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Does any one out there have vulvodynia pluse herpes2? I am interested in your insight and experience.
I got the dreaded vulvodynia diagnosis recently and i wonder if its herpes related.
I have chronic nerve pain in the vulva area. It feels like yeast or bacteria burning but i am negative for everything except hsv2. It sort of moves around, sometimes its the labia, sometimes the vaginal opening.
I am told its nerve damage (vulvodynia) from chronic infections.
I dont know how long i have had hsv2 but i suspect a long time. I have either never had an outbreak or i get internal lesions only. I have never had a bump or lesion, but was diagnosed by blood test.I cant help but wonder if the vulvodynia is an atypical expression of hsv since they are both nerve disorders
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jacqueline05484 ouch109
Posted
20 years ago I was diagnosed with Vulvodynia. I had had Herpes Simplex II for many years at the time. The Vulvodynia just means vulvar pain of which no cause can be identified. Many years later treating with other specialists I was diagnosed with Interstitial Cystitis, that being the cause of my pain. I had to sit on a donut cushion at work and in my car, I sitz bathed 3 times a day for releif (temporary) and finally had Laser surgery to my entire vulva, inside my urethra. I had 2 surgeries 6 months apart and was on tricyclic antidepressants that would tell my brain I wasn't feeling such pain. I am tolerable now but the least little upset in the vaginal, vulvar or bladder region will make me hurt like I did in the beginning. It all started after having intercourse after no being sexually active for 4 years. Hope this helps.
ouch109
Posted
It does help as i try to put these pieces together.
I have been reading about post herpetic neuralga.
It typically follows shingles, but it seems like the concept of nerve pain following a herpitic outbreak ought to translate. In shingles it apoears to resolve after a few months.
I hope that is the case for me
jacqueline05484 ouch109
Posted
jacqueline05484 ouch109
Posted
amanda59745 ouch109
Posted
shelley13670 amanda59745
Posted
magaly36971 ouch109
Posted
I also have HSV2 and 5 months after being diagnosed I started having symptoms like burning, stinging , irritation, itching around my vaginal opening . I was tested for everything else which came back negative everytime. These symptoms fluctuate from really mild to more intense and im able to have sex but i feel the burning and all that after even when using lube . I have seen a few gynocologists who all have seemed pretty clueless about it , it was my gp who told me about vulvodynia and said its nerve damage or hypersensitive nerves . She prescribed amitrypteline pills but I never really took them or gave them a chance just bc I was skeptical but now I wish i wouldve given it a real chance . My discomfort is also usually more on the left side of my vulva which is also strange . I also started experiencing discomfort in my anal area , dealt with hemorrhoids for the first time , stinging and itching in that area ... just over all a mess in my genitals. I did end up getting pregnant so im not doing anything at this time n just kinda dealing with it the best i can but as soon as baby is born I wanna get aggressive with treatment for it . I just wanna feel normal again im so sick of the irritation specially after sex !!!
Also i wanna add I took orthotricyclen lo bc pills since from age 18 -31 so im not sure if that also has something to do with the vulvodynia .
I think one of the most difficult parts of having HSV n vulvodynia is differentiating the difference between HSV related symptoms of prodome symptoms or just vulvodynia symptoms . I take valtrex daily for that reason . I pray u find relief . This s**t is horrible . I sometimes wish i had any other disease instead of this nobody understands the toll it takes on a woman mentally , physically and emotionally .
gemma54598 ouch109
Posted
i had to reply to this post as everything you are describing is what i going through now . HSV diagnosis over 12 years ago with out many outbreaks but im convinced o have nerve damage. i was treated for VIN 3 five years go so now any twinge or sensation i get, ive been convinced thats coming back. the "pain" can be anywhere on my vulva from the clitoris to the anus and sometimes its not a true pain it can be a feeling of cold, stabbing, burning, itch and even my pubic bone can feel bruised.
ive been resarching the pudendal nerve which is what i believe is causing the irritation currently waiting for my gyno to confirm thr VIN isnt back before i request a visit to another specialist .
please let us know how you get on! x
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