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  3. Polymyalgia Rheumatica and GCA

Temporal artery biopsy tomorrow!

Posted , 12 users are following.

Susanne_M_UK
Susanne_M_UK

I had a call from St George's Hospital this afternoon, telling me I was booked in for 8am tomorrow morning! Talk about short notice, - maybe they had a cancellation.

So, early start tomorrow, leaving home at 6.15am to be sure we get there on time and don't t stuck traffic like the last time. And time for breakfast in the cafeteria.

Feeling a bit nervous and sick at the thought of it, but at least I won't have days to think about it.

0 likes, 53 replies

53 Replies

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  • lodgerUK_NE
    lodgerUK_NE Susanne_M_UK

    Posted

    Susanne

    How long you been on pred and what dose?

    • Susanne_M_UK
      Susanne_M_UK lodgerUK_NE

      Posted

      Lodger, currently on 37.5mg and have had GCA for about 18 months, but my new rheumy said she wanted it done anyway. She's also booking a PET scan.

      I know it's highly unlikely they will find anything, and so does she, but now trying to cover all bases, as I'm feeling so awful and unable to taper below 30 without major flares.

      It's been the most debilitating time, my life is on hold most of the time.

  • Elijo
    Elijo Susanne_M_UK

    Posted

    Good luck to you!  It's great that you will soon get it over with!  Thke waiting is always the worst.   Elinor
  • EileenH
    EileenH Susanne_M_UK

    Posted

    Good luck - though as you know, I doubt they'll find anything after all this time on pred. Maybe it will make them look at other imaging too.
    • Susanne_M_UK
      Susanne_M_UK EileenH

      Posted

      Thanks Eileen. Yes, I would be surprised too, but will also be using ultrasound, and of course the PET scan coming up soon.
  • tina-uk_cwall
    tina-uk_cwall Susanne_M_UK

    Posted

    Hello Susanne, I know how awful you've been feeling so although like the others I doubt they'll find anything it will be a test that will help them to get to the bottom of things. I wish you all the best, do let us know how you get on.
  • faye______00403
    faye______00403 Susanne_M_UK

    Posted

    You are so right.  I like to get that  kind of stuff over with as soon

    as possible.  Hate things hanging over me to stew and worry aboutl

    Best of luck and hope it all goes well.....

  • lodgerUK_NE
    lodgerUK_NE Susanne_M_UK

    Posted

    All the best, and if necessary you could always ask to see a Vascular Consultant, if all the test your good rheumatologist do not work out.

    Best to talk it over with the rheumy as well. 

  • margaret22251
    margaret22251 Susanne_M_UK

    Posted

    Just back from holiday and seen you mail, i wish you the very best and hope all goes well. Regards Mags.x

     

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