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non-alcoholic fatty liver - vague advice from docs

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j55189
j55189

Hi,

brief story: 2 years of extreme fatigue & have been tested for all kinds of things. Had a scan a year ago & was told I had 'mild' fatty liver & galstones (lots of them apparently). At that time I wasn't really given much advice - told to try to loose a bit of weight & exercise more but when I said 'er....yes, but the problem is I have extreme fatigue that means, as much as I want to, I find it really hard to even walk for more than a mile or so' & the doc only said 'oh, yes, of course'.  

I had an appointment the other day, scheduled check up, with another specialst & she's scheduled another scan to check on progress. She also told me (which I wasn't told before) that the initial scan showed some slight scarring. She also said try to do more execise & lose a bit of weight. I dont eat much junk food & I don't drink at all - my problem diet wise being that I can't drink water, so most of my drinks are sugar heavy (juice, fizzy drinks).

Anyway, what's worrying me is that I haven't really been told how serious my fatty liver i, how fatty it is or anything much about the scarring - what does it mean etc.   Looking online, of course, tends to freak one out a bit.

does anyone have any advice or things I should ask next time I see the doc (which will be a couple of months I guess). I'd appreciate any links to specific diets or indeed which exercises are the best ones to at least try - as I said I don't have tons of energy so I want to be realistic.

I found some fairly well known sites that said n-a fatty liver is 'nothing to worry about for most people', which seems a rather risky thing to say if, on other sites, it says 'take action now'.

thanks.

1 like, 6 replies

6 Replies

  • mary07655
    mary07655 j55189

    Posted

    Hello j55189 - I have Autoimmune Liver Disease and do not drink alcohol. I also have scarring on my liver which stopped when I was put on steroids, I also had terrible fatigue and still do. I would try and see a specialist asap for treatment.
    • j55189
      j55189 mary07655

      Posted

      I have seen a specialist - that's kind of what this post was about in a way.

  • Photon
    Photon j55189

    Posted

    Are you a vegetarian? Nevertheless, did you get your D and B12 checked, which are reason for fatigue?

    Mild Fatty liver is not a problem, It is called Grade -1, Grade 2 is a border case for Fibrosis (Stiffening of liver), which further deteriorates to Cirrohsis.

    Now, due to Gall stones, if you are not getting enough Bile, your metabolism must have been getting impacted. Is your digestion good, or you getting pale stools? IF that is the case, you must get treated for your Gall stones.

    Otherwise, you may be anaemic

    • j55189
      j55189 Photon

      Posted

      thanks. No i'm not veggie though rarely eat red meat. Yes, have had everything tested - 2 years of tests ! I am having B12 injections.

      grade 1 / 2 - no one has ever mentioned a grade to me - it seems a bit daft that one has to purposefully ask for this informaiton when I expect most people have no idea about it.

      digestion is ok (I think) - no pale anything !  & according to the tests i'm not anaemic.

      ta,

  • karen34231
    karen34231 j55189

    Posted

    yes you do get mixed messages on the internet  i to have a fatty liver on a low fat fat free diet where possible gp got me a care coordinator so its someone who i can ask questions and help with any excersise or diet help is out there gp or specialist can help with answers to but u have to ask the right questions goodluck smile

    • j55189
      j55189 karen34231

      Posted

      interesting - considering i've had 2 + years of tests I can tell you that no gp or specialist has ever mentioned a care coordinator or indeed any diet / exercise help / advice. 

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