red spots on tongue

Ps sometimes go with connective tissue diseases including Scleroderma (most of all) but also Lupus and Sjogrens I believe.

Ah ok. Just looked. That isn't what I get in my mouth. I may get that on my scalp though so thanks for pointing that out. My red patches are bigger and more just general areas of redness. Not little pimply red things. X

Mine aren't on my tongue and aren't pimply red - but if I look up very close they are made up of tiny spider veins.

I get them on my palms, finger tips and nails and a few on my face and lips. More like raspberry blotches. I'm only diagnosed with RA but have lip biopsy for Sjogren's on Tuesday - ANA positive but not the dry mouth - only mildly dry eyes. Main symptom is widespread small fibre neuropathy for me.

Ok. Good luck with diagnosis. I have Behcet's but sometimes my symptoms are so much like Lupus. But then one of my docs told me that Behcet's often mimics other disorders. Hey ho. At the end of the day treatment is probably the same anyway. I don't currently have sore spots in my mouth but I will look more closely next time. X

I think a lot of connective tissue diseases mimic others. Lupus is the one they call the great imitator - the others seem to have hall marks eg Behcets and mouth and genital ulcers - Scleroderma comes with calcium deposits,telangiectasia, Raynaud's, RA with synovitis. I don't have hall marks of any of them now but my high inflammation levels, positive immunology, fatigue and this widespread neuropathy point most to Sjogrens apparently. Dreading having lip biopsy! 

Thanks for your help. Good luck with the lip biopsy. 

Thanks for your help. Good luck with Behcet's. I have never heard of that so I will look it up.

hi again....I wonder if you could tell me a bit more about telangiectasia. I am really wondering now if this is what I have. I wonder how you were diagnosed and also what treatment you are on for this? I have made an appointment to see my gp to talk about it. 

I remember now that I from time to time, get these red spots under my tongue. I think now this is what I may have. Do you get it on your scalp at all?

I only learned more by googling them - some pictures came up of these on the tongue. Sorry but I don't have them on my tongue. I have some on my face and outer lips though. Don't know about my scalp as I can't see it! 

ps lots on my palms and fingers and under my nails too. Don't know if they are quite common or particular to me. I believe Scleroderma is the connective tissue disease most closely associated with these telangiectasias 

Think you'd know if it was on your scalp. Scalp very sore and tender with hairloss. It feel painful to brush my hair or have my hair blow dried at the hairdressers. Feels like it's being pulled out. Horrid. 

yes saw that when I googled that you can get them on your palms and fingers.  I don't have that. Was yours diagnosed by a dermatologist or a different doctor??

Not diagnosed with Sjogrens or Sclero yet. I've just had a lip biopsy yesterday to rule primary Sjogren's in or out. They know I have an autoimmune disease and I was previously diagnosed and treated for seronegative RA. I don't think my little pink spots or the milia are of much interest to doctors - they aren't noteworthy to them but I'm aware of them as I don't have many visual clues for mainly neuro symptoms. We know what is normal for us and these raspberry red spots on my fingers are not.

I don't think the red spots on your scalp sound like telangiectasias - I don't think these are painful. Have you asked a dermatologist or your GP perhaps? I lost all my hair as a kid and then again after my last child was born - miserable for you. 

I will speak to my gp. I am ok at the moment. Hair loss slows down with the treatment so no bald patches or anything. I just sometimes almost doubt my diagnosis. I was diagnosed with Behcet's but the more I read around it the more convinced I am I have Lupus. If I do I don't think I should be on the medication I am on. 

I need to get back to see my specialist and have a conversation with him about it and also try to build up a picture by finding out what is going on with my scalp and my mouth. 

Not sure what treatment you are on but to be honest there is so much overlap between all these diseases that I would trust the rheumatologist to decide - although flagging up symptoms and signs is important of course. Bechets is rare and it would be unlikely to have it diagnosed if something hasn't confirmed this to your specialist already. Best of luck.