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Update....

Posted , 6 users are following.

terri59470
terri59470

Hi all, as the title suggests, I have a litte more information than the last time I posted - but not much!

I saw my Consultants' Registrar today - had a REALLY long chat with her, and came away at least not thinking that Im cracking up or overstating my pain....

Top and bottom of it, Ive got to have a full Bone Scan done, to try and identify where exactly the severe pain that im experiencing (nearly 15 months post-op) is coming from. She's sure its not coming from the cyst that I have, so thats pretty much ruled out and wont need to be removed, yay!

However....Theres a good possibility of early loosening of the prosthesis. Which is NOT good news. If it turns out thats the cause, then it will need a revision surgery. Which wouldnt be carried out by my surgeon, but more of a specialist one. And Ive been told they always recommend a second opinion when things reach that stage. 

Another possibility is deterioration of my kneecap (it wasnt "resurfaced" durng surgery). Im slightly more inclined to lean towards this reason, but what do I know? My Registrar actually spoke to my Surgeon a couple of times during my appointment, just to reassure me that he was in full agreement with what treatment she planned, and apparantly he was adamant that I shouldnt be experiencing anywhere near this level of pain at this stage in my recovery, and that a bone scan was indeed a vital diagnostic for me. 

So its another waiting game, both for the appointment for the bone scan and then the follow up appointment which isnt till July 25 th......I had originally booked it for July 11th, but Hubby has had to tell me hes planned "something" for my 50th birthday and I wont be here on that date - excting or what?! razz

So, another of my posts has turned into War and Peace - sorry - but I bet youre all used to me  by now redface

Thanks for reading and I hope youre all doing well xx

1 like, 9 replies

9 Replies

  • mary_ann60812
    mary_ann60812 terri59470

    Posted

    Oh Terri you must be so sick of this...along with scared, anxious, etc. I feel so bad for those of you who are having such problems with something that was supposed to make life so much better. It's not fair, but you can't even go there. Please keep us all posted , we want to hear of a good outcome whatever it takes. Take care and God bless !

    Mary Ann

    • terri59470
      terri59470 mary_ann60812

      Posted

      Thanks Mary Ann, you're right. Scared, anxious, concerned that all the tests won't give a definitive answer and I'll just have to live with it....it's been a long road so far and I'd expected to be at a much better place in my recovery by now, but as you say, we can't go there - it is what it is, and ill just have to keep pushing onwards for now.

      On a brighter note, it's an absolutely beautiful sunny morning here in the UK, so I think some time in a garden lounger is on the cards this afternoon.

      Thanks for your kind words and wishes, I don't know where I'd be without the support of this group xx

  • susan78342
    susan78342 terri59470

    Posted

    Best wishes on getting this resolved! Was there any evidence (x-ray or otherwise) that the prosthesis had loosened?
    • terri59470
      terri59470 susan78342

      Posted

      Hi Susan, there was "something" on the x-rays that "could" be showing loosening, but apparently an x-Ray isn't ever so useful in diagnosing this kind of thing - there's no real evidence of misalignment, but there's something between the tibia and the prosthetic, which may be newly growing bone, which in turn could indicate loosening. It's all a bit vague at the moment, and that's why they think the bone scan is the best option for me, as it will hopefully give more information.

  • hilary76715
    hilary76715 terri59470

    Posted

    Hi not on yr own I had the same after normal progress.! Had a fall..fracture then terrible pain on standing n mobilising.prosthesis was loose n had revision surgery last week.up to now going ok with v.little pain so fingers x for you as it's long recovery x
    • terri59470
      terri59470 hilary76715

      Posted

      Thanks Hilary, how awful to have had a fracture and then end up having to get a revision....I hope your (so far) pain free recovery continues  to go well and youre soon up and back to your "old" self xx
  • shelley1963
    shelley1963 terri59470

    Posted

    Hi Terri

    I know how you feel.  I too have had something similar.  I had a  right TKR back in November 2014 and then a year later last November pain started in the left hand side of the new knee.  I saw the Registrar who said the Xray was fine but he referred me for a bone scan which two months later I finally got the results.  He too mentioned possible early loosening of the prosthesis and the possibility of a revision but the scan and x ray didn't show this fully.  So,  I have decided to wait another six months to see how it goes and have it x rayed again then, really don't fancy the idea of a revision as I understand its more invasive that the original TKR and that was bad enough. Only trouble now is that the bone scan showed up degeneration of the left knee, right hip and shoulders with osteoarthritis so looking like I could be totally bionic at the way I am going (had a new left hip too in 2008). Metal Mickey eat your heart out!

    Hope you get it sorted x

    • terri59470
      terri59470 shelley1963

      Posted

      Thanks for sharing your experience with me Shelley, I dont know about you but Id started to wonder if I was losing the plot and imagining things! I dont think Ill have the answers any time soon, but at least ive started the process off.....the Registrar I spoke to yesterday was talking about the actual process of revision, and I said to her I understood that its no walk in the park - after all the original mechanism is cemented in, its got to come out somehow.....not a procedure for the faintheatrted, I fear....

      So heres to us, watching, waiting, hoping for the best....

      Good luck with everything xx

    • hilary76715
      hilary76715 terri59470

      Posted

      Terri.

      I had revision surgery last week and was terrified of the op and the pain to follow. compared to the original TKR it's been a walk in the park.discomfort is moderate and I have had full sleep at night.its a long road but I am on it now..have faith in yr surgeon.The original op was filled with pain n agony n no sleep so all that worrying for nothing!!

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