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Hi everyone,
I am new here, and have a bit of a long story, so apologies in advance for the essay to follow! I am totally confused with my disease, the treatment I have received and my situation, I'm really hoping someone here can help.
I am a 27 y/o female. I was diagnosed in November 2014 (6 months postpartum). I was overactive with symptoms -
TSH: <0.01 (0.3-6)="" ft4:="" 39.1="" (9-24)="" ft3:="" 12="" (3.5="" -="" 6.5)="" anti-tpo:="" 483.8="">0.01><6)
thyroid receptor: 3/l (0-15)
i was immediately placed on carbimazole with a diagnosis of hashimoto's. i then went on to start a block and replace regimen and after several tumultuous months i felt well. just in time for my endo to tell me to cease all medicine at the 18 month mark.
i am now 4 days without any medicine.
the question that keeps cropping up is why did i receive more of a graves-type treatment if i don't have graves? it is apparent that i have hashimoto's probably triggered by pregnancy/childbirth, but nothing to suggest graves. i had no ophthalmology or goitre.
having been without medicine i started to worry about what would happen if i was to relapse, i.e. what way i would go. i asked my endo and he said 'hyper in the short term'. i then asked why if i had hashimoto's? and he said 'antibodies'.
now i am really confused. i am terrified i could have a thyroid storm and it will be fatal.
i am trying to make sense of this but every turn throws me another curveball.
any advice at all appreciated!
thyroid="" receptor:="" 3/l="" (0-15)="" i="" was="" immediately="" placed="" on="" carbimazole="" with="" a="" diagnosis="" of="" hashimoto's.="" i="" then="" went="" on="" to="" start="" a="" block="" and="" replace="" regimen="" and="" after="" several="" tumultuous="" months="" i="" felt="" well.="" just="" in="" time="" for="" my="" endo="" to="" tell="" me="" to="" cease="" all="" medicine="" at="" the="" 18="" month="" mark.="" i="" am="" now="" 4="" days="" without="" any="" medicine.="" the="" question="" that="" keeps="" cropping="" up="" is="" why="" did="" i="" receive="" more="" of="" a="" graves-type="" treatment="" if="" i="" don't="" have="" graves?="" it="" is="" apparent="" that="" i="" have="" hashimoto's="" probably="" triggered="" by="" pregnancy/childbirth,="" but="" nothing="" to="" suggest="" graves.="" i="" had="" no="" ophthalmology="" or="" goitre.="" having="" been="" without="" medicine="" i="" started="" to="" worry="" about="" what="" would="" happen="" if="" i="" was="" to="" relapse,="" i.e.="" what="" way="" i="" would="" go.="" i="" asked="" my="" endo="" and="" he="" said="" 'hyper="" in="" the="" short="" term'.="" i="" then="" asked="" why="" if="" i="" had="" hashimoto's?="" and="" he="" said="" 'antibodies'.="" now="" i="" am="" really="" confused.="" i="" am="" terrified="" i="" could="" have="" a="" thyroid="" storm="" and="" it="" will="" be="" fatal.="" i="" am="" trying="" to="" make="" sense="" of="" this="" but="" every="" turn="" throws="" me="" another="" curveball.="" any="" advice="" at="" all="" appreciated!="">6)
thyroid receptor: 3/l (0-15)
i was immediately placed on carbimazole with a diagnosis of hashimoto's. i then went on to start a block and replace regimen and after several tumultuous months i felt well. just in time for my endo to tell me to cease all medicine at the 18 month mark.
i am now 4 days without any medicine.
the question that keeps cropping up is why did i receive more of a graves-type treatment if i don't have graves? it is apparent that i have hashimoto's probably triggered by pregnancy/childbirth, but nothing to suggest graves. i had no ophthalmology or goitre.
having been without medicine i started to worry about what would happen if i was to relapse, i.e. what way i would go. i asked my endo and he said 'hyper in the short term'. i then asked why if i had hashimoto's? and he said 'antibodies'.
now i am really confused. i am terrified i could have a thyroid storm and it will be fatal.
i am trying to make sense of this but every turn throws me another curveball.
any advice at all appreciated!
>
0 likes, 12 replies
evergreen chloe74955
Posted
chloe74955 evergreen
Posted
However! I had one normal TFT my first month on Carbimazole (Dec 2014) I was then overtly hypothyroid for approx 17 months until about 4 weeks ago when my labs were:
TSH: 3.69 (0.3-6)
FT4: 17.7 (9-24)
evergreen chloe74955
Posted
chloe74955 evergreen
Posted
Would I then be correct in saying that I have been in the hyper stage of Hashimoto's hence this treatment protocol?
If I became hyper again is it likely that I will become hypo before my levels went off the scale in the other direction?
evergreen chloe74955
Posted
chloe74955 evergreen
Posted
I read that withdrawal of medication is a huge precursor for this (if I was to go hyper) and it scared the life out of me. Then I think of all the Graves patients who have obviously done this and gone into remission without storms!
evergreen chloe74955
Posted
chloe74955 evergreen
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evergreen chloe74955
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chloe74955 evergreen
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jane95340 chloe74955
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jane95340
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