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Perimenopause and SEVERE joint pain - any one else??

Hi

I am 50 and have been in perimenopause for some time. I just wanted to post here to see if anyone else has suffered extreme joint pain as a result of fluctuating estrogen.

Quick history: regular as clockwork from the age of 13 - up to and after the two pregnancies in my thirties. Then aged 47 I started to get very heavy and irregular periods. Then I went for six months with no period at all, then two very scant light periods in quick succession. I have had nothing now for two months but I do feel as if it might happen soon as sore boobs etc.

I have never had a hot flush. I do however have lots of other peri symptoms, including insomnia, heart palpitations and skipped beats, and a strange 'rushing' or whooshing feeling which starts in the abdomen which I think is an 'adrenal' surge. I also have other vague and odd symptoms, dry eyes and inside my nose, and a really vile taste in my mouth sometimes - I mean really vile, like a chemical taste, unrelated to anything I have eaten. I also have odd tingling skin sometimes, which I can only describe as feeling like 'cold' sunburn!

However, about the joint pain. Three months ago I literally woke up one morning with a sore left arm/elbow. Over a few days, the pain then moved into my shoulders, and I got really worried as if was incredibly painful, and showed no signs of going away, it just got worse and worse. It is worse in the morning when I wake up, I am as stiff as a board. It is on my mind 24/7. Doing normal things is almost impossible - I have problems carrying shopping, drying my hair,walking the dog, driving...everything seems to hurt . I have never suffered from arthritic pain, and I went to the doctor thinking I had some awful bone disease, or even polymyalgia. I was told I had nerve pain!! The GP was terrible and made me feel like a hypochondriac and it was all in my mind. I was told I had good range of movement, and no inflammation. But I am in agony, and i am not imagining it. I made the mistake of asking Dr.Google too, which is never a good idea as I scared myself half to death. I never even thought it could be related to hormones or menopause, as the pain was just SO bad and I had never heard of joint pain being a symptom. I mean I have read than meno can be bad for some women, and I expected hot flushes etc, but I didnt realise it meant pain like this.

Anyway - for the last few weeks I have been having worsening pain which has spread from left elbow and both shoulders, into left hip, both elbows and now my knees. All my joints are cracking and popping loudly and even my husband can hear the awful grating in my neck and my knees....I sound like a one man band as I go up and down the stairs!

I went In for my three yearly Cervical smear on Monday, and could hardly get up on the examining couch I was so stiff and sore. Womans health is dealt with by the Nurse Practitioners in our large practice (15 GP's) and when the NP saw my discomfort she asked me what was wrong. It turns out she has a real interest in womens health, and has been involved in HRT trials and research for many years. She informed me that my symptoms all point to fluctuating estrogen, and possible thyroid involvement. She told me a load of stuff about estrogen and cartilage, dry mucosa etc, the details of which I can't remember now but which made so much sense when she explained it - even down to the foul taste and tingling skin I have also experienced on and off for months which are both known side effects of estrogen surge as the ovaries go a bit haywire. Asmall percentage of women are very receptive to estrogen fluctuations which involve cartilage, which mainly manifest as abnormally severe joint pain/menopausal arthritis but it is not an 'obvious' symptom of perimenopause.

I asked why the GP was no help, and she just raised her eyebrows when I told her which male GP it was, and told me to make another appointment as soon as possible with a specific GP (who must be more knowledgeable about womens health.) Going in tomorrow to see her.

I can't do HRT as I have a heart condition, but maybe I can do estrogen cream, or phytoestrogen/soy.) It could last for a long time I guess until I come out the other side !

So i have not yet been diagnosed, but it sounds like it could be caused by estrogen. Sorry this has been so long....but anyone else out there feel the same way I do???

Lesley.

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  • goldfinch

    Hi Lesley I have been reading your post and I am sorry you are having such a rough time. I have just recently 'completed' menopause ie a year without periods and have just started on Livial. I didn't want to take HRT but the hot flushes have become a problem, along with a few other issues, and I too have in the last week or two had pain in my legs when walking. It seems to be centred more on tendons and muscles rather than on joints. I have both hips replaced and they were xrayed recently and all ok. I also had a swelling come up on the middle joint of one thumb which the doc said was a Heberden's node, ie arthritis and one or two of my other fingers are showing slight signs of swelling sad((( It seems more than a coincidence that it is happening right now along with the hot flushes becoming more noticeable. I had read that sore muscles and joints can be one of the symptoms of menopause but yours seems extremely severe and I think your GP should really refer you to a rheumatologist? You mention that your thyroid may be involved. I was diagnosed as hypothyroid at 47 years (I'm now 53) and this commonly occurs around menopause as all the hormones are so closely interdependent. If that proves to be the case with you, please don't use soy products as soy is now known to inhibit thyroid function. I use Viscotears for dryness in the eyes (which I didn't suffer from when younger, and also Vagifem, a suppository for local dryness relief. If you are considering using estrogen boosters please bear in mind that you should also be replacing progesterone, ideally via a progesterone cream, otherwise you run the risk of becoming 'estrogen dominant', which is a risk factor for various problems such as female cancers. I have found progesterone extremely good for panic attacks which I started to have when I became hypothyroid. Hope this helps somewhat. Kate

