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cherl450
cherl450

Hi guys well its official I have fibro yes but I also have M's which isn't the news I wanted at least I know I'm not going crazy it didn't show up on MRI but it did on other tests but the treatment is basically the same as it is for fibro can anyou tell me if they have tried the fenta patches and what they were like and if they helped or not I've been put on a whole new set of medication to try and get pain under control so any advice would be great love to you all xxxx

0 likes, 8 replies

8 Replies

  • aabb
    aabb cherl450

    Posted

    Can I ask what other types of tests you got that MS could show up in? I have had fibro for years but feel I may have something else. My docs just keep blaming my fibro for every new problem I have.

    aabb

    • charlotte1824
      charlotte1824 aabb

      Posted

      Hi,

      Cherl probably had blood tests and a lumbar puncture where they took her spinal fluid and tested it for antibodies. That along with an MRI is the standard tests for detecting MS along with symptom history, muscle strength testing and reflex tests.

    • cherl450
      cherl450 aabb

      Posted

      Hi abb there's a special blood test a lumber puncture and a eclectic tests on your nerves and that you can ask your to for a second opinion and demand to see specialist is neurological one or remotoligist hope this helps love and best wishes XXX

    • aabb
      aabb cherl450

      Posted

      Thank you for getting back to me. I wanted to see a rheumatologist but my doc said I didn't need to. I am so frustrated. I just want a specialist to see me. It was my own doc who said I had fibro not a specialist.

      aabb

  • charlotte1824
    charlotte1824 cherl450

    Posted

    Really sorry to hear that you have been told you have MS. Also pretty unsure as to why you were told the treatment is the same as fibro. There are treatments for MS, no cures but plenty of disease slowing medicines which should have been discussed with you along with treatment options for symptoms. Muscle pain, brain foggines etc is all MS symptoms and are probably due to the MS not fibro. MS is an autoimmune condition attaching the myelin sheath therefore certain drugs can slow this autoimmune process down and stop you from relapsing. Fibro is an unexplained condition of widespread pain, it is not supposed to be due to any autoimmune disease (that they can find anyway) and therefore apart from managing pain there isn't much else they can do.

    Do not let them tell you there is no treatment, the relapses that cause pain will be managed with similar meds to fibro but the rest of the time you have options for meds.

    Good luck

    • cherl450
      cherl450 charlotte1824

      Posted

      Hi Charlotte yes I'm on special meds for the M's but their are very similar to fibro as you said some of fibro symptoms mask and are quite like fibro but I dfo have an M's nurse in charge of me and on treatment too try and stop relapses happening so their not fobbing me off, I would liked to point out that my MRI was normal it was the blood and lumber puncture and electric tests that all come back not normal which made them diagnosed me with M's but according to them I still have fibro too, life is hard at moment as health not so good but do have an amazing hubby and a good specialist who listened to me as first the tried to fob me off with just fibro but I pushed as new something wasn't right so a year later we got there but sending my love you you all xxxx

    • charlotte1824
      charlotte1824 cherl450

      Posted

      I'm really sorry for you, glad they are not fobbing you off and that you have a nurse in place. I had an MRI not even with contrast and the private neuro told me when I asked if i could 100% rule out ms now that I could. Just goes to show of full of rubbish Drs are. I discovered on my own after that mri does not rule it out, sometimes it even depends on the strength of the machine used as to what shows up.

      Good luck, I really hope the meds work soon and that it reduces your symptoms.

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