Surgery or radioiodine treatment?
Posted , 5 users are following.
I have been diagnosed with graves, hyper and a goitre and am currently on 10mg of carbizamol
which seems to be keeping levels in check.
The specialist has recommended radioiodine but I'm not keen, the other suggested option is surgery but I don't feel like I should go for this if specialist thinks rai is best option as they should know best???? He has told me to think about both options and let him know what decide.
I had partial thyroidectomy in 1995 so this surgery will result in total loss of thyroid and hypo but have been told will be hypo with rai so no difference!
Has anyone else be faced with these options and what did you choose and what was outcome?
0 likes, 15 replies
Screwball21
Posted
Ladykinkavel
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Ziggyluv Ladykinkavel
Posted
Ladykinkavel... Your body can attack your thyroid and destroy it (eat it up) I just came back from my doctor, today in fact. I continually fluctuate between hypo and hyper. She just told me she suspects I will have to radiate my thyroid. I have hashimoto's. She told me she herself had a scan oh get thyroid done once and then several years later had it again and her body has attached and absorbed it. When you have an auto immune disorder like Hashi's, your body attacks the thyroid. That's what I'm assuming Nikki meant.
I'm reading through this forum to try figure out what the best option is... To radiate or remove...
nikki85100
Posted
Last time it was just a goitre, no graves or hyper.
Staying on carbimazole wasn't an option he gave me! I thought that staying on this long term wasn't an option. It amazes me that people are told such conflicting things, no wonder there is so much confusion!
If I could safely stay on tablets I would but I think because of toxic multi nodular goitre they need to do something.
Just not sure which option to choose.
Ladykinkavel
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linda187
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The medical profession in North America is very RAI/surgery oriented, even when there is no indication to go this route, i.e. medication controls the disease. From the patients I hear who have had RAI, I never hear thear that they return to normal or baseline (before they were diagnosed with thyroid disease). Most all complain that the T4 replacement they take does not make them feel normal, they have problems with weight gain, tiredness and feeling cold.
Holistic treatments such as Reiki, stress management techniques are always very healing and at least not harmful.
What helped my Graves disease was the addition of acetyl-L-carnitine to my medication of Tapazole. It made the Tapazole do its job better. As well, I had to deal with the stressful situation that I believe triggered my Graves.
Screwball21
Posted
I was interested in Ladykinkavel's comment on the immune system not destroying the Immune system. When I was diagnosed as being hyperthyroid I purchased a prepaid prescription card, but when I went to get my first set of meds, even the pharmacist questioned whether it was worth it, as she believed I would go hypo within a couple of months when I would be given thyroxine for free. So there is clearly a belief that this will happen although my doctor did confirm that it could actually take several years. So I am really confused now.
I do really worry about RAI though. They say you must stay away from everyone for a couple of weeks. If it is so dangerous for others just coming into contact with us, what can it do to us who have actually consumed this radioactive pill? Sounds pretty scary to me.
linda187
Posted
I only hear of patients who are on high doses of medication having side effects from the meds. The addition of acetyl-L-carnitine will result in a person having to take lower doses of medication. Most doctors are not aware of this. Mine was shocked when he saw the results of the L-carnitine lowering the need for as high a dose of medication.
Ladykinkavel
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linda187
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Linda
Screwball21
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Screwball21
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linda187
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Knowledgeable specialists (and there are not many of them who will go against mainstream medicine) know that to feel normal a combination of T3/T4 is better for patients who no longer have a thyroid. But it is better not to destroy your thyroid unless you have thyroid cancer, in which case that is the only choice for that condition.
For other conditions, we have a choice. I have also learned since working for doctors to become an empowered patient and always do research on my conditions. It has paid off for me.and my health.
Screwball21
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Ladykinkavel
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