Need To Hear From Low Ferritin Champions
Posted , 6 users are following.
I had an extremely low ferritin of 5 about 2 months ago, and I have been on ferrous fumerate 106 elemental mg, twice a day, for a little over a month.
My latest lab revealed that my ferritin is now up to 28, however I am still experiencing the most debilitating symptom for me - constant lightheadedness or wooziness.
I have a three year old to take care of every day and this lightheadedness or dizziness or whatever the heck it is is driving me INSANE!
My nurse practitioner told me that my numbers are still a tad low and to keep plodding along, but admittedly I am very bad at taking the slow road.
I would LOVE to hear from any of you low ferritin champions who have been where I am and can now say that YES, the lightheadedness is gone. Also do you remember what your ferritin level was when you actually FELT NORMAL AGAIN?!
Thank you so much, in advance,
Rose
0 likes, 8 replies
jenny19687 rose12774
Posted
My ferritin has typically been around 22. Do you have any other blood results like FBC and Iron studies? Have you requested an iron infusion. I had one at it really makes the difference.
Have you tried Spatone lots of people say that even though it is lower in iron their iron levels increase quickly because it is absorbed quicker?
rose12774 jenny19687
Posted
Jenny thank you for the response.
A month ago before beginning iron supplements my numbers were:
Hemoglobin: 12.8 normal
TIBC: 480 high
UIBC: 423 normal
Iron Serum: 57 normal
Iron Saturation: 12 low
Ferritin: 5
Just a week ago, after using ferrous fumerate for a 6 weeks, my labs were:
Hemoglobin: 13.3 normal
TIBC: 338 normal
UIBC: 206 normal
Iron Serum: 132 normal
Iron Saturation: 39 normal
Ferritin: 28
My numbers are all now "normal." However the lightheadedness continues and varies from a background annoyance to a full on dizzy spell.
Don't get me wrong, I love my new lab numbers and am excited that they are going in the right direction. But why do I still feel awful?!
Maybe I'm expecting too much and it's just going to take a full 3-4 months for the blood to turn over in my body, and for me to feel better?
FYI I do have heavy and long periods from Hashimoto's, and I am going to get a D&C and mirena inserted next month. Maybe that'll end the whole crisis for me once and for all!
What is your low ferritin attributed to?
jenny19687 rose12774
Posted
I don't know what my low ferritin is attributed to they are still carrying out investigations.
I find that being within the range I can still feel pretty crappy. I think the closer you are to the end of iron and ferritin is better. IANAD so it might be worth revisiting your doctor to make sure it isn't anything else.
The good thing is that your levels are increasing so should just be time.
rose12774 jenny19687
Posted
Yes probably just need a little more patience....which is so hard to come by when you feel awful, isn't it?!
Thanks again for the reply and I hope you get your ferritin cause sorted out soon!
jace81824 rose12774
Posted
Hi Rose: I use the polysaccharide form of iron as it is far better absorption rate. Until I started using that form the increase in number was far too slow. You might also want to ask your dr. to test your B12 levels ( I didn't see it in your blood work up) as low iron levels and low B12 levels can go hand in hand. Low B12 levels will also exhibit the same symptoms that you are experiencing.
rose12774 jace81824
Posted
Thank you Jace, I have had the B12 tested and thankfully its in the 700's.
I am also battling Hashimoto's Thyroiditis and I think that's contributing to my annoyng dizziness problem.
jace81824 rose12774
Posted
If your GP is treating you for your thyroid issues you might want to ask to see an Endocrinologist as thyroid issues is their field of study.
emily93880 rose12774
Posted
I didn't think low ferritin even caused symptoms. Mine was 7 and I felt great. Ferritin can be very low before it starts to affect haemoglobin, rbc etc.