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Really struggling with Basilar Migraines!

Posted , 4 users are following.

RachRoux
RachRoux

New to here so sorry if this is in the wrong place but I've suffered Chronic migraines with aura since childhood been under many neurologist over the past 15 years to stabilise and monitor them and after every drug out there and topiramate stablised my migraines. Last year I began getting awful headaches that started in the back of my head along with uncontrolled eye movement dizziness and double vision I ended up in hospital and was diagnosed with Basilar Migraines shortly after. My doctor has tried everything the neurologist has suggested in terms of treatment yet everything is just making it worse. I'm booked in for an appointment with a migraine specialist but in the meantime I feel so stuck. I have such terrible joint pain and weakness in my left side, I don't know if this is to do with my meds or the migraines? I don't usually feel like this but I am just so extremely exhausted. Laying down is impossible as my head just feels like theres a horse inside it kicking as hard as possible. I don't know what I'm even writing anymore but I just feel like I'm going to be like this forever. I'm already suffering with depression I don't this I can cope with this. =(

Meds: 300mg topiramate & 60 fluoxetine

0 likes, 3 replies

3 Replies

  • faye30603
    faye30603 RachRoux

    Posted

    Hi Rach

    Sorry to hear you are suffering so badly you have all my sympathy x I am suffering with migraine with aura and blind spots. I'm 38 and have experienced them for about 10 years. I've recently been prescribed beta blockers and imigran although it's not helping. I also suffer from anxiety and depression which gets worse when your life is on hold due to migraines! I can only offer you some empathy and let you know you're not alone.... first gers crossed the specialist can sort you out 😊 xxxx

    • RachRoux
      RachRoux faye30603

      Posted

      Hi Faye thank you for your reply, really sorry to hear you are struggling too it's just so debilitating! I've tried beta blockers and imigran in the past and it wasn't much help for me either. Unfortunately it's a case of trial and error until you find what works for you, hope you find something soon. Sending lots of positive energy your way Xx
  • claire18599
    claire18599 RachRoux

    Posted

    Hi there

    I only joined yesterday too.  I think many of us on this migraine discussion group can empathise with your symptoms.  I too have this extreme exhaustion and also feel like my head is so tender that you can't lay it down on a pillow.  I too had tried everything with that the neurologist had suggested but rather than wait for an appointment having been re-referred as he had discharged me with and then just sent a letter to my GP with different meds to try!!!) I phoned the neurologists secretary and requested another appoitment, explaining the situation.  I received an appoitment within the fortnight so you may need to do that - I know it's not what you want to do when you are unwell, but sometimes pestering them really works!  As you already suffer from depression, it may be worth mentioning that too.  I sometimes find sitting up rather than laying down can put less pressure on your head.  The exhaustion, which I used to fight, I don't anymore.  If you feel exhausted just 'give in' to it otherwise you will feel worse.  I know its not the type of exhaustion where resting makes it feel better but I just had to learn to 'accept' it.  I am waiting for botox treatment as my meds are not working either.

    Please do not think you are alone, I may have only been on this site for 24 hours but it seems to be very supportive.  Very gentle hugs sent to you xx Claire

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