Pressure in head!!!!!!!

Thanks for your reply. iT'D BE GOOD TO TALK SOME MORE. i am taking Amitrptiline now, 20mg a day, started at 10mg. It hasn't taken them away but i can honestly say it makes them the tiniest bit kore bearable but still very much there!!!! The lumbar puncture? i'D LIKE TO KNOW MORE ABOUT THIS.....please can we talk some more some way?

I started on 10mg and now on 25mg, they take a while to work but they did make a difference for a while.

the lumbar puncture was to check my fluid oppening pressure in my spine, just something to rule everything out. 

Do see information on cervicogenic. I've been treated for three years, but without improvement. In fact, I'm getting worse. Still I know what's going on with the neck, head, ears, jaws and extreme dizziness. Oh, and there's fatigue that is disabling some days--and black thoughts, all described online. We're not crazy.

Pain resolves within 3 months after successful treatment of the causative disorder or lesion, (in neck) most cases, according to most information on cervicogenic headaches. So if you've been treating it for 3 year's and it's getting worse it is highly likely that's not what you're suffering from.

Hey Betty that's exactly what's happening to me its like air going into your head a little squeezing sound and I do get pressure on my teethteethmy eyes turn abit red I get pins and needles on my back every time wen I bend over to get something and it makes the pressure worse and its like someone filled my ears up I get pulsing in my ears I thought was had a blood clot or bleeding in my head but wen I went for a CT scan nothing was wrong I think its time for doctors to do some test and research on whats causing this I really need someone to talk to I feel so alone cos of this :'(

Most probably your your neurologist will find nothing and you will end up with diagnose of Anxiety. I had everything you mentioned before.Anxiety do causes the symptoms you wrote here.You may have also swelling from sinuses as well.İ suggest you to search for anxiety. İf clonopin works on you it will be kind of a proof for anxiety.But anxiety is actualy symptoms of other disbalance of hormons and some sensitive chemicals in the brain.Gaba receptors are highly relative because medications that highers the Gaba eleminates the symptoms temporayly.I hope you get better Sam

Thank you, I have been told I have anxiety and I've been diagnosed with fibromyalgia, I just hate it when I get all these horrible feelings in my head, it's not even that painful, its just tingly heavy head feeling.

You sound like you are the same as me. Look up sphenoid sinusitis.

At last someone who is describing the symptoms I hv been having for over a month now , I get swelling below my ears sometimes. I am studying for exams at the moment and it feels worse !!

Hi, my name is Jane, I just started reading all of your story's and it felt like I wasn't alone. I have been dizzy for 2 years and feel so drunk, I have pain at the back of my head as well, takes me ages to sleep. I finally had X Ray's today to check my neck so find out next week.

I hope they help me one day, this is hard😞

I have got forgetfulness and pain.   No pain killer is touching it

I have the same thing pressure in the back of my head , i see a neurologist the 12th , i have post concussion so we'll see

I hope this thread is still active. I'm 26 and have started to feel much of the same symptoms. When I lay down some times, I feel a lot of pressure in my head from back bottom of skull up to behind my eyes and face. Sitting upright takes it away. I've had a range of terrible migraines, muscle tension/tightness that turned into swelling, sinus pressure or what feels like it, off and on now for over a week. No fever but I've thrown up in my mouth twice since it all and today I felt like I was going to throw up. I've been diagnosed with GAD for 6 years but has gotten worse over the last month since I had a traumatic experience that heightened everything. Went to Dr they said it was tension headache. I saw a chiropractor and since it helped with the pain but I have pressure all day in my neck where it feels heavy. Sometimes my eyes feel hot. My migraines made my head feel like it's on fire. Over the counter meds didn't work and Dr gave me a shot of toridol after 4 days and only relieved a little pain but not the pressure. I've been extremely worried. My next step is mri or cat scan. I had one a couple years ago that proved I had acute sinusitis but never have I ever felt this badly. Plus I've had a lot of lower jaw pain/tightness/weakness. Thx in advance!

