Posted , 6 users are following.
Hi all
Im 40 years old and been having pain for justover a year. The pain is just under my right rib it comes and goes it lasts anywhere from a few seconds to 30 mins its also very tender, it like a burning stinging pain i also get this pain on eitherside of my belly button but not as often maybe 10 times in a day this is also tender i have lower back ache boating feeling sick most of the time never feel hungry but sometimeswakeup with a really bad hunger pain, my right leg from the knee down aso swells change in bowel movements also bladder control has gone a bit, anyway had a ct scan it showed bulky ovarys with several large cysys and that my gallbladder neck is deformed but then they are saying that this is not the cause ofmy symptoms and put me on amitriptyline for pain management im so confussed and they have sent me back to gps care .
Any advice
Thanks lorraine x
2 likes, 74 replies
Acejohnston lorraine27431
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angela72602 lorraine27431
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lorraine27431
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Ace i do have tender dreasts most of the time and get alot of headaches i was on the depo so didnt have periods stopped getting it in november so only had 3 periods but they seem regular but really heavy,i also have alot of papitations, ill try the milk thistle too.
Angela my docs arnt good hes the type that asks you what you think it could be i have another ultrasound booked for the 12th for my gallbladder going back to see the doc this week so will ask to see a gyneacologist.
Will let you know what the doc says
Thanks again xx
Acejohnston lorraine27431
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lorraine27431
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Im really sick of feeling like this now for a couple of weeks everytime i bend over i go really dizzy i told the docs this and they said they dont know what that is thats all i seem to get told. I have just been diagnosed with laryngopharyngeal reflux and was taking 40mg omeprazole but had to stop as it was making me sick i take gaviscon 4 times a day now. on a letter from the hospital it said existing diagnosis of non-alcoholic fatty liver disease not one of the docs has told me i had that hopefully i will get sorted soon xx
Acejohnston lorraine27431
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lorraine27431
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You take care too xx
Acejohnston lorraine27431
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Gwenn1120 Acejohnston
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Ive been reading your and another poster's threads for a little while.
Yours caught my eye because of your gyno references.
To briefly recap I had a very bad attack that had the initial dx of severe gastritis, which then became a symptom of either pancreatitis or gb.
Unfortunately, the earliest I could get in for scans was 7 days post attack. My Dr said that often the time delay can see scans come back clear.(including ct with contrast and u/s).
My 2nd Dr (not happy with first) had to leave the practice suddenly due to family reasons was great but he only saw me for 2 weeks prior to his going.
The closest dx ive got is a narrowed cbd from rapid emptying with mixed artefact.
Im nearly in some degree of discomfort to downright pain most days. Ive asked for a hida scan twice and have been told they will leave that to the specialist and due to the 3 month gaps between appt times, I also changed specialists. ( The first specialist insisted on scheduling a gastroscopy/colonoscopy even though I said I felt it was unrelated and it wasnt).
I also had bloodwork indicate some sort of an infection but the Dr said no to abs, and all the while Im feeling worse. Finally, I put myself on abs but only had 4 days worth but feel much improved although still in pain.
Here's the thing, I have fibroids and ? enlarged ovary or fibroid growing on a stalk off it. Im 50 and in perimenopause and in frequent pain on my right ovary area.
Im due for a hysterectomy late next month, but am concerned about the gb? pain being bad post hyster surgery.
I really feel that my gb and gyno issues are feeding off each other but the new gp was dismissive of that. Honestly, sometimes it's hard to tell where the pain kicks off, ovary or gb area! I really think ever since I started peri menopause my gb has gone haywire and I can't be the only person to experience thus so surely Drs would make the connection.
I'm fairly forthright by nature, but trying to get my issues sorted is proving to be a nightmare. Hopefully the new specialist will actually listen and have some answers.
Acejohnston Gwenn1120
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Gwenn1120 Acejohnston
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I started milkthistle about a week ago so I am guessing it may take a while to make a difference?
