Reflux nightmare
Posted , 7 users are following.
Ive been on this forum on and off for six months and am still here, with no visible signs of improvement to my reflux, still desperately looking for help. I have seen gi consultant again, who's put me on 600mg Ranitidine and 20mg Pariet with a view to gradually cutting back, which did work before, in fact June and July were pain free. But here I am in the middle of the night again, unable to sleep forpain. I have had nothing to eat since 7pm so why Is there acid
present? Could it be that my LES is now getting weaker? I watch
what I eat, no triggers, plain food etc but now the heartburn isn't
suddenly triggered it just gradually comes on throughout the day
and builds up. I've raised my bed but still can't sleep.I think my only option now is surgery- I have nothing to lose. My life is in ruins. My GP is sick of me and my Consultant can only offer huge quantities of drugs that don't work, although he he did say I was "on the cusp" for having surgery. Advice please, on any other tips for relieving the pain and for going about getting surgery, where to go etc.
2 likes, 11 replies
elaine93660 hilary07569
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ted41159 hilary07569
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I am taking ranitidine and lansoprozole and my consultant as recently added domporodine because he said I need to lose weight before I can have surgery. I think that's just an excuse to save money really. I know you hate taking drugs we all do but what about trying some others just to see if they can help the problem.Having said it for literally years I have finally been told I have a HH so I will definitely try to restrict my diet to lose some weight is that also something you could do.
With regards to surgery by what I have read its not always successful so don't pin your hopes too much on that. Finally I mentioned the Hiatus Hernia have you been diagnosed with one because if you haven't then keep insisting on further investigations as its taken me three years of insisting I have one to get my doctors to believe me. As I said keep trying the drugs because if you can at least get a decent nights sleep you will feel better for it. Best wishes Ted
crystal24820 hilary07569
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ted41159 crystal24820
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Alizarin hilary07569
Posted
There have been a couple of changes I've made, they seem to have helped lessen the level of pain and discomfort. The primary change has been my job, specifically in terms of what it means for me physically. I used to drive every day and it was growing increasingly difficult to do so, and I believed (correctly) that the sitting position was making my symptoms worse. I now do a job where I stand and walk and it definitely made a difference. If you are spending your time at home or work sitting down a lot, if there's anything you can do to change that I'd recommend it.
Although I can generally tolerate dairy I switched to lactose free milk a long time ago. I used to go through pints of milk but had lots of acid and didn't realise I was making things worse. With lactose free milk I don't experience such high levels of acid and can use it to sooth my symptoms without worrying about the acid problem getting worse.
I started using apple cider vinegar with my meals after reading these forums etc, and I do think that anything that helps with digestion is beneficial. I could barely eat a normal sized meal without spending hours in agony as though I'd stuffed myself. I don't get that feeling anywhere near as much.
in addition I decided to try high PH water, even though I don't have LPR, it seemed logical to use a method like this to combat acid. Understand I usually struggle to drink water as I find it makes my acid worse, but I've been able to do this without any problems so it might be worth a try.
I've strruggled to ID dietary triggers but in general processed foods are not good. I began eating salad sandwiches (wholemeal) for lunch, drinking the water. Sometimes for dinner, drinking the apple cider vinegar. I've been able to tolerate a bit of tomato and onion with this.
As I looked around for other natural help because I can't tolerate the drugs I discovered another aid for digestion I haven't seen mentioned on these forums. Its called IntestCare, a blend of fruit juices and turmeric which is simply to aid digestion. I feel that using this and the ACV is making a difference on that front and would suggest trying it out.
Because I have oesophagitis my chest hurts a lot. Milkshakes or ice cream can help to temporarily sooth that pain because of the combined cooling and coating.
Finally, I have a prescription for Gaviscon Advance. At one time I relied solely on this stuff. Not a miracle cure but that coating effect was key to helping stem the pain. If you have not tried advance please do as it is much better than standard gaviscon due to the higher viscosity.
Thanks to the combination of other things I don't need Gaviscon all throughout the day and night as I used to, but I always have a carton of lactose free milk and a bottle of Gaviscon for when I need to get on top of the acid feeling. I take both to bed on the nightstand so I can use them if need be during the night.
For sleeping I have also generally found lying on my left side is best.
I some of this might be useful to you. Good luck.
One final thing if you are considering surgery, please be aware there are now three options for treatment and Nissan Fundoplification is the most common but the most severe and irreversible. Other treatments are the lynx collar which can be removed, and there's a radiotherapy treatment I forget the name of. So please consider your options wisely. The other two are less common but personally I'd rather avoid surgery on my stomach and would push for an alternative first.
Cheers
Al
hilary07569 Alizarin
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Alizarin hilary07569
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This reminds me of something - when I was at my worst I was experiencing spasms, twitches, heart palpitations and spent a few nights in hospital because of it all. With no help from the doctor I figured out that the cause was excess calcium. At the time one of the mistakes I was still making was popping over the counter antacids like Rennies. If you're doing the same try to avoid them, cut them out or wean off them if some of these other things help. I used to experience huge stomach spasms and the location and pain made it feel I was having heart attacks, and it always happened when I was in bed at night. Those spasms combined with the palpitations made me feel I was dying. Horrible stuff which was relatively easily remedied.
You can get ACV and the IntestCare at a health food shop like Holland & Barret. ACV can also be bought online and some shops have it, like Tesco. The recommended type is one that contains 'mother' from the apples, but normal stuff will still be useful.
For the PH water I found the cheapest and most convenient way was to order some alkaline drops online and use these in water to alter the PH (I use bottled spring water usually). The drops can be carried around and used in any water you are drinking so it's more practical.
Al
Alizarin
Posted
julia50778 Alizarin
Posted
I’m new to the forum and in early days of GERD, after a hospitalization. Are you still checking in? How are you doing? I need some positive encouragement!!
Thank you,
Julia
hilary07569
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Alizarin hilary07569
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A lot of people will take ACV 3 times a day with meals but I find it a bit awkward especially because I use the IntestCare. So I use the IntestCare during the day then the ACV with my main meal in the evening. This is partly up to you, but the IntestCare instructions are to take 20ml with meals. So far I haven't used both together so can't say if it matters. A general guide for ACV is a tablespoon in a glass of water, some people use more but will build it up over time.
I drink the water as and when throughout the day and try to make a point of having a bottle with my lunch, but because I've been a bit better I sometimes revert back to tea. I've seen people say they've used the drops in tea as well, haven't tried that yet.
I don't take medication because everything I tried made me feel even worse. This is a tough call but I'd suggest sticking with the meds, give the other stuff a bit of time to see if it makes any difference. You'll know better than anyone if it feels right to change that up later on.
I don't get severe reflux throughout the day and I feel better after meals. I also get more sleep than I used to. Some days are worse and I can feel a bit bloated but nowhere near the discomfort I used to suffer. If it has the same kind of effect you'll be able tell but it isn't going to show immediately. Might take a week or two.