Do you have an infection from your sinus? I had a bad infection and with antibotixs the pressure was gone

I'm going to find out. I have an apt for Tuesday but it's been over a week so I'm here at urgent care to get answers, crossing my fingers. I'm just always afraid that it's much worse like meningitis or brain tumor but only thing I haven't had is a fever

I had a CT svan when i went to thw ER and it was a bad case of a sinus infection was in two antibiotic and a steroid. The pressure was so bad it went from my nose to eat to my head. The worest feeling ever

Did it cause u any vision problems?

Did it come and go? Did you have any congestion? I don't have normal allergies like active right now. Just a ton of head pressure off and on but when it's there I can't lay down or put pressure on any parts of my head. I've had days I can't even wear sunglasses because them laying on my nose hurt

I didn't even known I had a sinus infection, no drainage just major pressure all over, it took everything in me to go to work, it effected my everyday life. I went to the ER five times and to my regular NP at least 3. I also have diabeties and HBP so I was limited on what I could take.

Nah, I wear glasses anyways. But the pressure behind the eyes was bad

Pressure only? I wonder what that feels like. I have pain behind the eye sometimes. But I definately see funny

When was the last time you had your eyes checked? Are you a diabetic to you have high blood pressure?

Yep, just got my eyes checked by opthalmologist and everything is normal . I am not high blood pressure or diabetic

Have you had a CT scan? Oh and I found out that my pillows the way I was sleeping can cause pressure due to the way I was laying. For me it was process of emlimination. Sonud, pillows, stopped using artificial sweetner, cut back on coffee, drink 8 glasses of water now. Little to no fried food, alot and I mean alot of fruit and veggie. Started taking multi vitamin and probiotics

Ct scan and mri shows nothing abnormal. Just like you, I usually drink quite a bit of water daily anyways (2 litres or more), eat alot of fruit/veges and take vitamins and supplements. Quit coffee since the onset of these symtoms. But what I haven't done is taking probiotics.

I went and bought some yesterday, so looks like I'll be Starting today

Do you recall what they gave you for your allergies or sinus

See I thought mine was started from sleeping on the couch with a crappy pillow but then questioned the celexa I was taking but was only on it for 1 day before it started. I went to urgent care he just gave me a shot of toridol again prescribed some muscle relaxers and sinus meds. It's been over a week and I still have the tightness in my neck pressure in the head and neck sometimes I feel hot to the touch but they said I didn't have a fever

Hello Tamara this dreaded pressure happened to me after I'd touched a tablet I hadn't taken for a while but symptoms came on a week later probably all not related however they came.on 2 hours or so after a large meal.

I've been like this now for 6 months! It's complete hell your certainly not alone your symptoms sound very similar to mine. I wouldn't wish this on my worst enemy it's that bad.

There has to be a reason and a cure. Never had it before. And it's exhausting. It comes and goes. No one has done an mri or a CT scan but they're ruling out anything serious when I do go. And def the more I think about it the worse I feel.

Are u hot on both sides if the body or just one?

Me, I didn't take any pills to get me here

My forehead gets warm but from my head to my neck feels hot when the pressure is in full effect

Cpak it worked amazingly

I have talked to everyone from ER doctors to NP to my holistic friends and they all day we have to clean out bodies of the meds we take. I hope that what I have went through helps you. The only thing is my sinus keeps acting up alot of drainage but it is what it is

Mines a bit diff I think, I get hot at the back of my neck and my upper back.

I am having some tension on my forehead as I type this, but I am very calm and not stressed althought really sleepy

I agree with cleaning the body of meds. i'm going through a candidate cleanse and just started today. So let's see how that helps to detox me. Or at least my gut

Your brain MRI will be normal. Mine was but they never bothered to scan my neck and most doctors seem so hard to push I've just lost my patience with all of the gps at my practise useless.

Instead now i take and listen to ideas off here and the email group set up by shaun and mainly just get on with my life best I can!

