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Recently diagnosed with PCOS, please help!

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nicole69064
nicole69064

Hey ladies! I'm 23 years old and earlier on this week I was finally diagnosed with PCOS after about 2 years of being messed up by doctors, and being fobbed off with some many excuses other than what was actually going on with me! As silly as it sounds, I'm sort of relived I know what's happening with me now. I haven't been myself recently, very bad mood swings and crying over the smallest things. It's been a very emotional journey lol! My main concern is about having children. I understand that women with PCOS find it hard to conceive or aren't able to. I'm still quite young and I don't want children just yet, but I 100% do one day! The longer I leave it, is it less likely that I'll be able to conceive? I'm just so confused with everything right now, I don't understand what's happening to my body!

0 likes, 10 replies

10 Replies

  • zara-rose58704
    zara-rose58704 nicole69064

    Posted

    Hey! 21 almost 22 year old .. Diagnosed at 19 with pcos after three years of telling them what was actually wrong ... It runs in my family on both sides my mum and nan and auntie have it and my dads sister has it .. Although they tell you it isn't passed on but can have a higher chance.. I'm currently trying to conceive and going though fertility treatment because I don't want to become too old and told it will be harder due to everything .. But my family had kids when they were in the 30's and I have spoken to plenty of other people which have pcos say they still managed to have kids later on in life.. Hope this helps.. Also they tell you to keep your weight done and if you have problems with periods ask them about a drug called metformin it may help with egg release and periods actually happen ...
    • nicole69064
      nicole69064 zara-rose58704

      Posted

      Hey Zara, thank you for replying! Yep, they told me the same thing, but I'm pretty sure some of my cousins have PCOS also. I'm just really worried that if I leave it too long, then I won't be able to have children at all. How long have long have you been trying for? That makes me feel a bit better as having children now is completely out of the question for me lol! I didn't have a period for 8/9 months, but after seeing numerous doctors none of them seemed to think that it would be PCOS purely because I'm not overweight. I'm 5ft, and I weight 8 stone 3, so my BMI is good. I think I've lost weight more than anything due to being so stressed about not knowing what's going on with my body! Finally had to demand an ultrasound (which the doctors weren't going to refer me for and ended up lying saying they had, so I was waiting 4 months for an appointment at the hospital for something that was never happening) but had my ultrasound 2 weeks ago. And as I expected, the final diognosis was PCOS. I've been put on Dianette to try and sort my hormones and my periods out, have you heard of that? I just can't wait to start feeling like my normal, cheery self again!
    • zara-rose58704
      zara-rose58704 nicole69064

      Posted

      Yea I've heard of that that is also a good one to have, been trying for just under two years .. I'm just a little bit overweight but always kept close eye on my weight due to to her health conditions which run in my family and I think also they took a long time to pick up on it, usually symptoms show up early twenties. And there may be issues with getting pregnant naturally with pcos so may need a hand with it but there is always help out there if you want to get pregnant .. Wouldn't worry so much about it, there is always a risk that you lose fertility with age in anyone but there is three stages they do for treatment .. Tablets called clomid if that fails insemination and then if that fails one course of ivf so all is not lost! Hope your body does sort it self out and when you decide to have kids in the future there a those options after more tests if it doesn't happen naturally.

      I have been told even when you are ready don't stress about it coz it will make it harder and hormones can get messed up when stressed

    • nicole69064
      nicole69064 zara-rose58704

      Posted

      How are you finding everything? Did you have any other symptoms before you were diognosed? I'm just going to remain positive about things, and when the time comes I know there will be help like you said if I do need it! I hope everything goes well for you sweet! Yeah, stressing definetly isn't good. Which is hard for me as I'm a major stress head at the moment lol! Anything and everything upsets me, there's even been times that I've cried over my eyelashes fgs lol! Not to mention feeling extremely angry and taking it out on everyone! I think everyone will be happy once I've back to normal, I've been a right nightmare lol! Did you/are you going through anything like that?
    • zara-rose58704
      zara-rose58704 nicole69064

      Posted

      I was awful .. Mood swings but I wasn't having periods from the age of 18 and they kept saying oh I must be pregnant stupid really.. I had weight gain from being underweight to being a little overweight. Depression was another one and trouble sleeping.

      And extra hair growth on legs etc because of the testosterone.

      High blood pressure and low sugar levels

  • brogan23793
    brogan23793 nicole69064

    Posted

    Hey Nicole! Sorry to hear about the diagnosis but glad you've finally got the answer you've wanted!

