Posted , 4 users are following.
Oh I am feeling so much better, no meds since yesterday morning. Feeling better this afternoon than this morning. For me the meds have been worse than the TN....but I need to find a compromise between the two
0 likes, 8 replies
SHMorgan87 karen36710
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karen36710 SHMorgan87
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SHMorgan87 karen36710
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I also get really tired and dosey on them as well as light headed and dizzy etc but all of the side effects are so worth being pain free 80% of the time 😔
dianme17090 karen36710
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Im new to this site as of yesterday. I'm so glad your off your meds but, be careful. I did the same thing.
Now, the pain is constant with no relief. I'm still trying to get it calmed down. Haven't worked fo 6 months now. I'm praying it works for you.????
karen36710 dianme17090
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Hellsfairy karen36710
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So pleased to hear that you are feeling better! It's such a relief when you get some sort of remission. I hate the way my meds make me feel(Carbamazepine 200mg 3 times per day, Gabapentin 300mg three times per day and Amitriptyline 50mg at night) and honestly sometimes they don't really do anything anyway! I feel lethargic, dizzy, and have a tendancy to fall more often when I'm on the full dose - I fall enough as it is due to having had polio as a child, so I can do without more falls...Lol!!
Also I find I cannot drive when I'm on the meds which makes me feel so depressed. I love driving and I can't use public transport to go anywhere, so I'm hoping I can get some other treatment for the TN pain. I'm waiting for the results of an MRI scan to see what treatment might be suitable.
However, I love to hear of someone getting some respite from this horrible pain, it gives me hope!! xx
karen36710 Hellsfairy
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Hellsfairy karen36710
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That's interesting about not finding any compression showing on your MRI scan but still offering MVD surgery. Not sure how I feel about surgery, I've had a LOT in the last three years, two mastectomies and an ankle fusion...I was hoping to avoid anymore for a year or two...Lol!!
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