please help me !!!

Mums was meant to say myn*

Read your post to the other person

Is wound still closed? Do u think that's the answer going abroad for surgery.. Myns broke open and won't bloody close again.. Sick to death

My wound has been closed for a year now. Surgery works but the VAC machine and being really clean is important.

Hello!

I havent bien diagnosed with this. Thanks for telling me this inforamation. I hope it heals and stops Causing you pain. Get tested for crohns disease and I would reccomend you chance your doctor. Mine saved my life.

Myn keeps opening too mate

I sort of know how u feel but uve had it so long God knows how u feel

I got first op in jan this year, stitches, they don't won't so got cut back open in March to leave open and packed it closed about 7 weeks ago then opened slightly again 3 weeks ago and won't close and been infected 3 weeks

Devastated mate and starting to feel depressed now

9th month on the sick.. There doesn't seem to be any one who knows how to heal these does they..

What differently have they done in this surgery to the last one Gill

Just I've been cut and stitched and cut and packed off district nurses and there now trying to tell me reason I can't shake of this infection what I've had for 5 weeks is cos there's another one under me scar/wound

There a bloody joke lol

I feel so sorry for myself and your son and everyone else with this problem

Our nhs is a joke Isn't it

I think the prob is that it's a really specialised prob and the nhs are not expert enough. The first op they did they left my son's wound open to 5cms deep. It was 6cm wide and 10 cm long. It never completely healed though and infection kept building up. This went on with loads of antibiotics for abt 4 years and then last Nov he had a different op which involved making a different cut and moving the opening to higher up. But they stitched it up and the infection never went but got so much worse. The latest op, the surgeon removed same amount as first op, but said it would only heal if the hole was stitched up to 1cm deep but still long and wide . Otherwise too much opportunity to get re infected. Surgeon said it has to be cleaned and scrubbed out with cotton buds each day. Then packed with silver based dressing and also use Metronidazole cream. So I've been doing that for him. It's really different this time and we've got everything crossed. The surgeon said he's never not been able to cure one, and altho my son's is complex and severe he's confident it will work. The difference in 5wks is incredible.

Well tell your son I hope to god it works cos I've had a year of this and I'm ruined mental wise lol

Been a nightmare using loo etc am sure he knows.. I hope it works

Fingers crossed for you's

Let me know when it's fully healed please if u don't mind

Certainly will. My son's been very down as well, it ruins your life. I started writing on this to give us both some hope.its definitely helped. And yes going to the loo has been an absolute nightmare. Good luck

Good luck to Yous too Gill

I have just had the reply from my hospitals investigation into my complaint as I want to know why it can cause this much trouble and why they can't give me an answer to why mine doesnt heal.  The answer was laughable as they said " It is a difficult condition to treat. "  What a load of rubbish.

I had another operation in August and they stitched it up without listening to me that it would break down.  It broke down within 2 weeks and now I am having it packed daily, and I went to my GP this week and it is on my notes that when it is healed they want to lay it open again!

I had it first in 1999, again in 2005 and since 2007 it has been open and had a further 16 operations on.  Im not sure why the NHS can't help me more than they have as nobody really understands the impact it can have unless they have had it with probems. 

Good luck to everyone. 

 

Shocking mate isn't it

Myns practicly closed and they saying the reason my won't fully and I still have infection is cos there is another one underneath.. I was cut 4 cms deep so I duno how they couldn't av got it all

Y do they want to lay u back open once healed ?

The surgeon I've been talking about has cured people that have had 20 + ops. It's worth a try but he only works privately. It's been money well spent so far. He's an expert and has so much experience

What type of things does the tissue viability nurse do Gill

I have a appointment in two weeks

Going private isn't an option for me. I can't afford it and could never get the credit to pay for it.

I haven't got a clue.  When it comes to my treatment I seem to be the last person to know. I had ALL the skin removed in the area, right down to the muscle and that didnt help either, not sure how deep it was but there wasn't any skin as the dressing got stuck to the muscle.

I understand it's not an option for everyone. We used credit but my son said it's unfair, what about those who can't do that. If u Google the surgeon then he does have nhs colleagues. Maybe worth a begging email?!

The VTN didn't do anything for me, I waited in hospital for nearly 4 days to see them and when they turned up they spent 30 seconds looking to say, " pack it and see what happens. ".

I think the NHS has blacklisted my email after all my complaints. lol.

 

We did look into this once, but never got an appointment. Hope it's positive for you!

 

There suppose to be wound specialist aren't they so am hoping they know how to fix my hole in wound.. 95% of the wound is closed apart from a little hole..

Shame they don't have a magic wand for all of us

I had surgery for the drainage of a perianal abscess. It was a large abscess which was extremely painful. I was admitted to hospital as an emergency and had surgery to drain the abscess. The wound was left open to heal and I have been attending the hospital on a daily basis to have the wound packed and the dressing changed.

After 4 weeks  the nurse packing my wound told me although it is almost healed on the outside, there is still a 2cm depth inside the wound and that the outside is healing faster than the inside. She said if the wound closes too early I will be left with a pocket which could cause the abscess to re-occur.

She called a consultant who examined my wound (ouch) and he said I have to come in for further surgery under anaesthetic to open the wound up as the opening was too small, so packing can be inserted and also to examine the wound to check for 'tracking'. 

That was on Friday and I was booked in on the Monday, I had the procedure done and the original incision was like a cross shape measuring 1.2cm by 2cm, it is now 2cm by 3cm! Hurts more than last time... More packing going in and the depth is now 1cm more! Bled quite heavy afterwards!

Is this the usual incision shape for drainage it's like a ''+'' shape incision.

The are using aquacel to pack it, is it ok to leave the packing in overnight - if i do it has a funny smell to it on removel. Urgh! is this ok as when I had the surgery on Monday they used alginate rope to pack it.

SOre at mo - 

I had surgery for the drainage of a perianal abscess. It was a large abscess which was extremely painful. I was admitted to hospital as an emergency and had surgery to drain the abscess. The wound was left open to heal and I have been attending the hospital on a daily basis to have the wound packed and the dressing changed.

After 4 weeks  the nurse packing my wound told me although it is almost healed on the outside, there is still a 2cm depth inside the wound and that the outside is healing faster than the inside. She said if the wound closes too early I will be left with a pocket which could cause the abscess to re-occur.

She called a consultant who examined my wound (ouch) and he said I have to come in for further surgery under anaesthetic to open the wound up as the opening was too small, so packing can be inserted and also to examine the wound to check for 'tracking'. 

That was on Friday and I was booked in on the Monday, I had the procedure done and the original incision was like a cross shape measuring 1.2cm by 2cm, it is now 2cm by 3cm! Hurts more than last time... More packing going in and the depth is now 1cm more! Bled quite heavy afterwards!

Is this the usual incision shape for drainage it's like a ''+'' shape incision.

The are using aquacel to pack it, is it ok to leave the packing in overnight - if i do it has a funny smell to it on removel. Urgh! is this ok as when I had the surgery on Monday they used alginate rope to pack it.

SOre at mo - 

Myn is a line cut from bottom of back going down bum area to about a inch away from bottom

Myn isn't a +

When I first got cut I was 12cm long 3cm wide 4cm deep lol

Butchered I was

awws, poor you.

am worried how all the edges of the ''+'' will join up. They were but now they cut again to open wound for drainage.