Posted , 13 users are following.
I have been suffering with this horrificly painful condition for 1 year 6 months.Ive had physiotherapy steroid injection and a few painkillers is anyone here suffering with the same.It has went away however returned with avengence.Really fed up trying everything worked through the pain for 3 weeks my job involves walking 10 + miles per day any info or self help please is appreciated
0 likes, 31 replies
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patricia40687 bilobiggles
Posted
I know how you feel. My 14 year old daughter has this right now.She also has tried basically everything with no relief. She doesn't go out with friends much, due to she can't walk long distances. She is scheduled in July to have the bursa removed and the inflammation around it taken out, she also is getting her tendon and trochanter bone smoothed out, and reattaching her tendon back to the bone. All the orthopedic surgeons ,chiropractors, and physical therapist that she has seen think this should help. We are hoping for a great outcome because she is miserable with this. If you have tried everything with no relief this might be an option. They told us since it's been so long her bursa and surrounding areas that are inflamed might be too thick and aggravated to go back down. Bursas grow back, so find out the cause to prevent it from returning. They all believe her left glute muscle is weak and not working like it should. She's been doing therapy for months working on getting all her muscles to work the right way, so hopefully she'll have a healthy bursa when it grows back and this problem doesn't start all over. Good luck to you,I hope you find something that works.
bilobiggles patricia40687
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I feel for your daughter they say it is common in adolescents especially girls i see my surgeon in August i will be mentioning an op as ive hung around 2 years nearly taking lots of horse pills injections physio etc so thanks kindly 👍
skellitor patricia40687
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This is really helpful to hear. I've been in physiotherapy for a long time now and had a bad hip problem for about a year longer than that and it's just not going away. My physiotherapist seems totally stumped so this is really informative because I think my problem is quite similar to your daughter's. I have bursitis from snapping hip at my ITB and weak gluteal muscles that is causing all sorts of problems so I have weak, painful, exhausted legs, a tight and painful lower back, and infflammation and sharp pain from the bursitis. It's a nightmare. The only thing that seems to help at all are high dose turmeric supplements, so you might want to look into it for your daughter. Thanks for your comment.
patricia40687 skellitor
Posted
Thanks for your reply. She actually did take high doses of turmeric, it had great reviews. She also tried capsaicin cream, unfortunately neither worked for her. She had surgery July 14, they removed her bursa, cleaned up the area, smoothed out her trochanter bone, got rid of the bone spurs, and cleaned up her tendon. She is recovering now and still no weight bearing on that hip, so we will not know yet if it worked until she gets back to walking. We are hoping for a good outcome. I feel terrible for everybody dealing with this as I've seen her suffer with it. Hopefully you can find something that works for you long term.
tania68783 patricia40687
Posted
Hi
My daughter (15yrs) was diognosed with trochanteric bursitis by her first specialist after looking at MRI images and subjected her with a series of cortisone injections which made it worse. I can't tell you the agony she was in everyday for 3 months.
Our specialist then said sorry I can't fix her. Go to someone else.
So back to the drawing board and found an amazing specialist in Bridbane that took one look at the MRI and asked her to perform certain movements and within 10 mins he then said that her Labral tear even though quite minimal was the core to all her secondary ailments including swelling and bursitis.
She had surgery 10 days ago to mend the tear and she has already a new lease on life.
It's going to be at least 3 months of Physio but she has come leaps and bounds since the surgery.
The specialist did say Trochanteric Bursitis is a term loosely used and generally is secondary to what the core issue is.
I would strongly urge people to get second opinions and find a top orthopedic surgeon that specialises in arthroscopy and sports related issues. Not specialists that deal with hip replacement needs.
I hope this helps.
Stop cortisone and find someone that will listen to you and generally cares.
