Trying to diagnose my symptoms. POTS?
Posted , 3 users are following.
So I have been on here many times because these symptoms I have don't seem to add up. Doctors are unsure. At first they thought Svt. But I don't feel that after reading about it that it best describes me. I try to stand and after several minutes get shakey, breathletes and by about 10 mins my heart shoots up to 180. I lie down immediately and it comes down. Everyone is so quick to say anxiety and yes I will agree I get a bit panicky when all this happens but what I'm dealing with is not normal. I read about POTS and it sounds exactly like what I'm dealing with. Does anyone suffer from this and if so could you explain your symptoms? I'm so lost and basically bedridden for a month now. Thanks
0 likes, 11 replies
poppy08416 shelley_49119
Posted
shelley_49119 poppy08416
Posted
No offence but I'm not really sure how that would apply to me.
poppy08416 shelley_49119
Posted
No offence
poppy08416
Posted
https://healthimpactnews.com/2015/cardiologist-comments-on-new-study-linking-hpv-vaccines-to-pots/
shelley_49119 poppy08416
Posted
I see ok i will check into this. Thank you !!
brandy2222 poppy08416
Posted
Thanks for the link re. the Gardisil side effects. I saw the issues with irregular periods and my daughter can go months without a period. She was vaccinated at 14 years old and has had very irregular periods and fatigue. I'll bring this to her doctors attention because they are trying to get to the root of the fatigue.
brandy2222
Posted
I just read the CDC report and a European studies report. Neither found a causal link between Gardasil and POTS. The prevalence of POTS is extremely low but read the actual stats for yourself http://www.cdc.gov/vaccinesafety/vaccines/hpv/hpv-safety-faqs.html#A6c[/b]
I think that website skewing the actual statistics.
poppy08416 brandy2222
Posted
Not all Drs agree with that.
"Dr. Jesper Mehlsen from Frederiksberg Hospital in Denmark explained that the EMA review was based on register studies with a focus on POTS and CRPS. Dr. Mehlsen pointed out that in some countries, POTS is not registered as a diagnosis.
Dr. Mehlsen, along with an independent researcher, Dr. Karsten Juhl Jorgensen, separately noted that many of the HPV vaccine adverse event reports come from the vaccine manufacturers themselves or those with substantial conflicts of interest, citing the potential for heavy bias. In fact, some of the EMA reviewers of HPV vaccine safety had been involved in the original HPV vaccine clinical trials and investigations. Therefore, they were, in effect, providing oversight on and judging themselves.
Denmark’s skepticism is backed by a number of case reports. Approximately 1,300 females have been referred to five specialist centers in Denmark with symptoms of CRPS or POTS. In particular, the Syncope Unit at Frederiksberg Hospital in Denmark reported 250 women and girls reporting these chronic symptoms within two months of vaccination."
poppy08416
Posted
"In 2015, Japan’s Health Ministry surveyed 1,739 patients who received the HPV vaccine, revealing that 186 of them reported side effects, such as headaches, fatigue and muscle weakness. Further, 135 cases were severe enough to interfere with their daily activities.11 The government health agency determined an “undeniable causal relationship” for 11 of the cases and pay approximately $300 per month in government compensation is paid to each of the 11 HPV vaccine injured girls.12
In November, the private medical supply supervisory group, Medwatcher Japan, hosted a symposium titled, “Problems with the HPV Vaccine,” to further address reports that HPV vaccines are causing severe brain and immune system problems like POTS and CRPS"
poppy08416
Posted
I can't post the link to that but if it's not hard to find. There's a lot of propaganda regarding vaccines so be careful what you believe. The website that's from probably isn't great but the stats they are quoting about Japan are accurate.
brandy2222 shelley_49119
Posted
The definitive test for POTS is the Tilt Table test. It tests your heart rate when you're horizontal and when you're vertical. Not sure where are but here in the USA I had wait about 6 weeks for my test. I don't meet the criteria for POTS based on test but the electrophysiologist sent me for the test because my heart rate is higher when I'm standing than when sitting or lying down.