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  • Fanny Jane

    Hello Lesley, sorry to hear how the menopause is affecting you. I had a terrible time with the hot flushes , muscle and joint pain for five years or so. The hot flushes have subsided at last but I still have the joint pain and severe arthritis. My body felt like it had aged 20 years in five.

    My gp told me it's very common and probably an inherited tendency as women can have very mild short term to very serious and long term menopauses. It's very individual.

    I also have had a underactive thyroid for 30 years, although not connected with the menopause it did get worse and I had to up my daily dose.

    I was unable to try HRT as I also have a heart condition but was able to use a vaginal cream for a while. I had to stop it though after about 8 months due to my system absorbing too much.

    It's a rotten thing for us to go through, who'd be a woman through choice!

    Goldfinch has given you some good advice and personally I think you need to see a rheumatologist at least and possibly and endocrinologist as well, your gp can refer you

    Good luck and hope you get some help and answers soon. Fanny Jane.

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  • Lesley998

    Hello ladies and thanks for the replies.

    Things came to a head last week, as I woke up one morning and could genuinely hardly get out of bed - I had new pains in my lower back and hips that were excrutiating. I hobbled down to the doctor appointment as mentioned and finally this lady doctor listened to me and agreed that it could be hormonal. I was given some strong pain killers - and some blood tests (at last) and I got the resuts a week later, last Friday.

    NO inflammation, no raised CPR or ESR, no rheumatoid signs... but FSH was very high and after some discussion about my cardiac issues (LBBB) the doctor started me on the HRT Prempac-C immediately. She told me it would take from a week, to up to a month to see changes, but I am really not exaggerating when I say that today, three days later - I feel SO much better. I still have the pains in all of my joints, but it feels that way when you have flu, or have had a dental abcess or something, and you know you are on the mend...the pain changes somehow, not so intense.

    Now.... I always thought I had a farly high pain threshold - but I genuinely have never felt anything like the joint pain I have been having for almost three months. It was intolerable. I really was starting to think I had some awful disease, or bone cancer. Just shows you how these hormones (or lack of them) can affect us. I didn't have a lot of other symptoms that women mention but I definitely got more than my fair share of the joint issues.

    As for the cardiac thing - I have a permanent left bundle block, after having endocarditis ten years ago. This means heart disease is something I really need to avoid, and as I know HRT can cause heart disease, I thought I could not take it. However, I could not live with the symptoms I was having , and am happy to take the risk for a couple of years until my body moves into menopause and hopefuly get used to the lack of estrogen. I dont completely understand how it works..I mean, you can't be on HRT forever, and surely when you stop it the body just starts missing it again...and joint pain will come back. But the doc did explain that after menopause, the body recognises the situation and the symptoms are not as bad as peri.

    I will continue to update on this pain and how the HRT has helped - but I hope any other woman as frightened as I was about the joint pain and joint changes can take encourangement from this that you are not going mad...it IS your hormones.

    x

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    • Beetle1965 Lesley998

      Thank you for updating and I know this was a while ago.  I am worrying myself sick about all these sudden symptoms ( I was told last week that I have gone through the menopause - I had no idea - periods just stopped) I developed an aching hip as soon as periods stopped and general burning aching in sacrum.  I read that low estrogen can cause this and will keep an eye on it - very reluctant to visit GP as they have been so dismissive in the past.  It comes and goes at the moment and almost around the time I would have had a period.

      I do feel like I am going crazy with all these changes.  HRT might not be an option for me, but I need to consider it.  This has come out of the blue for me.

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  • Fanny Jane

    Hi Lesley, just wanted to say it's good to hear some positive news for once. I hope all goes well and your joint pain settles down and when the time comes to stop the HRT you have a smooth menopause,good luck.

