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Septal perforation and lupus?

Posted , 5 users are following.

sezza978
sezza978

Hello

I am after some advice. I have suffered with my sinuses for years and over a year ago I started with sores, scabs and bleeding in my nose. Its constant everyday. I have a tree allergy but usually that is worse in autumn!?

So yesterday I blew my nose and a scab came off. I then started making a whistle noise when I breathed in. I shone a light up my nostril and found a tiny hole in my cartridge . Utterly shocked I got an appointment with my GP today who has referred me to ENT urgently. They are so busy that my appointment is 3 weeks away even though it's classed as urgent!

She asked about my general health etc. From googling it lupus came up. This is something I have looked into a year or two back as I suffer with fatigue, hair loss, low iron, low b12, bruising, mouth and tongue sores. I haven't ever had a rash. I just wondered if anyone had experienced nasal sores? My latest bloods showed low rbc but my iron was fine and my b12 was very high for me! I'm totally freaking out about the tiny hole. I don't want it to get any bigger.

I would like to add I have NEVER taken any drugs in my life. I'm 34 year old female.

Sarah

0 likes, 11 replies

11 Replies

  • sezza978
    sezza978

    Posted

    Also I get blue nails and lips when cold (have done since a teenager) I get tingles and numbness in my fingers and toes and lots of foot cramps. I also suffer with ibs.
  • Dawsden
    Dawsden sezza978

    Posted

    Hi there. I also have lupus, and have been suffering much the same as you describe, but no hole, thank goodness. My gp said I had a viral infection and this did in fact show in my bloods. She gave me nasal cream and it has helped a bit. I know what your going through. A few years ago whilst having dental work done, my sinus was pierced...that whistling made me really panic. I had to go in and have a op to get it repaired. Took quite a long time to heal, but then everything does when you have lupus. I really do feel for you and hope that it gets sorted sooner rather than later.😊
    • sezza978
      sezza978 Dawsden

      Posted

      Thank you for the reply. I have tried creams in the past but have not worked. Its very frustrating as I feel this could of been prevented. For years I've felt unwell. I put it down to my iron always going low and my b12. My appointment seems so long away. Do you suffer occasionally with the nasal sores?
    • Dawsden
      Dawsden sezza978

      Posted

      Hi there. Yes I do. Like you I was ill for years before being diagnosed with Lupus & CTD. Now have Rheumatologist, Pain Consultant, Joint specialists etc etc. I do have good gp's that always do referrals, but yes unfortunately with the nhs like it is, they take forever. I had scans done on my foot last December and got to see the specialist a week ago. Only to be told that the foot problem is so complex, that I have to have 2 more scans, injections into the foot and go back in 3 months!

      Have you tried Bicarbonate of soda diluted in some water for the sores? My Rheumy advised me to do this, also to take high dose of vit c every day. Definitely worked for me😉

    • sezza978
      sezza978 Dawsden

      Posted

      Oh gosh poor you. I get painful joints in cold weather but it is random. Sometimes I don't have any pain then other times my wrists and ankles really hurt.

      No I've not tried that. Will certainly give it a go. Will try anything.

  • fester
    fester sezza978

    Posted

    Hi sezza sorry to hear of your health problems I to have sinus problems

    It's not pleasant I've had sinus problems for many years and had a perforation gp just gave me steroid spray, I had a infection a few weeks ago

    Gp wouldn't give antibiotics but gave a steroid spray witch cleared it in a few days take care g

    • sezza978
      sezza978 fester

      Posted

      I have suffered for years with my sinuses. The ENT said it was migraine related but it really isn't. Its a totally different headache. Its more the pressure in my nose and dizziness. Just hope I can get an earlier appointment. Do you get mouth sores too? Mine are mainly on my tongue
    • fester
      fester sezza978

      Posted

      I don't get much in the way off mouth she's any more I sometimes get the foul taste off off the mucus than can run down the

      upper nasal tract and down the throat

      I would think you need to go to your gp see if they will give you something to help meantime g

    • sezza978
      sezza978 fester

      Posted

      GP didn't want to give me anything until the ENT has looked at it. Just using vasaline now
  • JenInCali
    JenInCali sezza978

    Posted

    Hi, I too get those sores in my nose that scab, then it comes off and I have to start all over again trying to heal it. My doc gave me some antibiotic ointment and it goes away. Right now I have sores on my tongue and it hurts to eat. I also get very deep cracks in the corners of my lips. Very painful. I have problems with my feet as well. Last year i had surgery on both of them to remove bone spurs. Good times alright. My heart goes out to you.
    • sezza978
      sezza978 JenInCali

      Posted

      Oh no that's awful.

      I get tongue sores. My tongue is covered in red sores now and it's so painful. I've been getting this for years and put it down to my vitamin deficiencies.

      I'm not sure what is going on with me but I've been feeling rubbish for years and I'm really hoping to get some answers.

      What symptoms did you have when diagnosed

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