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Hello All. I was diagnoised in May 2014 I was original put on 20 mgs Carbimazol. I changed my diet , no gluten took achlyt l caritine and herbs. My blood middle range since Christmas on a daily dose of 1.26mgs. I quartered the pill. I have felt good thehe whole time. Saw end this morning. She suggested I come off it all together. What do you all think. I know I have read here that a gradual reduction is recommended. She seemed to think my dose is homeopathic? What do you all think. Not too sure about stopping suddenly after only 12 months on carbimazol.
All advise readily received.
0 likes, 15 replies
linda187 brightonbreeze
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brightonbreeze linda187
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Sick_is_no_fun brightonbreeze
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fluctuates. So efforts are needed for the rest of the life to keep it down as much as possible.
brightonbreeze Sick_is_no_fun
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linda187 brightonbreeze
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brightonbreeze linda187
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The endo says to not stay on it longer than October, because of the liver. Surely if the dose is homeopathic it shouldn't be effecting the liver. She was very clear about the odds being stacked against me. Made me feel quite depressed and hopeless. Need some renewed faith!!!
linda187 brightonbreeze
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brightonbreeze linda187
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linda187 Sick_is_no_fun
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linda187 brightonbreeze
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brightonbreeze linda187
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Yes I read you say that on other posts. I have followed your advise to the letter.
fern12 brightonbreeze
Posted
It is my opinion, but not necessarily substantiated in the medical community, that the antibodies we produce is somewhat in response to some perceived "illness". In other words, if we feel sick, run down, tired, etc. we will be more likely to produce the auto-immune antibodies than if we feel healthy. For me, going off the methimazole made me feel better, but when I had no way to "decrease" the non-existant dose, I felt worse until I went on Cytomel, the T3 supplement. Then I felt much better, (at extremely small doses--1/8 of a 5 mcg tablet, then gradually incrementing it.) With that treatment my TSH rose from borderline low to the middle of the range. Eventually I added levothyroxine, but the next test my TSH was at zero again, and I was referred to another endocrinologist who had me quit everything. I felt awful again until my PCP put me on Wellbutrin which seemed to take away most of my symptoms. I started Acetyl-L-Carnitine about the same time as the Wellbutrin, about 8-10 months ago, and my TSH levels have been much closer to the middle of the range.
fern12 brightonbreeze
Posted
It is my opinion, but not necessarily substantiated in the medical community, that the antibodies we produce is somewhat in response to some perceived "illness". In other words, if we feel sick, run down, tired, etc. we will be more likely to produce the auto-immune antibodies than if we feel healthy. For me, going off the methimazole made me feel better, but when I had no way to "decrease" the non-existant dose, I felt worse until I went on Cytomel, the T3 supplement. Then I felt much better, (at extremely small doses--1/8 of a 5 mcg tablet, then gradually incrementing it.) With that treatment my TSH rose from borderline low to the middle of the range. Eventually I added levothyroxine, but the next test my TSH was at zero again, and I was referred to another endocrinologist who had me quit everything. I felt awful again until my PCP put me on Wellbutrin which seemed to take away most of my symptoms. I started Acetyl-L-Carnitine about the same time as the Wellbutrin, about 8-10 months ago, and my TSH levels have been much closer to the middle of the range.
fern12
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linda187 fern12
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linda187
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