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  • goldfinch

    Hi Lesley at last you have some answers even if it is a disgrace how long it's taken for anyone to take you seriously! sad It's astonishing what menopause can do and I hope you can tolerate the HRT for as long as is necessary. I have made the decision myself to stop Livial after just a week as it seems to be making me depressed and exacerbating some of the aches and pains I have. So back to the drawing board, possibly going the 'natural' route or discuss other forms of hrt when I visit the menopause clinic soon. One of my enduring questions too is what happens when one stops taking hrt particularly if one has been on it for a long time. At the clinic I was assured that the body goes through the process of adaptation even whilst one is taking hrt and therefore eases the transition period but posts I have seen from many women seem to suggest otherwise. Another school of thought says that hrt is only postponing the situation and one is better off going through the changes in ones fifties rather than, say, ones sixties but that depends on how severe the symptoms are. So Lesley I think you are doing the right thing for now, after all, you can't live your life unable to get out of bed! sad(( Good luck to you from now on. kate

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  • Lesley998

    Thank you both.

    I have to say I am absolutely horrified at how clueless my male GP was - he is supposed to be the 'rheumy' expert of the practice, and yet he absolutely refused to consider any idea that my hormones could be to blame for the pain. He made me feel like a fool for even mentioning it. I pity the next lady of certain age who goes into see him and comes out feeling like a middle aged, anxious hypochondriac.

    However... I have to say, even the internet - the place where I find out most things lol - is not exactly awash with information on 'joint pain and menopause'....it can't be that common. But it happens obviously, and the GP in the next office down the corridor new it! Talk about the luck of the draw. Anyway... thank goodness I saw the NP for my smear and got the go ahead to see another GP, or I would still be in that terrible state of pain exacerbated by worry.

    I can't say I am totally happy at the thought of HRT. I really didn't think I would ever take it. I was a little smug actually, as, up until the day I was poleaxed by this pain I thought I had done quite well and had escaped any symptoms! No night sweats or flushes. But.....finding out that what I am taking is the 'urine from pregnant mares' in pill form doesn't fill me with joy either, but the way I was feeling last week, I would take a tablet made from the poo of a syphillitic warthog if it made me feel normal again. smile

    Kate - I am sorry you feel bad. Can you experiment with patches and creams? I don't know anything about HRT. I just took what was on the prescription, I don't know how the GP worked out what was best for me. As long as I dont have any side effects (probably too early to tell) I will stick to this, but I would probably prefer a patch if I had the choice.

    All I know is today, I genuinely feel like a different woman from last week.

    Best to you both and stay well x

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    • louisa24 Lesley998

      Hi Lesley I have been reading your posts on joint pain as I am suffering same symptoms and have not had a period for about 18 months to 2 years. I have had this joint issue for over a year now and have even had to quit my job. My inflammation levels are high and they are saying it is osteoarthritis, but I am wondering if it is hormonal as nothing has helped. I was wondering if you are still on HRT and how you are doing.

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    • Lesley998 louisa24

      Hi Louisa.  Sorry to hear you are in such pain - I do not how awful it is and I sympathise with you.  I was only on HRT for six months.  It definitely did help my joint pain for a while, which was no coincidence - my joints/tendons were bady affected by the sudden drop in hormones.  I had to come off HRT as it was giving me new migraines and visual disturbances.  The pain did come back, but not as bad...and I have to say, a couple of years on from my first post I am feeling 80% better than I did.  I still have some hip and shoulder pain, and bad cracking and stiffness in my neck, and signs of osteoporisis (loud crunching in joints)   I was very sills as a young girl and was on low fat diets for years - no milk or cheese.  Probably buggered up my calcium levels and my bones. Anyway - to conclude, I don't think the HRT did a LOT to help me, as I have been off it for over a year and feel fine.  I also had NO raised CPR or ESR, no inflammatory markers, no inflammation, heat or redness in the joints.  If your inflammatory markers are high, it does sound to me like you have something other than hormonal issues going on.  I hope you get it resolved.  x  

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    • louisa24 Lesley998

      Hi Lesley thank you so much for your prompt reply I am going back to see my rheumatologist at the end of July as this is getting worse and pain is unbearable. I just need to be out of pain so that I can at least smile again as I am usually a very bubbly person.

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  • Fanny Jane

    Hi Lesley,

    I thought I'd drop you another line after reading your post this evening.

    It's all a bit of a lottery with the NHS these days, dear old Dr Finlay and dedicated doctors are generally a thing of the past. I have a couple of nasty conditions that I have to live with and I can assure you I've yet to meet the doctor who knows as much as me about them, a lot of other people say the same.

    As to HRT. My sister is in her second year of the HRT patch. She has a very responsible and demanding job and although aways swore she wouldn't succumb to HRT has had to. She became very low with every symptom possible when her menopause suddenly kicked in, she was 53 at the time. You may imagine how it began to affect her work performance and to an extent her home life. Within a few days of starting the HRT she was blooming again and hasn't looked back since. She just says now is more important to her than whatever may not happen in the future because she took it.