My anxiety has calmed down now but the pressure starts when I am fully conscious or move from my bed when I wake up lol

I find it funny when people say to me you only live once I think yes once is enough for me haha

Yeah, some days I rather not be here

Hello there I can't give good advice but I've been really good in terms of not taking tablets and drinking and It makes absolutely no difference what so ever.

I've had moments where it's been manageable to a point I can sort of function. If I take tablets that give me euphoria I kind of forget my symptoms, such as valium tramadol or other tablets with opium, but there only ever a one off and an experiment for now anyway lol feel your pain

Hi! I've been following this thread. I have almost identical symptoms as you. I had CT, MRI, an MRA of head and neck, and three panels of blood work... All came back clear. Were you able to get any answers? I hope you are feeling better. I'm desperate for relief.

I don't want to jinx myself, but these last two days have been soooo much better. I've been for 5 days on a nasal spray and antibiotic for acute sinusitis. I would advise anyone to do the same and see if you get relief. I'm starting to feel like myself so I hope and pray I found a solution to my problem. Ears still feel full of pressure and pop often but more in the evening. I hope this helped!!

Oh I'm so glad to hear that! I pray the relief continues for you!! You mentioned you did NOT have congestion (stuffed up nose etc) right?

No congestion no cold or flu symptoms just tons and tons of pressure all over

Was the pressure more in the forehead? Did you also have buzzing in ears and did you feel out of it at times with the forehead pressure? Also what modalities of treatment did you go through? Were you diagnosed with anything?

Years ago I had a CT scan done and ithe revealed acute sinusitis. When I went to the doctor about 4 times and was told it was just tension headaches. Finally another dr treated me for sinus infection because I started with headaches and stiff neck then got a lot of sinus pressure as well as popping ears. The pressure has been from bottom of my head to around my nose and forehead. Dr gave me amoxicillin and Flonase been on them for 5 days

Glad you finding some relief, I hope you get totally better. The symptoms of sphenoid sinus conditions are totally different from the other sinuses. Main symptoms being pressure that can be felt deep behind the nose, or on head, also stiff neck, and dizziness.

I have all these and believe it's because I have a blocked sphenoid ostia. This shows up on my scan but specialists still say my scan is normal. I believe that there is a condition that causes thick mucus to clog the Ostia and prevent natural drainage. If the blockage is successfully removed then all symptoms will vanish. I've had this condition for a year and a half. I think in your case it's more than likely you've had something called Isolated Sphenoid sinusitus. This is where the sinuses are inflamed and cause pressure as mucus can't drain. Once the infection is sorted you will be fine.

I have been adding the juice of 2 limes to my nasal rinse. This definitely helps after use. It stings a bit but I've got used to it. After having a hot shower and using the nasal rinse I actually feel fine. An hour or so later it slowly comes back. This to me proves the problem lies at the sphenoid sinus cavity. I want an ENT to operate and do balloon sinuplasty but then go in with a camera and look to remove the blockage for good. I'm from England and they won't do this on the NHS as the surgeon said it might not work. I'm going to end off paying £4500 to get it done.

What is your nasal rinse what do you do its worth a go see what happens cheers

Sinus rinse is NeilMed. You get sachets of salt solution to go with the nasal rinse. It's basically a plastic bottle with screw on top with a hole.

I make up the solution then squeeze 2 limes and add the juice. I then squirt up one nostril until it comes out the other nostril and then do the other side. Do 3 times per day. It's doing something, in my case probably breaking up the blockage. When I blow my nose there are little red specs of hard something. Sort of looks like bits that come off a scab after a few days. e.g if you graze you knee and it becomes sore then scabs over. How a scab got deep inside my sphenoid sinus I don't know.

Did you ever find out what was wrong?? I'm having the same problem and it scares me..

This is my update:

Spent 20 days with severe headache, sinus pressure, stiff neck, head pressure galore. Every single day. Some where less severe some were more. After 3 different Dr's I was treated with amoxicillin and nasal spray for 10 days. It was gone for about 2 weeks. Now I'm noticing symptoms coming back including popping of the ears, and mild head and sinus pressure. Especially around my nose. I can't weargue sun glasses for longer then 2 minutes because the pressure is bothersome. So I'm taking another 10 days of antibiotics. I want it gone. But now I'm starting to think it could be something else?