Kind regards and good luck.
bilobiggles tania68783
Posted
Hi Tania
Im in the UK and have been told under no circumstances will i ever be operated on im due my 2 nd lot of steroid iv on Wednesday I'd prefer not to have surgery however if it would relieve my pain they could go ahead at the monent im actually good and nearly ready to return to work im hoping this is the last time im off up until 1year and a half ago I'd never been off work for 13 years its safe to say this TB has ruined well my livelihood hobbies etc,my fingers are crossed and im so happy right now with little pain so heres hoping and my view on Steroids is pointless ive never heard anyone say they have been effective.....Thanks
patricia40687 tania68783
Posted
I am so glad to hear your daughter has gotten this fixed. These girls are to young to have this. My daughter is a little over three weeks after surgery and is doing great. She has gotten full release from her Dr to resume normal activity. She's already been to the mall twice and out with friends with no pain. She has a tightness in her hip which is improving everyday, with her physical therapy exercises. She's using Bio oil on her scar(the Dr did a great job, not very noticeable) to help fade it and massage scar tissue. They can't say for sure but we think the bone spurs and roughness on her trochanter bone is what was digging into her bursa. Hopefully when new bursa grows back it will be healthy and not a problem, since her bone was smoothed out. Good luck on your daughter's recovery, and I'm so glad you found a Dr who figured it out.
annette_92211 bilobiggles
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bilobiggles annette_92211
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Annette thats me nearly pain free from this ridiculous condition it has cost me 2 months off work hundreds of horrible pains and pills physio.Im due my 2 nd lot of steroids on the 10th then back to work im hoping it doesn't return i asked about surgery for TB in the UK the specialist rolled his eyes so i guess its a no
annette_92211 bilobiggles
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connie1954 bilobiggles
Posted
Hello , I feel so bad for you because I suffered with that too . It is an ugly ugly illness that takes total rest for six months to get rid of and I mean total . I finally broke down and did the only sensible thing and that was to get an orthopedic surgeon to do the surgery arthroscopically . Now life is great and I am so happy I did that . It's been six months , since my left hip was done and still doing some physical therapy but only a few minutes a day . Take care and I hope you get some relief. I had tried all the things you're supposed to do , I used to be in nursing . But there is nothing , that really helps except for anti-inflammatories, naturally and total rest or surgery . Good luck to you . Warm regards
annette_92211 connie1954
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Kind regards
bilobiggles annette_92211
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bilobiggles annette_92211
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bilobiggles annette_92211
Posted
connie1954 annette_92211
Posted
Hi Annette, after trying everything there was I had to opt for the surgeries because I had it on both hips . I found an orthopedic surgeon who does it arthroscopically . It's important that you get a good MRI that shows the hip area so he will know how much you need to take care of . For me I just needed debridement and IT band windowing which is very important to prevent future episodes . It is extremely hard to heal trocanteric bursitis alas you absolutely do nothing and rested including not sitting and getting up and down , which is very hard . Find a surgeon who does it arthroscopically because the downtime is very small . I am doing fantastic now good luck to you. Connie
annette_92211 connie1954
Posted
I have seen one orthopaedic surgeon who said he did not do any surgical treatment for it as it did not work and made it worse. I was devistated. I have been dealing with this for years it started 5 years ago i finally could not cope any more 7 months ago and stopped working ( sickness ) . I have asked for a second opinion and see a different surgeon next month.
I also have muscle wastage in both hips and from the buttocks to the femur. As well as tendinitis in both. I am on morpine patches and gabapentin 600mg 3 times a day.
I am from the UK I dont think the procedure you mention is done over here although i will ask when i see him. Thankyou so much for the information you have given me. I wish you all the very best for the future
connie1954 annette_92211
Posted
Annette, I'm so sorry for what you're going through . I have an injured neck and low back and then was in a car accident which caused the bursitis in both hips . I hope you can find an orthopedic surgeon that does the surgery arthroscopically it's a bursectomy with IT band windowing and debridement . They can do that if you don't have too much arthritis in there but still getting those out was the best thing I ever did and then doing physical therapy I'm still working on my left hip and it's been six months but it's doing really well I can sleep on it now just have to do a little more PT . I wish you all the best.
patricia40687 connie1954
Posted
Thank you everybody for all the advice and information. My 14 year old had the surgery alittle over two weeks ago . She is now full weight bearing and has no more pain when walking, she says hip feels slightly different from right hip but I think she's still healing. For her, surgery was a successful option and we are so happy she's out of pain and can go out and hang out with her friends again without being in so much pain. If this is an option and nothing else had worked, I highly recommend it. Good luck to everybody I hope you can all find relief from this.