    I also have a great friend who took HRT for ten years. Her doctor then said she could no longer take it and had let her have it for longer than recommended anyway. She almost immediately went into menopausal shock. At 66 that was not funny and she begged to go back on it but wasn't allowed to.

    However the flushes/headaches/general bad feeling/hair loss did slow down after about 6 months, although I think she felt it was a great deal longer than that. She is now nearly 80 and as fit as a flea.

    Loads of my friends have tried it, no one actually had any bad reactions or became ill on it. Some gave up quickly and a few soldiered on.

    I've never had HRT and had five years of pure hell. I used to wear a tea towel round my neck at work to wipe my face with and dripped sweat onto my keyboard and very embarrassingly used to get off my seat with a wet patch on my skirt. I had to wear black all the time to try and hide it, it was that bad. Looking back I've no idea how I got through it with my creaky painful joints, bright red shiny face and hair stuck to my head. However I did, my colleagues were great and my husband even greater. I used to get through 3/4 nighties a night and slept, when I could sleep that is, on bath towels. Once it started to slow down we had to buy a new mattress and although I still have the odd flush it's all done and dusted. I'm very surprised that I still have a nice skin and look a lot younger than I am, I was expecting to be a wrinkled old prune by now.

    I wish I could have taken the HRT and would have done without hesitation- I may have got promoted earlier! I laughed out loud about the warthog bit!!It's nice to talk about it all, even nicer to know it's behind me now.

    So whatever happens, whether you stay on the HRT for years or decide to stop and face the music, I promise you one day it will all settle down, unfortunately you will find yourself catagorised in that 'older women' catagory. As I still feel about 6 inside, sometimes I have to have a second look in the mirror as the person looking back at me is someone I'm not sure I know.

    My very best wishes to you and Kate, hope all works out for you both - we old girls have to stick together x

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  • JaneFlag

    Hello Lesley,

    I have been going through peri for about 6 years now-started at 48. I don't know what my mom would have gone through with peri-menopause since she had a hysterectomy(sp) at 41 years old. I beleive she was on HRS at the time too. I was worried when I got this joint/muscle pain that I was getting the arthritis my mom has now and what my grandmother had (my mom's mom). My grandmother passed away at age 83 because she had osteoarthritis and would take aspirin constantly for the pain. She finally died of a bleeding ulcer from the aspirin.

    I work in a warehouse, where I am expected to lift over 40 lb objects and some are much more than that. I already had a documented disability with depression and when perimenopause hit, it hit the depression really hard. I am getting special accommodations on my job, but one of the core duties of my job is to be able to lift at least 40 lbs and deliver mail and packages. I have been trying to get another job, where I can just sit at a computer and get up every once in a while and stretch.

    Now the reason why I am writing is because it feels like I am not the only one out there with this joint pain. My boss was gone for a few days last week and I really had a lot of items to pick up and deliver and I did over do the lifting. I started feeling bad on a Friday and the next weekend I was hurting in my ankles, some knee pain, wrists, shoulders and lower back. I just felt awful during the next whole week. I would just come home and not really feel like eating, which a big thing for me not to be hungry, and would just lay on the couch as my whole body was just aching like when you have a cold or flu. I spent the whole next weekend on the couch. I felt better to come to work on the next Monday, but I still have the incredible soreness going. I have been experiencing my muschles getting tighter when I try to stretch as I have always try to do. I figured it was because of the lack of the hormones in my system. The OBGYN Physcian's Assistant put me on progerterone for 14 days of the month to help my mood swings (that were not helping my job situation either.)

    I called my PA about this pain and she called back and said "we never heard of this problem with anyone in perimenopaus, so go to your regular GP. They do not seem to want to deal with anything that is other than hot flashes or mood swings. As many women mentioned, some doctors or PAs think you are a basket case and crazy things other than the "normal" perimenopausal are the only things they deal with. So closed minded or they just do not have time for this, I don't know.

    I am trying to take some natural herbs and other remedies I can research, along with eating better and exercising. I have read many places where it states that the older you get, the more you should still keep active, maybe adjust activity to what you can do and not overdo it. It does hurt to move and we all get stiff from non-movement, but I still don't want to be lifting heavy packages and furniture as I have been doing since I got this job when I was 46. At 46, it was not too bad, but now I might get a not too estatic reaction to my problems with lifting items and help with getting another job. Jobs are hard to find now and my company has been trying to help me, but they just might think I am trying to get out of doing my job and not believe me even with a doctor's note, since I have gone through a lot because of the mood swings and they have been very good to me by providing some accommodations which have helped. Taking the progesterone seems to have helped the horrible crying moodswings and depression along with the anit-depressants I take. If I tell my supervisors I have this problem, they may either get angry with me or take me off the job right away instead of wait and help me get another job. In my situation I can request to have another job that I am qualified for as a non-competative candidate, but that does not mean that I will get another job. So I am between a rock and a hard place with the pain and still having to lift heavy objects everyday. I can't lose my job as my husband is disabled with a hearing loss.

