need answers :(
Posted , 10 users are following.
hey guys I'm currently going crazy, I've had my MRI results back and they are clear no blood vessels pushing on the nerve. Doctor doesn't know what the cause is but if I don't take the tegretol I can't deal with the pain. I'm in pain constantly especially in my front lower teeth, I just don't know what to do and I don't want to be on medication for life has anyone else been left in the dark?
0 likes, 18 replies
clint71 katiehdmahon
Posted
An MRI doesn't always show a compression, especially if the MRI isn't done correctly...my last one included 600 images. The one before that was only a few images of my whole head, which was useless. While it's good when the problem can be identified prior to surgery, it shouldn't be an absolute necessity.
Stupid1 clint71
Posted
Once inside your head neurosurgeon can actually see the compression. Which is the largest artery in the body being touched by a nerve.
This is how my neurosurgeon explained it to me it was a nerve touching the artery.
Neurosurgeon also said that the nerve had strethed it self in order to touch the artery.
God bless
Us and keep us and give us peace
Tnhurtsme katiehdmahon
Posted
Sincerely Dane
Stupid1 Tnhurtsme
Posted
TNHURTSME,
l was getting shocks under my tooth and on face my face, I never had a toothache I had a tooth shock under tooth, and then pain on gum started.
I made the dental surgeon pull a good tooth for nothing, but shocks in gum were tooth was at was a bit less bad.
I don't believe your ear ache started your TN since the doctors don't even know why it happens. My hubby says it happens because we have insomnia and stay up all nite. LOL
God bless
us and keep us and give us peace
akil41128 katiehdmahon
Posted
I'm so sorry to hear that, I would try a 2nd Mir in 6 months and get a 2nd opinion from a neurologist who has much experience
Stay on tegretol meanwhile
Do not give up hope, this monster will not take over
karen36710 katiehdmahon
Posted
akil41128 karen36710
Posted
Stupid1 karen36710
Posted
B4 u have MVD ask your doctor about other procedures and if you can have MVD after you have had those other procedures. Make MVD your last choice.
God bless
us and keep us and give us peace
karen36710 Stupid1
Posted
greg66242 katiehdmahon
Posted
Hey Katie,
Wondered how you been. Well now we know. I am so sorry this "monster" is ravishing your life. Ask your Doctor if the MRI was a 3-D Volume Slice. It is more of a precise imaging. If you still get no where, go and get a second opinion, and then a third, and so on. Takes time, but you have to research and do what you are doing on this forum, by asking questions.
And yes, my Nuerosurgeon will not do any more procedures, as I have 2 strikes against me already. So I am seeking elsewhere.
I hope this helps.
May God Bless you in finding the right answer,
Greg
Stupid1 katiehdmahon
Posted
Katiehdmahone,
Neurologist said my MRI never showed anything but he sent me to neurosurgeon.
My neurosurgeon said, that my nerve was hitting on my artery.
The surgeon went on to explain that this artery is the largest artery in the body.
I didn't question his knowledge and I got MVD. I don't think it's a lot of people out here who fits condition having positive MRI and didn't have one of the forums procedures done.
God bless
us and keep us and give us peace
Stupid1 katiehdmahon
Posted
We all need to make awareness of this dreadful disease wherever we go, we need to info people by telling pur story.
God bless
us and keep us and give us peace
jo66572 katiehdmahon
Posted
I'm the same as you with the MRI. I've been fortunate to meet a doctor who is a medical doctor, he also specialises in acupuncture and chinese medicine and natropathy; he mixes the together. I explianed my pain to him and told him about my MRI results. He said he questions whether I have TN. He looked at my teeth and could see I'm a grinder, plus my jaw is out of line. He said this is the cause of my electric shock pain that I get; he also said dental work would exacerbate the pain becasue when in a dentist chair you mouth is open for sometimes upto an hour. I have had amazing relief from my pain with a course of acupuncture. I am also on Magnesium Chelate, Folinic Acid, B12, Tumeric for its anti-inflammatory effects. Google these natural rememdies to learn more about them.
heather30609 katiehdmahon
Posted
TN-Sucks katiehdmahon
Posted
Tnhurtsme TN-Sucks
Posted
katiehdmahon Tnhurtsme
Posted
no I'm on tegretol
Tnhurtsme katiehdmahon
Posted