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PMR/copd

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patricia13638
patricia13638

Hi has any one else been diagnosed with pmr who also has copd 

I have very recently been to see the Rheumy and having tests for pmr . i also have copd and on occasion have to take steriods for short periods for infection (its how I discovered pmr when after taking steroids for copd most of my pain subsided for a short time) will this new diagnosis conflict with the copd, trying to get ahead of my self here and understand what is happening to me , may have had undiagnosed pmr for about 4 years now. 

I find all of this so confusing HELP.

Thanks in advance

0 likes, 7 replies

7 Replies

  • diane_e02657
    diane_e02657 patricia13638

    Posted

    If you have had PMR for 4 years you are very lucky to have been on steroids or you may have ended up with GCA which is really horrible... Hope you are doing ok
  • diane_e02657
    diane_e02657 patricia13638

    Posted

    You say you are taking steroids for the COPD right... for how long? Is your Dr going to continue the steroids since he diagnosed you with PMR? I hope he does it can get very nasty if not treated... well it's nasty anyway but can lead to much worse things like GCA if not treated.
    • patricia13638
      patricia13638 diane_e02657

      Posted

      Hi, I only need to take steriods for copd if I have infection which has happened twice in 12 months, i found when I was taking steriods that all the pain I have had for about 4 years went away so i saw my GP who sent me to consultant who thinks I may have PMR, so waiting the result of tests .
    • patricia13638
      patricia13638 diane_e02657

      Posted

      Meant to say I was on steriods for only a week each time ,very short period, eight a day for a week.
  • diane_e02657
    diane_e02657 patricia13638

    Posted

    YYou are very lucky if you do have PMR and have gone 4 years with no meds... BTW the tests they run for PMR are inconclusive usually and you can have good tests results and still have PMR... usually if the steroids help then they "say" you have it. It usually runs a course from 1-5 years so I am told. I have had it since Feb with unbelievable pain at the onset  I am trying to taper the nasty steroids to 7 mg a day this week... it's a rough road and I hope you don't have it. Facebook has a great blob called Polymyalgia Rheumatica you might enjoy reading the info there and they are a great support group.
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