    But the main idea of this web site is to see what other women are experiencing and I really appreciate what everyone has shared, it helps immensely. I will keep following everyone's responses and if I find anything that works, I will mention it also.

    Thank you all so much and I hope everyone has a better experience or finds a way to relate to it differently so that it won't be so hard. Good thoughts to all of you!

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  • debi1961

    Hello everyone

    Firstly can I offer my sincere thanks to all of you as prior to reading your blogs ( by chance while playing with my new Xmas toy) I really was getting very worried & stressed that I had some kind of major illness.

    History - like all of you I am at that age (51) when you know the menopause is around the corner so just get To get on with life I have always been good for my age , not overweight , do not smoke or drink heavily but over the past few years have developed a number of common systems - mainly night sweats , tiredness, headaches, weight gain and for about 2 years jount pain - I first approached my GP about 2 years ago when it got so bad that I was unable to move my left arm. ) I was then referred to a caropractioner whom I visited every week for a year. The systems lessened but did not go away .

    Then last year I went through a very stressful personnel trauma that resulted in living with the pain via any painkiller I could get m hands on i even started to think I was going mad as the pain was moving around my joints ( my GP 's face tells me that he thinks I am making this up) but that is not the case.

    I still have the night sweats & at present the pain isi in my right shoulder & is worse at night or if I do any exercise or even lift my arm up suddenly.

    But now I have read what you have wrote I have researched peri menopause & my symptoms of joint pain is not in my mind and is actually there I feel that I now want to see what I can do to decrease my symptoms

    1 thing at this stage I do want to pass on is ( my children think I'm mad ) is that for about a week now I have slept with a cold wet flannel wrapped around my shoulder joint - this I have then covered with a drytowel to stop the pillows getting wet and also had to hand another cold wet flannel for my head - the pain has decreased enough to allow me to sleep until the night sweats start but the cold flannel has reduced the. timespan so at least I have got some sleep.

    And no pain killers so far

    So ladies fingers crossed we can do this & thank you all so much

    Debi

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  • Lesley998

    Debi,

    Hi....what I think you have is what I have also been diagnosed with...and this is a frozen shoulder, or 'adhesive capsulitis'. There is a board here for it which I have also posted on!! I now cannot move my left arm more than a couple of inches in any direction. It is agony at night. Sudden movements cause complete agony for a moment where think I am going to pass out (I almost slipped on ice the other day, put both arms out to balance as you do and got this pain so bad I thought I was going to be sick.) Hanging up washing, drying my hair, even washing under my arms is difficult as I have such limited movement from the shoulder. I am getting physio for it, but it can take a looong time to go away. I advise you to read up on it.

    MY GP tells me it is probably because of the low estrogen and how it affects my tendons. Some women (like us) are particularly prone to tendonitis from menopause...it is more the tendons causing the pain than 'joint' pain. it is absolutely hellish. I am now on double strength hormones, and I have to say I do feel an improvement in the rest of my body, although this frozen shoulder is still very sore.

    Sending my best wishes to all who have posted...and Jane, I feel so sorry for you in a lifting job. There is NO WAY I could lift with this pain. it is all I can do to type!!

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    • mary92107 Lesley998

      Hi guys, I hope you're still seeing these posts because I'm desperate for answers! I'm having joint pain too, also Lowe back hurting all of. Sudden, elbows, neck. I have a continuous light-headed feeling, dry skin (burning), dry eyes and mouth. About 5 months ago my mouth started hurting like crazy. I've had so many doctors/dentist look and they don't see anything. They diagnosed me with burning mouth syndrome. One of the reasons woman get this is lack of hormones. Only one doctor (ENT) said these were all menopause symptoms. The other doctors think I'm crazy. I was on a low dose hormone patch but have me big brown patches on my skin so stopped taking it. A new gyno put me on birth control pills and I'm on my 2nd week and no change. Seems each day I'm getting a new symptoms. The anxiety of all this is horrible!! I'm always thinking I'm dying of a horrid disease!! I'm almost 51 years old.

      I hope all of you are finding relief!!!!

