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Hi,
I had a large disc herniation L5/ S1 in 2013 needing surgery due to CES after delayed response from hospital. I was left with bladder, bowel and mobility problems. Over the last two yearsI have been making slow progress until suddenly last weekend I developed the old symptoms back again- bladder, bowel and numbers to the groin. I went to A&E and after a 12 hour wait and a MRI, I was told to go home as no Cuada Equnia but I don't trust the doctors any more and I am worried. Has anyone experienced a similar issues? Many thanks.
0 likes, 8 replies
karen81972 fi03229
Posted
fi03229
Posted
karen81972 fi03229
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misty-dawn94528 fi03229
Posted
I'm hoping you've had some further tests or perhaps can offer some advice.
Misty
fi03229
Posted
I am sorry to hear about your situation, it is always more distressing when you either loss faith in the doctors or they have no idea. After the surgery two years ago, I did make slow progress and the CE symptoms only re-appeared recently, unsure why? You did not mention whether you had surgery and that would be a factor to consider? My MRI did not show any compression but the more I reflected about what happened the more convinced that I needed a second option. I approached my GP who was really understanding and referred me to another hospital who are a centre of excellence (I already researched the centre before speaking with the GP) and I am waiting for an initial appointment. Since the episode of new symptoms it has settled but there continues intermittent signs that all is not well and I remain very concerned. I think if compression is not the issue then either inflammation from a sudden disc degeneration episode caused a toxic effect on the nearby nerves? Or there is spinal instability which would not always show on a MRI? I did ask for an extension/ flexion x-Rays which is a good method of establishing segment instability as I think it can be missed on MRI? But the first neurosurgeon dismissed the idea. Otherwise I am not sure what is going- on?
I would advise since you are reporting urinary issues to ask for an urgent second opinion and maybe ask for nerve study which might reveal any areas which are being compressed? Remember it is your well-being that will be affected not theirs, so be assertive in asking for more investigations to establish what is going on.
Let me how you get on
Take care
misty-dawn94528 fi03229
Posted
Please let me know if you find out anything more about your symptoms as they sound very much like yours. I will also let you know if I find out anything more. I strongly suspect that something is not being seen on the mri.
Kind regards and hope we each get some relief soon.
fi03229
Posted
Hi,
I am so glad to hear you are making progress and I hope you will get some answers on Monday, please let me know if there anything I should be doing?. My symptoms have not changed but remain intermittent which is very distressing after the trauma I experienced two years ago.
Best of luck.
david72297 fi03229
Posted
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