newly diagnosed HSP

I'm very sorry to hear your son has this diagnosis. Unfortunately, if you're only a week into it it is just the tip of the iceberg. I pray that it is a mild case but it took a few weeks before the full rash and continual tummy issues appeared. The bad part is there is nothing we can give them that will prevent the full on outbreak and the swelling and pain of the joints can be controlled with nsaids as long as the kidneys are not involved. My thoughts and prayers are with you and your son.

Hi Leona,

I didn't quite understand when you said he urine was clear (perhaps I am not following the trail properly) for it to be HSP he would have blood in his urine. Well that is what I had always read.

There are other things that mimic HSP.

Kindest wishs,

Lizzie

I am a registered nurse so I prepare for the worst and am pleasantly surprised if it turns out better. My daughter's initial flare up was at age 8 and was worse than her most recent flare up 6 years later around her 14th Birthday after a significant respiratory infection and lack of sleep. She did have an upset stomach but nothing too significant. The difference now is her rash would go away and then resurface over and over for about 2 and a half weeks. Her complaints of joint pain was in hands versus knees and ankles like the last time and her swelling was much worse in her hands this time around. My advice, be informed. Do research. If your child is like mine, they will try and dismiss symptoms as viral. Keep track of symptoms and potential triggers. Document everything...it will be easier for you to see patterns and report to doctor.

Hello Leona  We are newbies, too, and were diagnosed with this on 4 November.  Never heard of it before.  Quite devastating.  We have had three really bad flare ups now.  Our son has been in Hospital twice and was almost admitted again today.  So sorry to hear your news.  He has blood in his stools, raised blood vessels [spots] and the most terrible sickness imaginable.  His urine was clear last week, but it had protein in it this week.  So unpredictable!