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Radiotherapy and chronic pancreatitis

Posted , 4 users are following.

sue99322
sue99322

Have just been confirmed with cp having had over twelve months of tests.  Previousy diagnosed with gall stones and diabetes type 2.  Is this the usual pattern for diagnosis?   How much advice is there available on how to look after my health.  At present I feel as if I have been cast adrift and left to manage on my own.

0 likes, 7 replies

7 Replies

  • Babalishous
    Babalishous sue99322

    Posted

    Hi there, are you on Facebook? If so type into the search bar pancreatitis pals, it's a support group for people who suffer with pancreas problems, it's very friendly and people give you loads of advice.

    Hope it helps xx

    I'm a member... I suspect I have pancreas problems I have had a year of tests and scans and nothing found.... Although they did have a 2nd look at my mri and say it did look plump but still said it was normal... I live with pain everyday and have been really welcomed to the support group even though I have no final diagnosis.

    • sue99322
      sue99322 Babalishous

      Posted

      Thanks for the advice.  It would seem that it always takes a long time for diagnosis.  I had a series of test and scans in April 2014 and didn't receive the results until February 2015.  I was then given a diagnosis of chrronic pancreatitis and "dismissed" with very little help or information.  Please go back to your specialist or GP and kick up a stink in order to get help.  From previous experience it would seem that those who shout loudest get the most help.   Alternatively contact your local MP, I have found mine to be most helpful as the hospitals don't like to receive letters from politicians and somehow manage to fit you in to their clinics.
    • sassy75
      sassy75 Babalishous

      Posted

      Hi,I've just been onto pancreaitis pals and it looks like a really good site but how do I join the page? There doesn't appear to be anything I can click to like the page or join???? Am desperate for some advice and support from someone/people that are going through this
    • Babalishous
      Babalishous sassy75

      Posted

      That's strange!

      Look me up on Facebook then I may be able to invite you. My names Emma Morris and my profile pic is me on my horse

    • Babalishous
      Babalishous sue99322

      Posted

      I have kicked up a stink as my doctor would even give me pain killers, as he said it was all stress related and said pain was in my head even though I couldn't work or sleep...

      Iv had to pay for everything iv spent £4000 on scans test consultations ect.... Disgusting the way I was treated!

      I was hoping to sue then to get my money back but without a diagnosis I don't stand a chance .

    • sassy75
      sassy75 Babalishous

      Posted

      Hi thank you, it would appear its just my mobile that wont let me join! Have accessed the page via my tablet....
  • william65322
    william65322 sue99322

    Posted

    There is a great deal of information out there, if you know where to look.  This site is great you have the support and understanding from people who are fighting this horrible disease.  One of the best things you can do is manage your diet by staying away from foods with a high fat content along with limiting complex carbohydrates.  One website I found that is very helpful is the Mayo Clinic as it breaks CP quite well and gives you some guidance.  My prayers are with you and so are those from everyone fightign this disease. 
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