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Muscle weakness

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k8779
k8779

I have Arnold Chiari type I (12mm) and was daignosed about 1 year ago. I often wake up with sore leg muscles but am also noticing that at times, I can hear what is going on around me but cannot respond. I eventually wake up fully and just feel exhausted and almost like I have had bad cramps in my muscles (they are so tired and weak). The last MRI I had showed good CSF flow but it was performed without contrast. Has anyone else experienced this and is an MRI w/o contrast really an effective means of determining CSF flow? Thank you!

0 likes, 3 replies

3 Replies

  • b2wc97455
    b2wc97455 k8779

    Posted

    HI there,

    I was informed that contract CSF does not make any different, neurologist specialist is able to see the csf flow tif your through Cine/scAn/MRI, however if you do not have any horendous headache (worse than migrance) you do not feel faintinng when coughing, do o 2, laugh, and abla to manage with medication I personally would not have decompress, I used to be given so many medications, but the best one for me was topiramate and deluxitine, but every one is different, I refused to have operation, but then, its getting worse, I cramped, I felt very exhausted, I am unable to walk nor moved about - as the tie went by my condition getting worse..tinggling,needling the whole of my body, imbalance, it was horrible..so when I decided to have surgery and waited from 6 months, 10 minutes I woke up from the opeartion all of that gone, I am now drug free started enjoying my life.

  • jaquie197513
    jaquie197513 k8779

    Posted

    Hi k8779

    Mri is the only why for a ns to see if a herniation is present meaning you have chiari. I'm not sure how else a neuro surgeon would messure csf flow. I would suggest asking to go back and speaking with your neuro surgeon to discuss your symptoms . How old is your mri? Your csf may not be flowing as well now? May I also suggest that you join the chiari support which is run by Karen Kerr. Here we are all suffers of chiari malformation with many others with different systems and illnesses a result of chiari. I'm 16 weeks post op and still having a touch time. I have gained so much support from this site. You will find us on Facebook. When you ask to be added if you send a message explaining you have chiari it's likely there will be someone on the site who has experienced the same as yourself

    Good look and please do look up chiari support its mainly a uk site.

    Jaquie clark x

    • Toby.
      Toby. jaquie197513

      Posted

      Hi Jaquie, could you tell me a little more about how I could join Karen Kerr's group? 

      Thanks!

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