Testing for Cushing's.

I have Cushing disease which is a 1.5mm tumor on the puturity. I went to GP with lots of different symptoms at different times. The one symptom that got me refered was having no periods.after two years of seeing gyno and everyone saying I had pcos I got referred to an endocrinologists and tested.

What you need to do is be referred to a specialist endocrinologist. Write down your symptoms.

Typical symptoms.

Purple stretch mark on adomen

Fat around middle

Hard to loose weigh

Aches in joints

Bruising easily

Round face

Buffalo hump (fat pads by shoulders)

Lack of libido

Red face

Depression

Insominia

Extreme fatigue during day and inability to sleep

Tests.

24 hour urine sample

Saliva test

48 hour dexesomone supression blood test. High and low

Or over a week low and high dex blood test @ 8/9 am (depends on country,lab at times) actch blood and base test.

I only did dex tests twice. Its really hard to test for cushings. It sounds like they have done a base hormone test to see if your base cortisol is high. They need to go this at 12am as well, because this is your lowest time of producing it therefore if high, you are producing too much. The dex test only states where the tumour is. Either the puturity or adrenal. This is needed with the atch.

There is a cycle Cushing which is very rare and hard to catch. It means you have to catch your hormone level when you are on a high. This is easier with urine and saliva test.

Once these tests are indicating cushings, you need mri or ct scan.

Join facebook Cushing forum. You will get lots of support and info.

I hope this hells. It can be a long process getting listened too. Just keep logs of everything and if you have private healthcare use it. GP can be difficult.

Good luck

Georgie x