It does sound like you have a sphenoid sinus issue. The cavity is deep inside your head and it's hard for drugs to get there. As your symptoms improved but then got worse again it's likely that the infection didn't totally clear so has come back. See how you go with these meds, they might work this time. If not you need to push for a CT scan.

Hey Tamara, please let us know your progress in the next few days. Your head pressure description sounds exactly like mine, including how sunglasses bother your nose. I have had the head pressure since June 5 and have had barely any relief. Waiting on an MRI now

They gave me a CPAK, steroids, and pain meds. Here is my thing, dont give me all these meds to take then say oh by the way the side effects are worse then the issue you are having now. I took the CPAK, and started to clean my body of all the toxins. I drink water all day 8+ glasses, eat only organic fruit and veggies.  But my sinus problems are coming back, I feel head pressure, pain in nose and eyes, it gets worse with stress. And I also think it is my enviroment, i am in my office now and it is 82 degrees in here, been this way all summer and that doesnt help me at all.   I pray you get the answers yyou need

Hi I've had same situation for 11 weeks... Just started Meloxicam (15mg daily) an anti-inflammatory, and has helped tremendously. It took about a week to start noticing improvement. I really hope you feel better.

Can they also find out if your suffering from sphenoid sinus by looking through with a camera ? I've Been to the ENT Twice this year and had this done twice with everything looking good .

No you can't see sphenoid sinus problems by looking into your nostril with a camera. This is done whilst you are awake. They can go in with a camera and look but this would be done when you are knocked out.

I'm going private to have this done as I no that's what is causing me my problems. A CT scan is the best way of finding out. I had one and you can see the blockage in my left ostia but surgeon wouldn't operate as he said it might not work and would be a waste of NHS resources. That's when I decided to just go for it and pay someone.

What I want doing is balloon sinuplasty followed by a camera to see if the blockage has been removed and check the health of the inside of my sphenoid cavity.

OK thanks man I've already had a MRI taken and my neruo doc. Says everything looked normal so I will most def. Talk to my Ent doc. About getting a ct scan when I go to get a allergy test .

Hi Sam. I get these same symptoms also. After a CT scan it is assumed I have Idiopathic intercranial hypertension, im awaiting an MRI for further investigation. I really hope its not! Hows things with you now?

Hi Sam,

I have the exact same symptoms as you.

I was first told I had eustachain ear dysfunction, then I was given anti biotics for a sinus infection but I still have the constant dull pressure pain in my neck and the bottom of my head. It causes nausea, dizziness, numbness to jaw and face and I'm worried it's something serious

I have a chiropractor appointment on Thursday so I'm hoping she can relieve some pain and help me feel better and I've got a doctor appointment on Friday and I'm going to ask if I can get a CT/MRI scan done just to rule out anything going on inside my head. I'm also going to book an optician appointment to see if it's anything to do with my eyes??

Did you get any results or advice from anyone about your symptoms?

I get terrible tension, pressure pain behind my ears so much so that it makes me feel sick

I was prescribed Doxycycline for my sinus infection, I don't seem any better so it's back to the doctor Friday!!!

Hi Laura, I am seeing a neurologist, he tells me since I've had it for so long it's not going to kill me, I find that hard to believe because it's so bad. It does seem to get worse at time but then it will get better. The doc says my symptoms are because if my back being so messed up, I'm having symptoms similar to a cerebral fluid leak, but it's strange because I'm not having these symptoms every day, it's once a week. After these MRIs they will do a spinal tap. My blood work was all good. So you were saying yur having these symptoms everyday? I couldn't deal with that

Yes I've had these symptoms everyday for about 3-4 weeks, I was on holiday for 3 weeks and I didn't suffer once, I think that was mainly due to not having any stress and that I had things to look forward too. As soon as I came back it started up again, so I'm putting it down to strsss, anxiety, bad posture (as I sit at a desk everyday for a job), seeing my chiropractor on Thursday so hoping she'll have some answers. I have had scoliosis since I was 13 so I've always had trouble with my back but never my neck/back of head. My first thought was brain tumour so hopefully I'll get an MRI scan to rule that out

Sam,

I have exactly the same symptoms as you.