      Thanks so much

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    • shaznay96184 mary92107

      Hi Mary

      I too was aching like mad, joints killed me. Namely L shoulder that started creeping down to L elbow, between shoulder blades, knees, neck. I 'clicked' all the time. Don't laugh, I even had a big problem with the joint in my big toe for yonks, couldn't wear shoes with heel as couldn't bend foot into the shoe! I'm not saying I'm tottering around now on pole-dancer's shoes, but I can actually move that toe for first time in years without pain:-)

      Had enough of feeling like the walking dead, so bought myself some Menopace Original vit/min supplements......What a bloody God send!!

      Felt their benefit within weeks! Can only imagine that I was totally depleted in EVERYTHING to have benefitted so much.

      Remember doing a big stint of gardening last Autumn before I had thought of getting anything to help my aches - put me out of action for a couple of weeks as my lower back/hips were killing me.

      Did the gardening again on Tuesday with a bit of trepidation...... brilliant! I haven't ached at all:-) !

      As far as I'm concerned, I'll be taking Menopace for ever now. Maybe have a read up on them to see if they could help you too.

      Sx

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    • KatN22 mary92107

      Hi Mary, just like you and Shaznay, I had all of the syptoms you describe.I was recently diagnosed with adenomyosis, if you google you will see... I had mirena coil fitted, and feel as good as new ever since lol

      I am jogging every day now - I used to crawl around in pain, and this would be unthinkable a month ago!

      I had hip/lower back/neck/jaw pains - especially jaw - I could not even smile! I remember doing some gardening last April, I was in bed for 2 weeks after that! I am 44. Difefrent thing work for different people - I hope you find some useful information on this site, and get better! K

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    • shaznay96184 KatN22

      Hiya

      Just Googled Adenomyosis, and yeah, I''ve probably got a fibroid or two. For me, some of the symptoms didn't relate......now.  When I was younger: definitely. (You're a mere kid of 44:  I'm 54 and feeling it most days ha, ha!).

      Generally I've chosen to use Coils (IUDs) for contraception.  Was never too keen on the Pill.  Swore blind I could feel it 'surging' around me (always a bloody Drama Queen, me!).  More so because I didn't want the agg of having to have a back up contraceptive should I have got Diarrhoea/Sickness (used to drink when I was younger: wasn't that good, always got sick and a hangover: don't bother now!), or if antibiotics were needed. 

      So the IUD was OK for me.....aside from the recognised side effects of cramps, heavy bleeding, etc.  I truly just think I got used to it over time. 

      Years ago I was due to have a Mirena fitted.  The twit (being polite here!) of a Doctor couldn't fit it in me (they were new, bigger than an IUD etc yadda, yadda).  I was so disappointed, and vulnerable - I was lying there, legs akimbo, bleeding, with no contraception at that point! - so I growlled at him to put anything in then (think I got off light!).  Gutted, as I knew I'd just go back to heavy bleeding.  

      After going through a low spell (lost parents etc:  sh*t timesad) I asked the Nurse Pract'r if there was anything to help with this drudge.  She gave me some Transexamic Acid tablets:  took them for about 4yrs and they worked a treat.

      I forgot to get a repeat prescription so decided to see how I'd cope without them, cold turkey.  Think time and age had started to work on me, as my bleeding was, and is in comparison, much, much lighter.

      I swear I have felt so much better since taking Menopace.  But i also have a dab of bioidentical Progesterone Cream which probably helps abate some symptoms.  I'm too chicken to stop taking it in case I go into full-blown Sweaty Nut Job without itlol!

      I'm due a Period in about 5 days.  I'll see how the Red Mist goes this month, as I was a bit of a naughty girl last month:  everyone copped it, I'm afraid to say. Plus I felt very lethargic (like everyone else says: feels like the onset of 'flu), and then I get over it. 

      I think once I start to get really sweaty (one of my lovely sisters assures me I will: cow!), I'll probably go talk some HRT.  But since my aching joints have improved, I'm holding off for as long as I can.  I'd say its odds-on that I'll try HRT as our mum had 'bad bones': 3 hip replacement ops all post-Meno sadly, and other bone-related issues.  But, amazingly, she was still very active until she left us at 81. Even did the Orlando white knuckle rides at 72 - I'm using that as a Benchmarklol!

      Glad you're enjoying your life again.  44 is far too young to feel as old as me!!

      Sx

      PS - I hope after all this twaddle, I read the right symptoms for adenomyosis!!

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  • karen8

    I have just been to the doctors this evening - I can't do the night sweats any more and wanted to discuss HRT. At the end of our chat I asked if she might take a look at my shoulder - totally unrelated - I thought!!! but the pain has been constant and sometimes excruciating particularly at night. She told me it was probably due to the fact that I had recently moved house with all the lifting etc, and continue taking the ibuprofen.

