Urine smell

Posted , 9 users are following.

I have had PMR since Dec 2013. It disappeared in August 2015 and returned 2 months later. I am now on 10mg Prednisolone. I recently seen my GP re a bladder irritation which makes me pass urine three or four times a night. Have also had some burning when passing water. Have taken Potassiumj Citrate for  suspected Asceptic Cystitus. However, have experienced a sweet sickly smell from my urine and it seems to exude from my body as well  It is a problem connected to my bladder. My GP seems unconcerned. and recommends lots of fluids. Has nayone lese experienced this? .

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11 Replies

  • Posted

    I developed what i thought was BO with PMR that didn't respond to using deodorants - so I stopped using them for some time. Now I haven't used deodorants for years I have no problem at all so I think, in retrospect, it may have been the PMR. I know I've heard others comment they noticed a strange body/urine smell - but what it is I have no idea and I've never heard any of the doctors I work with mention it. The irritable bladder thing is common enough - we used to say we should have taken out shares in Tena! It does improve though!

  • Posted

    Hi Gillian, I went to my Rheum. yesterday, I took a urine sample and he said I had an infection, I have had no burning or irritation and he gave me antibiotics. I have also noticed a sickly smell which was worse with a higher dose of prednisolone, and a sort of sour smellof perspiration.
  • Posted

    Hmm interesting. I have had PMR since late 2013 and like you finally got off Pred in 2015 but it has flared up again and am currently on 20mg having got down to 5mg but had to resume a higher dose as my pain returned. However, I have suffered from virtually constant UTIs since 2014 although always been a bit suseptible to them. I was given a massive dose of e-coli in hospital, developing three days after a sigmoidoscopy (hospitals are dangerous places!) The only antibiotic I can take is Cefalexin but always the UTI returns about a week or so after stopping the antibiotic. It i a nightmare. I wonder if there is a connection between PMR and UTI? For anyone reading this who suffers as I do, I can say that there are several things that help. Drinking as near as possible to 2 litres a day is vital. The next thing I have found that helps me to live with e-coli, is Opti-Bac Probiotics for Women (specifically for that area of the body). I take one in the evening and one in the morning. My specialist tried an operation three months ago - urethral dilation - and it has certainly helped. I have only had one bout of UTI since the op. In terms of odour, there is alway an odour when UTI is present, but I have not noticed a sweet smell to do with Pred.
    • Posted

      I don't think it is as simple as just UTIs - I, too, found a urethral stretch helped a lot but I had already had one years before PMR. At the time I was told the urethra was very narrow - which tends to encourage incomplete emptying of the bladder and the result is what appears to be a UTI though it isn't a real one. Then the poor muscle function that comes with PMR probably exacerbates things. 

  • Posted

    From Dr Google:

    "Sweet-smelling urine typically indicates the presence of sugar or glucose. Of course, having diabetes increases the chances of spilling glucose into the urine if blood glucose levels are too high. The kidneys will make their best effort to get rid of excess glucose once blood glucose levels climb above 180 mg/d"

  • Posted

    I also had that terrible smell from my urine.  Eventually, developed a bladder infection. Doctor told me because of muscle weakness with PMR that I was not emptying my bladder completely. So now, I take my time & relax so I can empty my bladder as much as possible. Have not had any problems since.

  • Posted

    Have you been tested recently for diabetes and kidney function? Are you on any vitamins that could be causing the urine odour? Any new foods? eg when you eat asparagus the urine smells weird.
    • Posted

      I do not have diabetes. Am not on any vitamins. I know about the asparagus odour. I cannot think of any new foods either. I think it is to do with the bladder - I try to keep hydrated. I have only suffered one bout of infection which happened after coming off the prednisolone in February.

      Thanks for your help

      G

  • Posted

    I would have liked to answer you in a PM but I don't see how to do it so here goes: after menopause some of us suffer from urethral atrophy from decreased estrogen. I also had that problem helped somewhat by "stretching" but the urologist said to consult my gyn about topical estrogen to that spot. He said it was from low estrogen levels. This I did and at 74 I never have that problem with regular use of the prescribed remedy.

    • Posted

      To send a message on this forum you click on the silver grey envelope below someone's avatar.

      Don't think my urethral problems were due to low oestrogen - it was first identified just after my second daughter was born!!!

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