Did you see your doctor to find out what is is?

I'm seeing my doctor on Friday as can't bare the pain any longer and I'm going to ask to get an MRI done

Jane, I have been dizzy for 2 years and feel half drunk and my balance is off and feel as if my head is going to almost explode from the pressure and pulsing when my heart beats but no head ache. All the best hope you get a good result from the XRay`s. My doctor seems puzzled so far. I have not had an MRI or XRay.

 

I have had this pressure on and off for a long time, today i feel as if the back of my head is going to burst, i also have tinnitus and palpitations.  Are we all one of a kind, maybe we have anxiety and tension, nobody seems to understand us and why this happens.  I read that a lot goes on in our subconcious mind that we cannot control, there doesn,t seem to be much help for this.

 

Hi Sam, i have the same symptoms as you.. The pressure on the back of my head and the neck is definitely unconfortable. I feel the pressure from the neck then it goes up to the head, the only time i feel better is when am sitting down closing my eyes but as soon as i get up i feel like am about to fall down. How you feeling now? Hope everything worked out. Am hopping it's not anything serious, am seeing my doctor next week

Did you find out what's wrong?

Hi ann try going to holland barratt take vitamin D3000 spray b12 oral spray fish oils for a few weeks see how you get on i have just started this the pressure as eased off still have static sounds hoping that might go in time

Hi are you still suffering or are you better now?

Hi Sam, every symptoms you mention is what iam experience now for almost 3months, did you diagnose yet?

Hi Farrah, did you finally get your sinus/pressure problem fixed?

I was suffering from the same problem. Went to a neurologist and he gave me some anti anxiety pills. Pills calmed my head down. Once I stopped taking the medicines, heaviness came back along with insomnia. After one month, I went back on the pills. I have already stopped taking the 2 out of three pills but the symptoms returned when I tapered off the last tablet. Life has been a hell since the day I started feeling heaviness in my head.

Hi Rish can you tell me what the name of the abit anxiety pills that you took that calmed you down?

Escitalopram(10mg), Klonopin(0.5mg) and Mirtazapine(7.5mg). When I took these pills I got my life back but I had no idea about the withdrawal symptoms of these pills. When I stopped taking these pills I became the patient of insomnia and depression. SO be careful before taking these pills.

Hey, can i ask you a question? how this sickness start?

Hi scottio

I know this is a old ,

If you do get this message please help

Iam haveing the same issue as you are or have been

Just need advice and help

Have you found out what this could be and any treatments you have had this has ?

Iam in so

Much pain and cant find answers ?

Please help

Hi tamara iam

Haveing the same symptoms as you have discribed

I need help any advice treatment what this could be ?

Hope you are feeling better now

Did you ever figure out what this was?  I've had the same symptoms as you for months, been to cardiologist, neurologist (MRI), ENT with no luck. 

Omg me to same symptoms and I didt get it till I was pregnant iam. Now almost 5 months n its Been my eye.. My head pressure.. Neck and popping of the ear.. But it stays More on my right side..n My nose is stuffy.. Shew they told me it was sinuses n tension headaches and I can't get a Mri cause Iam pregnant right now.. But they don't think its nuttin bad at all!

Hello, I know it has been a couple of years, but did you ever find out what was wrong?  I have been having head pressure for about 7 weeks.  I have an MRI, CT Scan a LP and they said there were all normal.  Any advice on what to do.

Therese

What issues did you have with your sphenoid sinuses

Did you ever find out what was wrong

I got sinusitis too and taking velosef. Its been 4 days but still my head feels numb at times

This is the answer.