    I was 15/16 when I was diagnosed im 22 nearly 22 now and recently been told I don't have them! But I'm not entirely convinced!

    I'm in the same boat as you, I am very concerned about my fertility, more now than ever! I'm dreaming about having a baby and find myself daydreaming.

    I have a doctors appointment on Wednesday as many people have mentioned Metformin helped them? So hopefully will get more information on that!

    Even though we are way past the age of consent, it's like getting water from a rock getting information about fertility of a doctor I find!

    I am more than happy to let you know what the doctors say and pass on any information!!

    hope you get the answers you want smile x

    • nicole69064
      nicole69064 brogan23793

      Posted

      Hey Brogan! Thank you, I feel so much better knowing that I haven't been losing my mind for so long! Yes that would be great, let me know how it goes and what they say! Tbh, I haven't had much luck with many doctors, and although I'm aware what PCOS is, I'm not entirely sure of what the ins and outs are, after all it has only 2 days since I found out lol! But, I'm just taking it in my stride, what will be will be I guess. I hope everything goes well for you, don't worry, I'm sure everything will be fine. Just have patience! 😊 (although, I know that's easier said then done) have you experienced any particular symptoms? I'm not sure weather everyone's different or not but I just seem to be kinda crazy at the moment lol! X
    • brogan23793
      brogan23793 nicole69064

      Posted

      Haha no its not just you! Everyone takes it differently and it can be very overwhelming!!

      I remember when I was told I thought it was the end of the world haha! But then I was a 16 year old drama queen!

      I would say everyone's experience is different, I don't want to lay the woe is me card, but I got the weight gain, the excess hair etc but nothing that can't be fixed smile

      Fertility is my biggest fear, like you I worried if after a while what if stops me being fertile all together but I don't think it works like that! I don't think enough information is given really! I had one scan when I was 16 and nothing more until this year 😣 they really should educate people diagnosed more on the actual symptoms etc!x

  • Chris-J
    Chris-J nicole69064

    Posted

    Hi Nicole,

    I'm a longtime sufferer of PCOS (23 years now) after having been diagnosed at the age of 31 years........following 10+ years of 'fighting' with doctors. Unfortunately, in those days, little/nothing was known about the condition.

    Like you, I have never been overweight and so even nowadays, many GP's simply don't accept that I am PCOS. E.G. 8 years ago, I moved to England and my GP insised that I be tested again (she didn't believe the Scottish gynaecologists' diagnosis of many years earlier). I was sent to a specialist in Berkshire who until he got the results of my vaginal ultrasound, refused to 'accept' the earlier diagnosis too.

    Needless to say, my diagnosis was confirmed...........!!!!

    At my initial diagnosis, I was prescribed Metformin (a horrible drug, which it took me 6-8 weeks to tolerate) but since then, my life has been 'much improved' and my periods, until I hit menopause, were regular (27-33 days each month).

    Personally, I decided against having children so I can't help much there - but I never felt as though, if I'd wanted them, I couldn't........

    Be prepared to fight for what YOU want with GPs/medics........I've had to fight and threaten many GPs for my Metformin prescriptions (in fact every time I come across a new GP, I've have this issue) because, I'm not fat.......so be strong and don't give-in.

    Read 'all you can' to understand your condition (American Medical websites are really good as they have a better understanding of the conditon). We all have different symptoms and different responses and it's important you understand what your levels are, so that you can manage them.

    Good luck and don't be down, there is life (and a good one) after a PCOS diagnosis!

  • msman
    msman nicole69064

    Posted

    Hi, my name us Melissa, I was diagnosed as well at age 22. Its been almost 10 years since and I understand your feelings. So what to do. Well I've have a regular period for almost 5 years now. We need to exercise and change our diet. Eat low glycemic foods. Lots of vegetables and lean protein, like fish, chicken and turkey. Try to stay away from meats that contain hormones especially beef. No white carbs as this spikes insulin levels. Instead use carb like brown rice, coconut flour, sweet potatoes but not white potatoes. Use supplements like inositol, cod liver oil, b complex vitamins and a multi vitamin. Absolutely no dairy, this includes goat milk, cheeses etc... Use instead almond milk or coconut milk...finally search for teas that include nettle, raspberry leaf, mint. Eat griund flaxeed. I also heard apple cider taken before meals will also help with your sugar and bring on a regular period. I hope this works for you like it has for me.
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