Sciatica to full blown polyneuropathy
Posted , 6 users are following.
Alright guys so I think I had sciatica in my legs for 2 years. I was never diagnosed (how does one even test for sciatica?) Anyways I started running a lot this past semester and got a burning feeling in my right foot and ankle when I would run. So I stopped. Then I would got weak muscles in my arms and right leg. My parents took me to an orthopedist. Did an mri.. nothing...my symptoms got worse and now it feels like I'm wearing socks on both feet. This happened after driving back to school from home. Realized it was something neurological and got an MRI of Brain and upper neck. Still nothing. Going to do nerve conduction study. I now get strange itching and burning sensations. I can't feel my heartbeat on my chest and I sweat abnormally. I also blister easily from wearing shoes I've always have worn. Now the question is... can my nerve damage that wasn't found a couple years turn into full fledge polyneuropathy (affecting every never including the one in my bladder) I'm exhausted all the time and my legs have started to shake just from standing. I also get blurred vision and get lightheaded. I'm only 20 and have a body of a 70 year old. It's hard for me to concentrate and I've noticed that I've been typing repeated words during my homework, forgetting things all the time, dropping things easily, having trouble even eating because it's hard to hold my fork. Can someone please tell me if this has happened to them? I feel so alone and I feel like I'll never be able to happily workout again.
0 likes, 12 replies
mandy77480 mia31663
Posted
Hi Mia
I can completely understand how you are feeling, I have exactly the same
symptoms and many more. I'm finding it huge struggle ,I'm 52 single
mum to son aged 10. So you being only 20 It must be horrendous.
I've been ill for almost 3 years . I'm not sure where you live ?I'm from
Staffordshire.
No one can really understand unless you are going through it.
It's taken ages type this because like you. What I'm saying in my head
doesn't transcribe properly. I.e..words missed out or I'm hitting the
letters either side, especially when. texting on my phone.
If I can help please ask whatever you want too
Mandy
mia31663 mandy77480
Posted
mia31663 mandy77480
Posted
mandy77480 mia31663
Posted
All the MRI I've had so far have been ok.
After my 2nd nerve conduction study done the consultant told
me I had Severe Small Fibre Sensory Polyneuropathy Diffuse
And Autonomic Neuropathy.
He said it was Neuro and Autoimmune .
My main consultant (movement specialist) has requested it to be
done again. Which I've had done along with an EMG..I'm
going to see my main consultant tomorrow for results.
One of my questions is going to be can nerve damage be repaired
I will Private Messsage you tomorrow.
mia31663 mandy77480
Posted
Thank you Mandy!! I don't want to live like this for the rest of my life it sucks
I'm getting a nerve conduction study done this week I'll let u know what they say how do they test for autonomic? Cause I think I have both. Do u know how u got it?
mandy77480 mia31663
Posted
I have been under two Neuro consultants who couldn't come up
with a definite full diagnosis. Then referred on to Movement
Specialist ,it was one of his registrars who started the ball
rolling with nerve tests. The Neurophysiolgist was the only one
to give me the answer of diagnosis (in my last message).
But what has actually caused it is still unknown.
I have had a battle on my hands with my local hospital to get
this far. I don't know for sure what or how tests are done for
Autonomic neuropathy,but because it affects many of the
organs and functions I would think it would need tests done by
the relevant specialists.
This is what I have that is connected to the Autonomic side.
Cannot regulate my body temperature, either very hot or icy cold
Sweats but feel cold and clammy to touch
Racing heart or it feels like its vibrating, pulse can be very high
Episodes of what's like Hypoglacemic attack but I'm not diabetic
Bowel and stomach issues.
Do you have any of these?
Plus all the polyneuropathy problems.
mia31663 mandy77480
Posted
I have high heartbeat but I can barely feel it. I sweat weird when I'm cold sometimes too. When I workout I only sweat in a couple of places instead of all over. If I have too much to eat my nerves go crazy it seems and I feel a lot of pressure in my arms hands and legs. I have bladder and problems because it's like almost too tight down there for them to come out. I'm terrified for my future and I guess this started from my peripheral neuropthy
mia31663 mandy77480
Posted
What do you do for a job? I'm starting having trouble talking. I'm scared and I know the doctors won't help me. This will probably get worse and people think I'm crazy. Are u sensitive to heat like do u feel like u need 2 pairs of sunglasses when it's super sunny outside lol
mia31663 mandy77480
Posted
I'm considering suicide tbh
mandy77480 mia31663
Posted
Mia..
I'm going to private message you now.
vmocha04 mia31663
Posted
nancy21104 mandy77480
Posted
I have all of these symptoms. Thank you for confirming it affects organs, bladder, bowel, temperature as well as hands feet, legs, back, etc etc.. I live in the USA & can't find any physicians or practitioners who know anything about it. I don't have energy to seek diagnosis. What i mostly need is information. Like is nerve damage reparable. Can one arrest it. I take a million supplements, homeopathy. I suspect it helps, a bit, but the condition has definitely worsened. During intense episodes my brain is also affected. I would appreciate any & all info. I;m wondering if there's a way to communicate privately. thanks again