What people oh here are suffering from is either a CSF leak or Intracranial hypertension. Both are spinal conditions which affect the brain. Symptoms include; headaches, pressure, eye pain, ear issues eg tinnitus, muscular pain such as neck, shoulder and back pain. A CSF leak is where there is a leak in the spine, this means there isn’t enough fluid to surround the brain. Intracranial hypertension is where your body produces to much CSF fluid so the pressure builds inside your head. This can often cause a cranial CSF leak because of the pressure.

CT and MRI scans often don’t show this. Lumbar punctures test for opening pressure which can help diagnose it but often as the pressure fluctuates the readings can be deemed normal, even if they are on the high side.

I’ve had this condition for 3.5 years now and only recently been diagnosed after 5 scans were deemed normal. There is a drug called Diamox that you can take, it reduces the bodies ability to make CSF fluid, if you take it and the symptoms reduce then you know you have it. It’s what indicated I had it through trial and error, also seeing a neurologist that specialises in this condition. A CSF leak can be fixed by a blood patch, Intracranial hypertension cannot be fixed but you can get a shunt fitted that drains excess fluid from your brain into your stomach which when done correct will enable you to live a pain free life. This is what I will have done in the future. Pass this info on as many on this site are suffering with it. 

I sure hope you are ok now but you have a CSF leak in your spine. Fix that and your problem will go.

Hi laura48798,

I know it has been 2 years ago but I would like to know if your ailments has been resolved and how. It's just 3 weeks ako, out of the blue I get this pain at the base of the back of my head along with the neck which makes me dizzy and fatigued all day everyday with no relief. I also have this constant dull ache/pressue at the back of my head/neck which does not go away. Blood test and CT scans were all good. I can still function at work but I am dizzy and lighheated and somehow its affection my short term memory and also makes me fatigue.

 

I had to sign up just to send you a reply.

Here is my nightmare.

April 9, 2009 I had an epidural for the birth of my 2nd son,the resident anesthesiologist tried 3 different times to give me my epidural, the final  needle punctured my dura and the medicine went into my back causing immediate numbness from neck downward. Dr told me I may suffer from a bad headache. They decided to keep the catheter in my back to try and create a clot. I was discharged from the hospital on April 10 2009. Approximately 1-2 weeks later, I went back to my obstetrician and told her I was still having really bad headaches, I believe a blood patch should have been performed but they refused- told me it was impossible that it was still leaking.

 NOTHING could prepare me for what I’ve been dealing with the last 9.5 years!!!

I suffered from debilitating headaches for one year,  especially after going to the gym, I was vomiting daily from the headaches,the only way the pain would stop was if I lied flat on my back, the second I sat up, the headache was SEVERE.  I noticed while going to the gym that when laying flat on my back and trying to raise my legs up (lower abdominal crunch) I would get a sharp shooting pain in my back where my epidural site was. I still this this day experience this when trying this exercise.

I couldn’t take care of my family.  Thankfully after almost one year exactly those debilitating headaches stopped...... but I developed a very different type of headache/chronic pain, these headaches have been almost a daily occurance, they last for only about 30 seconds, they happen with changes in my posture. From sitting to standing, laying to standing, driving is the worst position for me. The pain is excruciating pressure and a severe pulling sensation that starts in my eyes and wraps around my skull down my back to where my epidural was. These artacks over the last few years are getting worse, the pain now radiates down my right leg and often the pain drops me to my knees.

When having these ‘attacks’ I can hear this loud wooshing sound, my ears are extremely muffled, my eyes feel like they are pulsating and I’m just in severe pain for about 30 seconds.

I’ve had MRI, MRI with contrast, CT scans,  everything keeps coming up negative, they diagnosed me with Fibromyalgia.... which I 100% without a doubt DO NOT HAVE.

Dr just keeps giving me more pharmaceuticals and nothing is helping. The pain is so severe it feels like I have a rupture brain aneurism and my skull is going to burst open from pressure.

