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Thank You

Posted , 5 users are following.

randal_373
randal_373

Hello All

 Just wanted to say Thank you to all who replyed the other night. I read each reply and gained some info, so many thanks to one an all. Its hard to find people to talk to with this condition. You all seem to be really knowledgeable. I done alot of reading on the Internet when I was 1st diagnosed an scared myself to death.......Went to the Doc with Ton's of question's an he told me I needed to stay off the Internet..............lol. Im the only one in my family that has had this.............No one on my Father or Mothers side that I have been able to find. Im going to ask my Hematoligist to do the JAK2 test again just to take care of my curiosity...........But again...........Thank you all, Im sure Ill have more questions in time.....................Take Care all  smile

0 likes, 3 replies

3 Replies

  • paul250360
    paul250360 randal_373

    Posted

    Hi Randal

    PRV is a pretty rare condition and is not heriditary which is good. l would have hated passing this on to my son or daughter.

    Also from my previous response l neglected to say that apart from my three monthly venisection (Aussie term for phlebotomy) l have a daily aspirin. Nothing too onerous or expensive !

    cheers

  • julia15874
    julia15874 randal_373

    Posted

    Ask him to do both the JAK2 and jak2 exon 12 you can be positive with just one mutation but JAK2 is the most common, it takes around a month to come back so it saves a bit of time and anxiety. Good luck xx
  • keith28441
    keith28441 randal_373

    Posted

    You are very welcome Randal

    Good luck and let us know how things progress.

    Keith

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