need advise

Following this. I have pain that comes and goes. Worse when I'm in bed or sitting as apose to walking around

Have you been and had an Ultrasound to confirm you actually have a DVT? I

I had severe cramp like pain in my calf that came on so suddenly one morning and didn't ease or move for about 6 weeks. This was confirmed as DVT. I had the same thing happen the year before and the doctor at a & e said it was old age and arthritis! (40yrs old) My gp diagnosed it as a bakers cyst! Neither of them were hard or swollen just really bad pain. You need to go to the doc just in case as 4 years later I still struggle to walk without pain. And the obvious you could die!

Have you had an ultra sound to determine if you have a clot? I had DVT 22 yrs ago in my groin. My leg was twice the size of the other, cold and purple. Took blood thinners for about 1 yr. At 26 had baby (took heprin shots 2 times a day when pregnant and for several mths after). Then took blood thinners if I took long trip (airplane) or surgery. At 42 yrs old started having major problems along with pain in my legs and feet. The pain wasn't always in the same place or everyday. Legs were not swollen or discolored. I was having more problems besides the leg pain, cramp in chest from walking to mail box, tired all the time (where I wouldn't even have the energy to shower or get out of bed for days). Had ultrasound on both legs but they did not see anything other than my old clot It never completely dissolved and I've always had minor pain in that leg but nothing I couldn't handle. The ultrasound was only done from ankle to groin. After 1 1/2 yrs of seeing drs because I knew something was really wrong with me. I was in so much pain and my quality of life was non existent. I went back for another ultrasound. My legs were so tender, that clothes even hurt to touch them. I ask if they could do my ultrasound sitting up instead of laying flat. I thought my old clot might be blocking my vein when I sat because thats when everything would hurt worse. My legs actually felt better when I was walking. My GP had prescribed pain pills or I wouldn't have been able to put my feet on the floor. They did ultrasound sitting up and looked beyond my groin into my stomach. I had 100% blockage in iliac vein and common femoral vein where my old clot was and on the other side I was 80% blocked. I had stent put in the 80% last November. Dr was unable to put stent in the 100% side. I was told these were not new clots. They were old (calcified) and scar tissue so they were hard like cement. They can not tell me when this happened. But I was very active and healthy and not over weight. Dr said I developed good collaterals so I had blood flow but this was the reason for all of my pain, exhaustion, etc. I'm telling you this because when I read that "your pain comes and goes and it's worse when sitting and you feel better walking". This is what I was telling my drs. My legs felt better when I was moving. but as soon as I stopped, the throbbing severe pain started. When you know something is wrong, you've got to speak up for yourself and keep pushing for answers. I know people thought this was all in my head because I looked fine and so did my legs. It was a relief to get an answer. I still am having lots of problems because of this and on a pain patch now. I wish there was more information available for those of us that have had clots and the long term affects. My DVT was 22 yrs ago. I'm 44. My brother died at 33 from a PE. He had had several blood clots for yrs. When he was in hospital with DVT, he told me that his legs had not hurt, not swollen and he didn't know (even though he had had many in the past). He died after 5 days in the hospital when more of his clot broke off. I hope you do go to the dr and get an ultrasound. They shouldn't base it only on leg swelling or discoloration.