    She gave me this site to look at regarding information about menopause etc and I couldn't believe it when I stumbled across your comments! I thought it seemed a bit strange that the shoulder / neck pain seemed to start at around the same time as the sweating!!

    Thanks so much for the posts - it makes sense now. Will have to enlighten my GP at next appointment!

    Karen

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    • shaznay96184 karen8

      Karen

      Menopace original helped me no end - probably the Vit D Clcium., Magnesium in it. When I say I ached, I'm not kidding.

      Surprised your GP didn't suggest a blood test for Vit D deficiency, baring in mind you were discussing HRT?!

      BIG high Five that she suggested you access this site: the saviour of us all:-) !

      Maybe give the Menopace a try? Its my new BFF and whether I go get some HRT in the future, I'll still take it as I've felt so much better for it. Even managed to do the gardening without feeling like death the day after - or should I say 'fortnight after'!!!

      As I will probably be moving house later this year, I'll make sure I keep up the use! Enjoy your new home:-)

      Sx

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  • natalie2

    hi everyone... i googled joint pain and this post popped up and its given me so much advce so thank you smile ... the joint pain i've been suffering wit hhas been terrible the last few weeks first started in my shoulder and now its almost all over, the only difference i have is that im only 22, but i've been thinking since i had my son nearly 2 years ago that my hormones have been all over the place, i've been disonosed with PMS, and my monthly's are now irregular but before i had my son they were so regular i knew exacly what day i was due. i can now ask my GP about it thanks smile Natalie

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    • kathy46259 natalie2

      Sweetie:

      At your age you need to find an expert doctor or pharmacist in hormones.  You are way too young to put up with this nonsense.  The rest of us are older and to some extent we expect this messy business.

      All of us could give you  list of supplements and other meds we have used but you are way too young to be getting into things you may not need.  A good blood test, a saliva test for hormones is probbly a good idea, can't hurt.

      Take care and don't procrastinate, this is advice from the lead procrastinator of all time.

      Kathy

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  • Lesley998

    Hi karen8

    Might be worth having a look at the 'Adhesive Capsulitis' board on this site. Just enter it into the search box in patient discussions. In there is a thread called 'Menopausal Frozen Shoulder' which will give you more info. (I tried to post direct a link but the site would'nt let me!)

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  • clare7

    Hi I'm extreamly glad I found this thread, I was diagnosed with PM when I was 38 I was put onto hrt

    And I stopped taking it a few weeks ago I'm now 42 and have the same symptoms with

    The joints as well as stomach, I also have M.E. which I have had since 1991. Which the symptoms

    With that are also the same, and I get told by doctors its just the m.e. but you know

    Your own body and this is different, I also have the hot flushes whilst u was on the

    Hrt but off it I don't,

    I am having test for lack of vitamin d, which also gives the symptoms, but reading here

    I think I'll ask my doctor about this, the doctor never really explained the menopause to me

    Just said you have it and you can't have any more children. I had to explore the internet

    For answers, still not a 100℅ sure on it all, and find myself crying a lot and feeling as if

    I'm going mad. so I'm so glad to find this is kinda normal. And also sorry

    To you all for the fact you all have to go through the same. Hope you all get well

    And the help you need. Thanks

    Clare

    1 vote Report Share reply to clare7

  • Lesley998

    Hi Clare

    No, you are not going mad. menopause is something all women have to go through...I just wish it was more well know what absolute hell it can be for some women. So many people suffer pain and worry and their GP's do not link it to menopause. You will find your GP is either sympathetic to it...or completely dismisses any connection between joint/tendon pain and menopause/hormone fluctuations. I personally have noticed changes for the better on HRT - in other words, I am not crippled anymore - but HRT has not been a magic wand. There needs to be more research done, us ladies should not have to suffer like this and be made to feel like we are going mad. Good luck x

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  • katie13

    Thank you everyone for making me feel soooo much better, like you all, I have been having excrutiating joint pains. Difference is I was on HRT for 17 years following a hysterectomy at 38, now have been off HRT for 5 years but still hot flushing etc in fact had to give up work as symptoms so bad, and now the joint pains.First in the fingers then feet then shoulder then hip.I thought I was going mad.NSAIDS and paracetamol no help at all.

    I find the only thing that really helps is swimming. I am not a very good swimmer but in the water all pains just disappear and even the next day are better.

    I am now hoping that all will calm down when my hormones are sorted. I can not face trying any more drugs for this. I caution everyone about long term use of HRT.You are only putting off the inevitable, and for me the cold turkey is definitely worse than the early menopause I would have had.

    0 votes Report Share reply to katie13

    • kathy46259 katie13

      Katie:

      I saw a Compound Parmasist yesterday about my hormones.  She deals with men's and women's hormones, travels and speaks on the subject to Med Schools and doctors seminars.

