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I'm on the max amount of neurontin 1200 mg three times a day, tegretol at 200mg three times a day, butabutal x 2 every four hours for pain and amitryptiline at night. You would think I'd be knocked out but I can't sleep thru it.I have the TN that can go on for hours at a time. It's the worst pain ive ever had. I feel like banging my head into the wall. It rarely eases. Ive tried ice, heat, teas, vitamins, chiropractor. I don't know what else to do. What triggers it? Sugar? Caffeine? Smoking? I need to know. It's keeping me awake at night
I'm crying alot. I can't work. Somebody please give me something to hang onto. I don't see a neurologist until the 9th which seems like a lifetime away. Thank you
2 likes, 10 replies
garrymct2015 Lesliebeall2
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christian95748 Lesliebeall2
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I have atypical facial pain, it is a true nightmare. Been off work for months. Cannot do a thing, just coping with the constant pain. Taking LYRICA at the moment. Feel drunk most of the day but hope it is working eventually. I am a 21 yo male from Austria/Europe. In your case I really would consider balloon surgery! It might be the only way to get final relief.
tanz69 Lesliebeall2
Posted
No one knows what triggers it but I would certaintly try giving up the caffeine, smoking and sugar if you can. Easier said than done when you have nothing else to make you feel better. I agree surgery sounds like the best option. I stopped everything and basically only put healthy things in my mouth and went from there but my pain is nothing compared to what you saying. its trial and error. What worked for me one week never did the next. You on alot of medication so that must be a struggle in itself.
Have you tried to reduce some of your anxiety by listening to mindfulness sessions. Stress really adds to this condition in my case and if you can find some time to just calm yourself mentally and not be so anxious it might help.
Best of luck and you not alone and trust me we all feel your pain through our computer screens.
Roll on the 9th :o)
Valkyrie Lesliebeall2
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garrymct2015 Lesliebeall2
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linda92395 Lesliebeall2
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michael127 Lesliebeall2
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beth97678 Lesliebeall2
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Hope this helps.x Beth
beth97678 Lesliebeall2
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X Beth
christina96841 Lesliebeall2
Posted
I have been on all the drugs, carbamazepine, gabapentin, pregabalin, and amitrypline. I am so fed up, that I have started acupmuncture. I had the first session last week and feel like a different person. I am going for my second session tonight, and can not wait. Fingers crossed!
May be worth pursuing!
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