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Oh dear

Posted , 3 users are following.

maureen42261
maureen42261

ive just been told by my neurologist that my saliva glands have shrunk, what do I do now ?

0 likes, 5 replies

5 Replies

  • pam_87693
    pam_87693 maureen42261

    Posted

    I know that only too well Maureen. Mine are beyond repair. It's interesting that a neurologist noticed this, do you have POTS or peripheral neuropathy as part of your Sjogren's? Have you seen a rheumatologist as Sjogren's comes under rheumatology, even if you have JHS like me! If you live in the UK I suggest you ring the BSSA the charity and if you would like to join FB I run a Sjogren's group on FB called British Sjogren's I am Pam Newman. The BSSA will be on the Internet, if you decide to join they have local groups and an annual conference
  • shira75032
    shira75032 maureen42261

    Posted

    Hi Maureen, I underwent a procedure to try to widen mine and open up blockages. Do you feel the shrinking has affected their functioning?
    • maureen42261
      maureen42261 shira75032

      Posted

      Hi Shira,thank you for your reply, I have no saliva glands left, I just keeping water and chewing gum, I chew my food very slowly. But s/s

      seems to be one of those things that you have to grin and bear!Ā 

      Best of luck. šŸ€

    • shira75032
      shira75032 maureen42261

      Posted

      Are you referring to the main salivary glands (parotid glands)? I understand we have many different ones.
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