      She did recommend swimming, strongly.  Expecially for men with low hormones.  Evidently the exercize is minimal impact, she says swimming uses all the bodies muscles with lots of burnt energy and we will produce some of the hormones through exercize.

      Hope she is right, I spent an hour and a half with her and gathered info. that no one has covered.  Women divelope Testasterone, we need it.  I had None.  The list of the things it does for us is endless.  If anyone wants me to go over what I learned let me know.  She was recommended by a doctor at the Loma Linda University that people from all over the world come to utilize.  Look it up to see what you all think.

      Kathy

       

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  • linda39

    My friend found this thread for me after doing so much research for me. It is amazing to see how many people are suffering like I am.

    Two months ago very suddenly I had awful joint pains to both of my inner elbows, after a few days the pains were in my knees but a lot worse, this also seemed to be attacking different parts of my body as in shoulders, neck, whole of legs etc. Then three weeks after it first started I was in agony with my ankles and my feet were very swollen.

    So with both my knees and ankles I was having trouble walking at times.

    I decided it was time to go to the doctor: he intially thought it was arthiritus and done blood tests, these all came back as normal. I was then sent for knee & ankle x-rays, but once again -normal.

    Further blood tests were carried out for Thyroid and Vitamin D - to which he intially said were all ok, but has since called me to say I need a vitamin D supplement.

    He suggested referring me to a rhuematologist to which I have an appointment at the end of this month.

    On reading all these messages above I have gained a great insight to my problems.

    I hadn't ruled out a virus due to the way it was attacking the whole of my body and lingering.

    But now I have more information from all you other ladies in the same situation this has really helped.

    0 votes Report Share reply to linda39

    • Carolmayhew6 linda39

      Hi Linda

      You just sound like me

      I had sudden onset of pain in my right knee which in turn went to my left n I was crippled with walking very short distance could not even stand for longer than it took to boil a kettle, I saw my gp n had MRI scan that shows degenerative arthritis the pain went worse over a few days n I'm now at the end of my tether constant pain in both knees n down my legs excruciating at times

      My sister mentioned my menopause as she had googled joint pain in menopause n found this site 1 if the posts may have been me writing it exactly same symptoms sad

      I saw my gp after speaking to my sister who is on HRT j had simular probs but then they subsided after starting HRT so I went j out my case to him he was slightly neg at first but did bloods LOW N BEHOLD my FSH stimulating hormone was high at 95 n shud be 35 or less so therefore I need supplement which I've started yesterday so fingers crossed I'll get some relief smile now

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  • katie13

    HI Linda,

    Interesting that you mention Vitamin D. I have been taking supplements of Vit D since I read research on the benefits in reducing risk of Multiple Sclerosis and how low the levels of Vit D are in British people because of the lack of sun in our climate recently. It certainly has made my nails and hair grow and made any of my SAD symptoms less severe this winter. But I wondered if taking the supplement had made my joints ache, so stopped it for a week, but no change so have started it again.

    I will be very interested to know what the rheumatologist says. I have not been to the doctor. I am a retired nurse and hope to heal myself!! ( or may be bury head in sand!?)

    0 votes Report Share reply to katie13

    • shaznay96184 katie13

      Hi

      Just noticed your post was from over a year ago, but still very topical.

      Today I read in the Daily Mail (online version) about the possibility of systematically prescribed children in the UK Vit D to ward off the rising numbers of them suffering from  Rickets. 

      Can't do right for wrong:  we slather kids with Factor 50, cover them up from the rays, and put them at risk of Rickets! 

      I am not a fan of the sun: fair haired/skinned.  Have used Factor 30+ on my face/arms for years.  Don't think I have too many wrinkles - creases, yes, especially when I wake up, often finding a new one on a daily basis! - for 54.  Thats all I've got going for me tho'!

      I'm the only one of 4 sisters who HASN'T yet had a skin cancer removed.  Hopefully, I'll keep taking the Vit D/Calcium/Magnesium, and carry on with the Factor 30!!

      Sx

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  • linda39

    Hi Katie,

    Well I only started taking Vitamin D yesterday, I had to buy the 1000mg dose and he wants me to take it for 2 months.

    So in my case this would not of actually affected my joints initially as my pain has been for 2 months prior.

    Glad it did not affect your joints as it seems to be helping you somewhat!

    That was my problem I kept burying my head in the sand saying oh it'll pass, but in the end I had to give in.

    Although I did have nearly a whole week last week where I wasnt in actual pain, but it has started to creep back a little now along with the stiffness.

    Yes the rheumatologist visit will be interesting, although I am not holding out much hope!

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