Please help: Is this trigeminal neuralgia?
Posted , 8 users are following.
I am not sure if this is TN but also not sure what else it could be. It started with pain deep in my ear. This spread to my nose/cheek area, under my eye, around my eyebrow and around my lower jaw. Its an intense deep sort of aching/throbbing pain but no electric jabs so far. The location sounds consistent with TN but since there are no electrical sensations and since its fairly constant Im not sure that fits TN. I have no cold, no sinusitis or other symptoms and it came on fairly suddenly I had soemthing similar a while back which ended up with immense toothache too and though they couldnt actually find anything wrong with my tooth the pain subsided after tooth treatment so i assumed that was the cause. Now i have the whole thing again but no tooth pain. At the point right of my nose, sort o fbelow my eye its a sort of stabbing pain radiating outwardly and I have such terrible ear pain (deep inside). If this isnt TN, do any of you have any thoughts what this could be considering i have no signs of having a cold at all. Thanks so much for your thoughts :-)
1 like, 21 replies
Glor888 ray91776
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Sorry to hear of your discomforts. Everybody starts off with different symptoms of TN but quite a few with the electric current feeling and stinging of the tongue etc, as in my case, is the norm. As your feelings are in the nose, ear, cheek area etc at first I would have said maybe the signs of a cold or infection brewing. I've had similar feelings in the past, which not only turned out to be a stinking cold but I ended up with laryngitis and an ear infection to boot. I too thought it maybe my tooth at first, right at the lower back, and I too went to the dentist and they couldn't find anything, I was even referred to a dental specialist. My dentist wasn't convinced it was tooth related and my Dr wasn't convinced it was neuralgia. But she had to relent in the end.
But I'm sure I've read on here people with similar pains as yours and their Dr diagnosed TN. If it continues without ease I would get a check up with your Dr who may refer you to an ENT clinic. Because my TN is really bad at the moment different Dr's at my surgery has suggested either, facial Xray, referral to the ENT clinic and now a pain clinic. I won't know which its going to be until my appointment on Friday.
The sooner you get it checked out, especially if it's consistent without any relief, the quicker you'll get a diagnoses and the medication needed.
Let us know how you get on. Good luck.
ray91776 Glor888
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ray91776 Glor888
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Valkyrie ray91776
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ray91776 Valkyrie
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Nascar1 ray91776
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ray91776 Nascar1
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wanganui Nascar1
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eddie13 ray91776
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I'm no doctor - so I preface everything I write with that statement. What I am is a sufferer since 2007, incorrectly diagnosed until 2009. Had perfectly good molar root canaled + capped then extracted + Maryland bridge. Sure felt like a years earlier issue solved by root canal + cap. TN comes and goes. It may or may not be related to teeth issues. So many varieties. I know someone who got it from both gold and silver fillings. Went to all silver and solved. Eventually my endodontist was hitting the area with a hammer. He said if you feel nothing now, you need to see a neurologist and get the correct medication. Amen. Defer to a neurologist !
I've had the electro shocks which are just unbearable. Fortunately my med works right away. Shocks are seconds in length for a few minutes. Staying strictly on medication schedule prevents those. Also is what I call the dull pain, which sounds like what you have at the moment. Those go for a day to 10 days or so, but are minor relatively, more like annoying. Have found no way to eliminate those. Good luck to you.
ray91776 eddie13
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rick518 ray91776
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My story is somewhat similar, I was sure I was having tooth pain. Over the last 1-1/2 years I would experience a light throbbing pain in my left upper and lower jaw. My dentest would say it wasn't my teeth (thankfully, no guess-work root canals!). Eventually it would go away. This happened twice before the latest episide which was horrible. Eating anything would bring on 30 minutes of long, aching torture, very much like a dentist was doing surgery without any novicane. I became terrified to eat, and lost 10 pounds in a few days. Other times it would just come on from nowhere to remind me who was boss. I never had the "sharp, electric" jolts of pain normally described with TN.
I saw a dental specialist who told me to see my general Dr. He felt right away it was TN. This all happened two weeks ago (after having the pain for the previous 3 weeks). He prescribed Carbamazepine (generic Tegretol). 200 MG twice a day.
This helped A LOT. The side effects for me are a tingly/numbness in my lips and tongue, and I would get tired earlier at night.
My next step was to see a specialist. I went to Springfield Mass. and met with a very highly regarded, excellent Neurosurgeon named Dr Kalia. He looked at my MRI and explained that I didn't have MS, or a tumor, and that my unusual symptoms weren't that much of a surprize.
He recommended that I stay on the med for a couple of weeks, and then experiment with weaning myself off to see if the condition has subsided.
Just last night I skipped my PM dose, and though I was afraid to eat this morning, I had no pain.
I'm afraid that based on the progressive nature of this condition there will be a time that I will need to full dose again (and possibly more), but for now in my case I am moving forward this way.
I am so very sympathetic to anyone suffering with this. It comes on so unexpectedly, and is truly awful. It is such a life changer. In my case I think that if I could somehow maintain where I am now, I would be so happy, but I am not optimistic of that.
My advice to you is to see your doctor asap, and to stress the suggestion that this is likely Tn. The med I'm on began working after a day or two. It helped me a lot. Before that I wanted to just give up.
God bless.
Nascar1 ray91776
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christina96841 ray91776
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Valkyrie christina96841
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Valkyrie christina96841
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christina96841 Valkyrie
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ray91776, my pain seems very much like yours. Constant pain, occasional pins and needles down my right arm and leg. Deep rooted pain in my ear.
If anyone has had any good results with this medication I would like to know. What dose have you been on?
Thanks
Valkyrie christina96841
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christina96841 Valkyrie
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eddie13 Valkyrie
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Eddie13
Me26166 christina96841
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Alhough this post is over a year ago I want to know if you could help or anyone else. Ive jusy been diafnosed with TN and my symtoms sound just like yours. The docs didnt hink it was TN at first but i jad a general mri (without dye) and dodnt shoe anything. My neuroloist said he thinks its cluster headaches but 6 no ths on i find myself in An E (No let up from the pain in between this time) with the Docs at the hospital saying its TN. I have demanded my Go refer me to a pain clinic and im due for a review wirh my neurologist at the end of the month but i feel so hopeless. im on meds that are taking the edge off but this cannot be a long term measure for me. Can i ask what did you end up doing as a relief measure and did it work? And what are yu elegible for if the MRI shows nothing but tou still have pain?! Im concerned that the docs may limit my options if they see nothing on mris?! I cannot live this way