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Sle

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kristina60663
kristina60663

Hi everyone just need some advice from other sle patients, I've suffered with sle for nearly 7 years although I do get swelling and pain in my joints it's seems to have affected my organs more than anything else so I've really experienced a proper lupus flare twice. I haven't been able to see my consaultant for nearly a year I'm due to see him in February, for nearly 6 weeks now I've had this horrendous pain behind my knee and in my ankle in my other foot worst at night and just about bare any weight on either leg, my gp will only prescribe pain killers that I'm taking but seems to not be much help my latest blood tests show my lymphocytes levels are quite low could this be a lupus flare?? Any body else experienced pain like this and how did u manage?

0 likes, 3 replies

3 Replies

  • marion64534
    marion64534 kristina60663

    Posted

    If I were you I'd ring your consultant for emergency appointment,if that's possible,GP s don't know much about lupus at all,hope you get sorted soon,sorry can't be of any more help.
    • kristina60663
      kristina60663 marion64534

      Posted

      Only problem is my consaultant is on sabitcal leave so not even sure it's him I'll be seeing
    • susan33651
      susan33651 kristina60663

      Posted

      Hi,

      If you have access to a Nurse Specialist in Rheumatology it would be advisable to contact them, they can liaise with your GP and suggest treatment options, some are also nurse prescribers so may be able to prescribe the best medication for your current pain.

      Best of luck.

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