I read just today that carrying to much weight (im carrying about 10kgs too much) can cause excess oestrogen which in turn causes liver and gb probs as well. I havent been on the pill for 15 years so I am attributing my issues to that, which accounts for the fatty liver and I've made major changes to my diet.
Im not that keen to have my gb out as I've read a lot of negative stories but I just feel so unwell these days that I'm getting desperate for relief. I guess when I eventually have the hida scan it will ultimately be the indicator.
I'm hoping the new specialist will have answers asap because Ive put off the hysterectomy for six months waiting.
I sound like a misery guts Im sure, but it's wearing me down atm.
What made you decide to get your gb removed? Im sure you've stated that but I'm using a phone atm and it's harder to use.
If you have any other words of advice, Id love to hear.
Acejohnston Gwenn1120
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Gwenn1120 Acejohnston
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Tell you something else, I asked my gp about supplements or could i be referred to a certified naturopath and it was met with a 'no'.
Also., with this particular ppi I was put on, I started to get the most horrendous muscle pain (this was with 1st Dr) and went back to her and said as much.
She said all busy people get aches and pains but "if it makes you feel better take some magnesium". Which I did but it got to the stage where it felt like my muscles were seizing up and I could barely walk. Bearing in mind I was unwell anyway but this was new.
So I got my trusty nurse's med book out and here it was written " to see Dr if experiencing muscle weakness or pain". After two days of no ppi the pain went for good. Also the book advised if ppi's are used long term pathology should be done to check vitamin and mineral levels.
I was on them very short term but due to malabsorption issues had a check and I was quite vitamin d deficient (before I read report I thought it was a minor thing) which if you research can cause serious problems. Even then it was not recommended to me to start vitamin d and calcium and I felt a bit better again after six weeks.
That's what is frustrating atm, I feel like I have to drive my diagnostic and come up with the solution, so fingers crossed for this new specialist.
I really miss my first Dr who left 3 years ago who looked at you as a whole.
Gwenn1120
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Gwenn1120 Acejohnston
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So despite almost discomfort to downright pain, stool colour changes and the occasional bout of itchy skin, I have been told by new specialist who looked at my scans that there is nothing wrong with my gallbladder and it is probably diet related. (even though I have had the same diet for twenty odd years, that is what the changes are being attributed too).
I have to chart my diet for three months and then only can I be assessed for a hida scan (as other imagery isn't showing any problems with stones, sludge apparently). This is at odds with a GP who told me it was sludge with GP, so now I'm just frustrated like hell and the specialist was not budging on the diagnosis of diet or unrelated rib pain. Apparently I don't tick all the boxes of typical gb pain.
This is the fourth time I've asked for the functioning of my gb to be checked without success and I cannot for the life me see why this is an issue. Anyway, I feel like I'm banging my head up against a brick wall, so
at this stage I'm just going to take my milk thistle, go on a strict diet and see if I can tough it out.
On a positive note I am going ahead with sorting my gyno issues out so that's one thing down I guess, if only it was that simple to facilitate sorting the gb out.
Thanks for your past encouragements 'Ace', even though you are a total stranger it did feel nice to have a sympathetic ear.
Acejohnston Gwenn1120
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Am sorry to hear your still sufferIng and getting no answers. The milk thistle will definitely help detox your liver and get rid of any excess toxins in particular estrogen which seems to play a big part with a lot of these problems. The liver and digestive system are closely linked so by detoxing the liver it will have a positive effect on your digestive and hormonal system. It's definitely helped reduce my cyst greatly and hopefully will get rid of it fully soon and also helped my digestive issues post op. Apple cider vinegar is also good for gallbladder problems and digestive issues and may help you too. You can get it in pill form or in liquid form. If you get the liquid you take 1 tablespoon 3 times a day in warm water. Also watch the fats for the 3 months and see how you get on. I hope this all helps and you start to feel better soon. Take care and keep me posted. X
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