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TURP FOUND CANCER, WHAT NEXT

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MK51151
MK51151

MY POST TURP RECOVERY AND EXPERIENCEPosted about 14 hours agoI just want to thank everyone who followed and contributed in my earlier discussion " MY BPH EXPERIENCE". 

I had my TURP on June 1, 2016. Procedure went well, in OR less than 2 hours. Got pictures from my urologist with before and after surgery. Stayed overnight in 

hospital. Did not have much pain at all and had 3-way catheter for continius bladder irrigation. Did not bleed much. Next morning urologist came to see me and removed catheter. With voiding trial I did not have much luck. My first PVR was 335 and 2nd PVR went to 425 and I already felt I won't go home without catheter.  Started urinating about every 5-10 minutes very small amounts of urine less or about 100 ml. Nurse checked 3rd time my PVR and it was over 500 ml. Urologist ordered catheter to be inserted and I could be discharged home. Came back home orotund 4 pm on Thursday June 2nd. Dealing with catheter, tubing and bag is different story or better said "pain in the neck" and I dealt with that for 8 days until my appointment with urologist on June 9th. I worked on Saturday June 4th and regularly after that. I am very lucky to have job from home. Sitting was fairly uncomfortable but I managed to work every day 8-9.5 hrs. 

Than, come time to see urologist on June 9th at 3 pm. Went to get my wife from her work place and we headed to urologist office. After I was checked in, was placed in the room and nurse feeled my bladder with about 400 ml of fluid than she removed catheter and left me in the room to urinate. Soon after I was able to empty my bladder very quickly and urinated 500 ml of urine so I passed voiding trial this time.

Minutes later, urologist came in and ask about recovery and how I feel after catheter removal. We talked about procedure and what to expect on the road of recovery.

Than comes huge and unexpected very negative surprise:

Urologist told my wife and I that my patohystological report came back and it is POSITIVE FOR PROSTATE CANCER in one of the prostate chips GLEASON 6 (3+3) 4% T1a. I was speechles for couple of minutes and same was my wife. 

Urologist told us about plan to do biopsy of the prostate but we have to wait at least 3 months until everything heals and scheduled appointment in September to see him again and than we will plan biopsy.

I am still in shock.

i would like to hear if anyone had similar experience.

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9 Replies

  • vincentb
    vincentb MK51151

    Posted

    Sorry to hear about your shock

    Ive been through it myself im 66 years old

    Fit for my age i had no symptems

    Had psa check 18 .6

    So started the journy

    Digital rectal exam

    Small lump

    Biopsy of prostrate 12 samples

    Cancer T2 gleason 6

    Eventualy dicided on

    Radical open non nerve sparing

    After surgary tests on the tumour

    T2c gleason 9

    Its now 4 months after

    Every thing was good prostate seminal vesicles lymph nodes removed clear margins

    Had catheter on for 2 weeks

    Now useing pads or uridoms with leg bag

    MY PSA NOW 0.050 i feel like ive had a miracle back scuba diving now

    Hope you have as much good luck as me

    Al the best vin

  • martin30348
    martin30348 MK51151

    Posted

    Explore all your options. Start doing research on all options available. Look into clinical trials. You are a fighter and you will win!
  • vincentb
    vincentb MK51151

    Posted

    Thats the worst bit waiting to have all the tests done DRG ,BIOPSY , MRI, XRAY,

    Full body nuclear bone scan. It all takes time.also in my case i went to six different hospitals for the tests .try to not get to upset and go with the flow.it will only make you feel badif you do.in my case i think i was ok

    Even so i cryed uncontrolably quit a few

    Times i seemed to know when it w

  • john47646
    john47646 MK51151

    Posted

    no one really ansered my question last week I had a psa of 13 so my urologist   did a biopsy the gleeson score came bace as 7  3 years ago my psa wa 7 and the biopsy came back as negative  but the last one has come back as the test with 16 neddles came back showinf a gleesin score of 7, i really don't understant it all today i had a bone scan and I see the urologist next week for the results.  I have 2 friends who have had prostate cancer one had radio therapy 3 years ago and his psa level went down and he is doing well    The other friend had his peostate removed ans is also doing well.  My oncolongist told me last week that if i have radiotherapy  if it dosen't wort I am unable to have surgery afterwaeds ie have the prostate removed   Is this true I have heard different storye am now confused on what the specialist  treatment offers me next week depending on the results on the bone scan i suppose any advice would be really appreciated    
    • james_74169
      james_74169 john47646

      Posted

      Hi John

       I am new to this site ,just now started an account.  I too have prostrate cancer but mine is advanced. I have had all the test you have had. My gleesin scpre was also 7 and my psa of over 50 , I think , i had it 1 1/2 years ago. My uro has put me on hermone therapy. It's very expensive and has a lot of side effects. CHECK IT OUT AS AN OPTION. I am having a lot of urinating problems . Just got out of a 1o day day for an infection and blockage. Had to wear a cath fo all that time. The doctor who attended me while I was in hospital brought up the testie removal. He said it is a one time shot to help slow down or quiet the reproduction of testosterone. I am not sure I like having my balls cut off. I have HD and have for 2 years now. Think about it carefully you can't sow them back on once they are gone. In my case I just might because mt parts down there are no good to me anymore and if I can be with my wofe a little longer then why not.

       

  • MK51151
    MK51151

    Posted

    Just to add new findings: Had biopsy on Aug 11th which showed 1 of 12 cores positive Gleason 7b (4+3). My urologist mentioned this One is way more aggressive than Gleason 6 especially that mine is now 4+3= 7b and behaves more like dominant pattern 4. He explained all options and mentioned consult with medical and radiation oncologist which I declined. I am interested in prostate removal and getting rid of Ca. My uro performs robotic assisted laparoscopic surgery and I will proceed with that.

    Have to wait 6-8 weeks after biopsy to schedule surgical removal of prostate.

     

    • james_74169
      james_74169 MK51151

      Posted

      Gud luck with your procedure . I am researching all I can on an Orchiectomy procedure. It sounds ok and will help lower testosterone levels quickly and then I can get off this hormone therapy which I hate the side effects. 
    • james_74169
      james_74169 MK51151

      Posted

      I also have a glesson of 7 and my tPSA is 56.43. My PC has spread to my bones and doctor said my prostate is huge. My urologists said I only have two options . One is harmone therapy of full castration. Just went to doctors yesterday. Since he is the only one in my city I am going to another city for a second opinion next week. He is also pushing more far castration. I don't like that idea unless last resort to add a few years to my life. I was thinking of have castration next month but after my visit I m not sure I want him doing anything to me.

       

    • MK51151
      MK51151 james_74169

      Posted

      James,

      i know you want victory over your Ca and you will win. Do what ever is necessary to bit the Ca. Sometimes, price is high, but victory is even sweeter. 

      I elected to proceed with surgery for prostate removal and I am scheduled for November 2nd.

      My priorities are: 1. Get rid of prostate Ca

      2. Recover my continence in 2-3 months,

      3. Recover my erectile function and start enjoying sex in les than 12 months.

      I know, this all is achievable and I will work toward achieving my goals.

      Best luck to you whatever you choose.

      MK

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