Sarcoidosis and colds

Apologies I should have days it's in my lungs I have just got over a head cold still have a stuffy nose and my chest today feels different like it could be there developing if that makes sense

There will be lots of people here to help you through. Lungs seem to be the most common place. Luckily for me I have it in my legs.

Thanks for the reply I'm only getting familiar with it recently too I didn't no it affected the legs I hope you are doing ok

How's that? Loke how did you find out it was in your legs . ? My eyes are affects also as my lungs liver and pancreas.

And lately I've been feeling like garbage.

How do you deal with day to day life ?

Hi Polly

Thanks for the reply, I'm just over a head cold but chest feels like it might be getting heavy if that makes sense, so just worried a bit, I'm not on meds for the condition doc says I don't need them not yet anyway

Hi Colin,

If it feels like that it would be no harm going to your doctor to get it checked out. Sarcoidosis can affect every part of you I am afraid to say. Hope you feel better soon

Polly

Thanks Polly will do that

Hi Colin

I have it on my spleen kidneys lungs and legs.

I have been on steroids since October and have been reducing them from 35 mg and now I am on 4 mg a day so happy about that however since November i have had at least 3-4 chest/ lung infections head colds and worst of all a serious bowel infection which I was hospitalised for a week for. My eye sight has worsened and my appetite increased alot which lead to weight gain however steroids bloated my face and stomach anyway.

At the moment I'm suffering from dizziness and headaches but holding off for another week or so to see my doc.

Stay clear of anyone who is sick, but being honest with you you can't wrap yourself up.in bubble wrap, your immune system will weaken without a doubt and you will catch infections but just rest and try eat the best you can trust me it helps.

The steroids have worked so.far for the sarcoid so I am happy for that they have saved my life.

Hi Amanda

Thanks for the reply, I hope you're feeling better too, it's a tough illness to deal with , I didn't realise the immune system suffered but hopefully I can change that I've changed my diet to lots of fruits and more veg and reduced other things too take some vitamins too

Hey,

Before the steroids my immune was weak still, kidney infections, joint pain and colds and coughs were the.main ones so just try to look after yourself the best you can. I have more posts on her Colin, have a read the info might help you.

Are you in the UK?

Hey

No I'm not in the UK hope that doesn't matter found this site by just looking for more info it's good to ask questions with people who have the condition too

Hi,

It's an auto immune disease. Try stay away from multi vitamins, vitamin d amd calcium, they are like fuel.to the fire, sarcoidosis feeds off of these, trust me I have experience from this also my specialist here in Dublin has advised me of this.

Hi

Oh ok thanks for that I didn't no I'm only taking vitamin c at the moment really

No that doesn't matter, sure I'm in Ireland I found it doing exactly the same.

Yea vit c is great also try some anti inflammatory vegetables and fruits, also ginger, liquorice and turmeric.

Ask me what you like, I can help the best I can.

Thanks very much you're a great help

Anti inflammatory fruits and veg?? Can you clarify

Ok pineapples, garlic, cauliflower, mint, cucumber, spinach, sea kelp, seaweed, like I said liquorice but from a health shop not a sweet shop.

Best thing is to juice everything that way you get it all in one hit., I make pineapple, spinach, cucumber, celery, ginger, lemon and pear. Try make it 80% veg and 20% fruits. Also add the turmeric too.

Thank you so much that sounds very nice I look forward to trying that

Yea do, let me know how you get on and good luck 😊 🍀

Yea do, let me know how you get on and good luck 😊 🍀