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Suffering with MS

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Aza1990
Aza1990

Hi I've recently been diagnosed with MS and I am struggling as it was a late diagnosis I'm left to suffer with what I have got I'm in pain most of the time I have had an incredible loss of vision for the last year I've lost feeling in legs and my balance is completely Off so I keep falling over I've been told that all my problems won't get better even with medication just lucky to have voice recognition on my phone

0 likes, 13 replies

13 Replies

  • sonia1215
    sonia1215 Aza1990

    Posted

    I'm sorry you have this problem. I completely understand because I wasjust dxd in April but a lot of damage has been done. There's more and more daily. I've recently started having trouble swallowing and had no idea MS could cause that. All that you are describing has been issues for me for years.
    • Aza1990
      Aza1990 sonia1215

      Posted

      Thank you for responding sorry to hear that you're having problems swallowing I heard that could happen with multiple sclerosis do do you suffer from vertigo as well and likewise I've been getting worse everyday as well it's not a nice feeling
    • sonia1215
      sonia1215 Aza1990

      Posted

      Yes several years ago I had a very bad attack of vertigo. I had nausea,vomiting and couldn't walk because my feet couldn't find the ground. I initially thought I'd had a stroke. Been on medication for it every since.
    • Aza1990
      Aza1990 sonia1215

      Posted

      So it does get a lot worse is the medication even helping because I start my medication in December still deciding which one to go for any suggestions?
    • sonia1215
      sonia1215 Aza1990

      Posted

      I've been on Avonex 3 months. New symptoms crop up regularly so I don't think it's working.
    • Aza1990
      Aza1990 sonia1215

      Posted

      Did any of your problems go away or did they stay with you cuz that's my problem nothing has got better I start medication next month and have been told nothing will get better
    • sonia1215
      sonia1215 Aza1990

      Posted

      The medication doesn't repair damage already done. It is supposed to help keep done rhe possibility of more. I don't know if that's happening. This is a hard disease to battle. I'm still developing more symptoms.
    • Aza1990
      Aza1990 sonia1215

      Posted

      It sucks having MS I don't know how mine happened did you have to have a lumbar punch or anything it's been well over 3 years since I got diagnosed
    • sonia1215
      sonia1215 Aza1990

      Posted

      I waited 15 years for dx. In 2000 I had an MRI of my brain. I've had many problems over the years. Most of it goes back to MS. I had an MRI of my spine that is what finally led to my dx. Just about everything that has happened to me over the last 15 years stems back to that.
    • Aza1990
      Aza1990 sonia1215

      Posted

      Are you able to work with the symptoms because I sure can't
    • sonia1215
      sonia1215 Aza1990

      Posted

      I haven't worked in about 4 years. I was hit by a car then dxd with colorectal cancer. The MS dx was the last of many. I've had pneumonia a number of times which I also attribute to the MS now. June 12th 2014 I was on life support for 7 days. Disability came through for me 2 years ago this month. I'd love to work again but who would deal with my bad days. The Avonex side effects keep me down for about 2 days.
    • Aza1990
      Aza1990 sonia1215

      Posted

      Sorry to hear you have a lot going on hope they eventually get you on the medication will help
    • sonia1215
      sonia1215 Aza1990

      Posted

      We'll see. There's a lot going on with MS research so hopefully they will find something.
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