Newly diagnosed
Posted , 5 users are following.
Hi all, I have a near confirmation of this from a heart monitor and am scheduled to see a cardiologist for more tests.
I wonder do you all have these symptoms?
Lightheaded
Body feeling light and floaty
Nausea
Not breathless but breathing feels weird
Blue vans in palms and arms during attack
Internal shaking
Worse when laying down, feeling like I'm dying
Very very anxious
Pain in arms for about a year now on and off
I also notice some forums where people mention issues in abdomen causing this because of some sort of stimulation to nerves. Well, I have a very large fibroid tumour in my womb but it's up past my belly button and causes me issues with digestion etc. Does anyone think this could cause AF?
Thank you
0 likes, 10 replies
frank61666 gem1971
Posted
linda51222 gem1971
Posted
kate07761 gem1971
Posted
I am worse lying down and I have internal shaky feeling 24/7 although varying in degree with various pains mainly in my liver area but they do vary. I also have problem being bloated although the fodmap diet helped that at first we are back to mayhem again at moment. Never feel refreshed from sleep. I'm also very weak and feel legless. I cannot seperate these weird fellings from when I have AF but the medical people say they are not connected. They call the weirdness Visual hypersensitivity or abdominal migraines - basically the brain sending the wrong signals to my body causing pain when none is needed. I have a lot of internal inflamation but again no specific medical label diagnostically. I don't feel anxious as you mention but I am totally worn out with all the relentless pain and coping with it but coped I must so I just keep going. How I don't get depressed is a miracle and I don't panic with the feelings you might describe as 'dying' because quite frankly they have gone on for so many years I know I am not dying! I along with others think the Vagus nerve might be connected but try telling a heart consultant that - que glazed look. I used to think my internal shaky feeling was a bit like flu but now I would liken it more to an internal tremor. A fibroid could easily be pressing on nerves. Can they not do anything for the fibroid - strangely I had fibroids removed years ago by hysterectomy so similar pattern to you. I wouldn't say I have given up looking for answers but I have a feeling they won't be resolved in my lifetime even if I have a few more years of this to go so I have learnt to roll with it or maybe I am too weak to do anything else. Good Luck with your quest to sort.
gem1971 kate07761
Posted
Thank you. I hope they will operate soon on the fibroid that's the plan. I'm now scared they won't because of AF? Is it poss to still have an operation wth this? I felt a bit breathless the past couple days and my chest hurts a little. I just don't know when it's acceptable to rush back to hospital with this, everything that happens in textbook is serious but when you look at forums people say that their symptoms are the same
kate07761 gem1971
Posted
I had an operation in November for removal of a lump and I was worried about how my AF would be - not just during op but after and I was fine. There were no problems. Even if there were they would control your AF event with drugs. At my pre-op the nurse said because of your AF be prepared to wake up in a different hospital if you go into AF!! Whilst this might have been technically true as it was a non NHS hospital sub contracted for NHS work when I asked the Anaesthetist - she assured me they had the drugs on hand to deal with and I was re-assured when I went into prep room before op that they were too hand. I didn't ask she just said which I thought was a nice gesture - reassuring. I've actually had ablation and gone into AF during and it was also controlled and that was under conscious sedation. Rest assured there are a lot of people with AF and they are dealing with this all the time. I do admit that recent op (Not AF related) gave me cofidence to deal with a 2nd ablation. When I get AF I tend to me a bit knocked out for a couple of days and have chest pain I guess this is down to the heart working extra hard and it is sore - it often feels raw - but it allways settles. If this is new to you - you won't be used to all the sessations but in time you will hopefully understand that whilst all feels odd you are ok. Medical staff don't consider AF life threatening which sounds odd but that was what I was told last week. It is hard to deal with all what is going on but unfortunately 'this is how it is' and all we can do is try and support each other through it.
LizUK gem1971
Posted
Hi '165195', Good luck in progressing to improved health.
5 months ago I visited my GP primarily asking for help (after 21 years) to resolve the fact my bowel output has been abnormal, suddenly and consistently, since I was dropped aged mid-30s, resulting in what I now know is very possibly Vagus Nerve impingement or damage, leading to my having constant AFIb. Sadly, my GP still has never examined my abdomen, or sent me for any tests on the bowel. But ultrasounds of womb, bladder and related were said to be clear. The technitian said the same cannot be done on bowels, due to presence of 'gas' being impossible to distringuish from polyps, etc.
Bowel polyps affected my father's only sibling and both of their parents. I wonder if anyone here knows if such poilyps can affect Vagus Nerve function - causing AFib? Or is it the other way round - Vagus Nerve damaged in neck area (in my case) causes muscle spasm that prevents normal bowel function. (My stools are always tiny, since my injury, and I get only 10-20 seconds' notice I need to get to the loo.)
gem1971 LizUK
Posted
Thank you
Hoe about breathlessness does anyone get this? At the minute I feel odd, not like I can't breath but just that something isn't right with it
linda51222 kate07761
Posted
Hi Kate and everyone else who may be interested,I recently saw an article on the vagus nerve, the Academic Medical Centre in Amsterdam are currently doing a trial of electronic implant to stimulate the vagus nerve at the moment for people with Rheumatoid Arthritis.
They say the vagus nerve is known as the captain of all nerves as it controls so many parts of the body including the heart and lungs and gut.the trial so far has proved succesful in stimulating the immune system for those with RA who knows could be out turn next here's hoping. the findings were published in the Proceedings of the National Acadamy of sciences
L x
kate07761 linda51222
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LizUK kate07761
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Linda + Kate, thanks for giving us hope that Vagus Nerve research + book may finally get cardiologists in Britain's NHS to consider this, regarding AFib... and obesity. Full function of disgestive system is, I feel, under investigated.