SCOLOSIS

Posted , 2 users are following.

HI

i have congential scolois which was diagnosed whwn i was 11 I have not had any surgical intevention apart from a brace fro two years I have had children and now my husband and I are divorced and my childrenare talkinabout my back I need advice as I dont want it to become a problem to them or mw which it could quite easilr do

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0 likes, 4 replies

4 Replies

  • Posted

    I can only suggest common sense actions: but usually those work.

    1. Consult your GP. Plan beforehand what you want to say: in particular what you would like to happen next.

    2. For a permanent chronic condition there seem to be two approaches:

    (a) pain relief if needed. Keep it to the minimum needed to keep you going. I use Bu-Trans 7 day patches which give a constant low dose release. Unfortunately the only thing that works for severe pain is opiate based: so keep it to a minimum.

    (b) physiotherapy or similar to (I) improve the condition, (ii) improve strength and mobility.

    have you consulted a specialist rheumatologist in the past; and had a MRI scan? These may be appropriate; and help to diagnose any separate or consequential problems.

     

    • Posted

      Thank you for coming back to me I am very lucky that I do not have any vack pain and infact work as a nurse and my mobility is good but i feel i am stoopingwhich is ver off puuting and then this shows off my curve more which is what I want to avoid
  • Posted

    I am genuinely pleased to hear it does not give you pain.

    Depending on the severity of the deformity in the spine, I can see it can make you feel awkward to have a 'stoop' and 'curve'. However, it is likely that most other people do not notice it. They see you as the unique person you are, and judge you on your character and actions rather than superficial appearance. If you work as a nurse, you must be doing a lot of good and helping people. That is more important.

    I am not clear why your children should be concerned about mere appearance. Why is it a problem for them? They should be proud of you for who you are. 

    • Posted

      that is exactly what I thought but it when I come to buying clothes and looking at myself and just something my daughter said at the weekend and I just thought this could be come an issue if i amnot careful., and too be honest I just want to improve it aswell

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