I’ve done a lot of research, 9.5 years to be exact. What I believe has happened to me is this: my dura was punctured which is obviously what caused those debilitating headaches for a year afterwards child birth, because my dura was punctured my body created scar tissue in that sensitive area of the spine, this causes flow issues with my spinal fluid. I believe I may have a rare disease called Arachnoiditis and possibly combined with hydrocephalus. This is a very rare and serious complication from an epidural which punctured the dura.

I’ve not gone to the doctor about my pain the last few years as they made it seem all in my head. That it’s the fibromyalgia. I’ve seen multiple people and none believe I have fibromyalgia I don’t have pain like that, it’s so different.  

Prior to this incident I was in perfect health, never suffered from pain, never even had a headache before.

 I have a dr appt on Tues Oct 9 2018, and I’m demanding to see a neurologist so I can tell them my story and send me for the tests that need to be done.  I’m so frustrated with the medical system (I’m in canada). I feel like the doctors have been trying to cover up this whole accident. The first time the anesthesiologist missed he should have called the doctor in, even the nurse kept asking him if everything was ok. When he puncture me I felt this electrifying shock along my entire right side of stomach, I knew something was wrong, my husband thought I was dying that day.... that is my nightmare!!

How did you finally get someone to listen to you? What tests did they do that finally showed sometime??

I’ve started trying to keep track of all of my side affects as I believe they are all related to my spinal injury!

Symptoms I’ve been experiencing 

Arachnoiditis/ hydrocephalus?

Severe pulling sensation upon standing

Severe hip pain right side 

Pain radiates down legs

Throbbing in ears

Eyes pulsating

Nerve/electric pain right side 

Wooshing sound in head

General foggy feeling all the time... out of sort

Bladder incontinence 

Constipation

Neck pain

Pressure in jaw/face

Restless legs

Muscle twitching 

Depression

Severe brain fog/forgetfulness 

Severe fatigue

Can’t walk for long periods- severe back/hip pain

Flat on back- lifting legs cause pain

Most recent

Face pain

Pain in legs so bad I can’t stand

The hip/back pain is recent (1yeR)

Headaches waking me up

Sleep problems

Hi janeapril have you found the cause or anything that helps with your symptoms ? Were you taking any antibiotics around the time you started having symptoms ?

Hi, I have a lot of knowledge about this condition. You probably still have a CSF leak from your punctured dura. Over the years this leak may have partially sealed and now be intermittent. The body overproduces CSF fluid when leaking so when people heal they often get rebound high pressure. It does sound like this is happening to you. Get into see the neurologist, I would suggest a blood patch over the area of the epidural, this woukd hopefully ensure the leak was sealed. You then need to be prescribed a drug called diamox. This drug lowers the production of CSF fluid. Over time your body should adapt and go back to normal. The reason people get headaches is because the CSF fluid runs from within the spine to surround and cushion the brain. GOOD LUCK.

I'm going through all the same exact stuff for the last couple months now drs still cant figure it out and try basing mine in anxiety but we all know it's not anxiety we just cant figure it out or why it even all started we just want it to stop... mine at times get so bad it mimics stroke symptoms which r sooo scary

Hi Mel I don't know if you'll ever see this but I've had an epidural steroid injection in my back.... Few months later all this started, I have so many similar symptoms to you! I feel like I'm going crazy! Please if you ever see this can you reply to me thanks

Hi Theresa,

Did you ever get a definitive answer?

i have a recent post under "pressure headaches"

Same story as many people on here yours sounds familiar. would appreciate any insight

dave

Hi Tamara,

You posted a while back i realize but did you ever get it resolved?

I posted recently under "pressure headaches"

Would really appreciate any insight you might provide

Dave

hi mate started the pressure in my head feeling pain and also a buzzing sound in my head around a month ago i tried all sorts the only thing that gave me relief is vitamin d3 20,000iu

Hi,

i have also been experiencing the same symptoms as tamara89! what are/were your symptoms like and did they ever resolve?

i am experiencing the same symptoms. I constantly feel like my head is going to explode. Have your symptoms subsided or did you ever end up getting an mri? also what did you do to make them go away?

what all are your symptoms like?