family.. one says it was just the cyst ..another says.. no....

      My cyst took over the ovary... so, I guess they took it all.

      My doctor was kind and gave hugs to my family. She made it seem like I will be okay.

      Pathology will tell. It's still some scary but I know it is not in my hands.

      Will try and write again soon.

      Thank you

    • Michellestar87
      Michellestar87 jennyhasacow

      Posted

      Hi jenny what is pheripheal nodularity?did they say what type of cysts they are ? Mine is a endometrioma xxx
    • Guest
      Guest jennyhasacow

      Posted

      Hi

      Well. No. I did not have symptoms other than I knew something was there. I felt it.

      If you're worried...please talk to your doctor.

      I'm hurting today but I knew I had to remove it.

      Do you want it out? Do you know what type of cyst?

    • Guest
      Guest jennyhasacow

      Posted

      Keep posting here. It helps. I am sorry you're in pain....

      Please keep in touch..

    • Guest
      Guest didi1956

      Posted

      Yes...lap.

      It hurts but it's livable.

      So far! 😣

    • didi1956
      didi1956 Guest

      Posted

      emily thats the best one to have your going to be fine in no time. My doctor told my family it wasnt cancer right after my surgery after the frozen biopsy they do and she was a  oncologist she knew. 
    • didi1956
      didi1956 jennyhasacow

      Posted

      jenny do you have polycystic ovarian syndrome ? I think its because of the size of your cysts they dont like to remove them unless they grow past a certain size as long as they dont look cancerous.As far as pain pills maybe you should look for another doctor if your in that much pain.I think he may also be waiting to see if the will go away on there own.Sorry for your pain did he suggest anything to help releive it.?
    • Michellestar87
      Michellestar87 Guest

      Posted

      Oh my nodules showed in centre of cysts I'm

      Not

      Sure what's the difference xxx

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