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what diet to follow for lichen sclerosus?

Posted , 12 users are following.

soso86525
soso86525

Hello everyone,

I would like to start to follow and diet which can reduce my current flare up and any future issues with ls but my problem is that I am nearly underweight and I have heard that a lot of these diets make you lose weight.

Does anyone have any suitable suggestions for a diet that will not make you lose any or too much weight?

Thank you.

Also, my gyno refuses to do a biopsy to make sure that it is lichen sclerosus so I self diagnosed it myself sort of. I am also applying betnovate at the moment and I am wondering how long it takes for this to work?

1 like, 22 replies

22 Replies

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  • alison54950
    alison54950 soso86525

    Posted

    If I was you I would ask for second opinion, especially if you are seeing signs and symptoms of LS!
    • soso86525
      soso86525 alison54950

      Posted

      There are white plaques and I have told him that they are spreading but he seems to be adament on believing that it's due to some kind of irritation or allergic reaction. 
  • karen41728
    karen41728 soso86525

    Posted

    Hi soso

    Where do you have LS I seem to think sugar aggravates it and dairy.

    Have you ever had an abnormal smear test only some hydrocortisone creme can activate hpv, but definitely eliminate sugar

    • soso86525
      soso86525 karen41728

      Posted

      I have it on my vulva and no I have never had any smear test as I am only 18. 
  • claire12259
    claire12259 soso86525

    Posted

    Hiya

    Cut out dairy, wheat/gluten and sugar including natural sugar.  There are plenty of dairy free/gluten free options in supermarkets so you shouldn't lose weight at all.  Good luck! X

    • claire12259
      claire12259 soso86525

      Posted

      Hi soso 

      thought you you would be interested to know - I went to see my doctor today who is a specialist in LS/vulvar problems. I told her that I don't use the steroid cream anymore (or anything topically) and have just changed my diet (no sugar/dairy/gluten) and she was very pleased that my LS has gone completely into remission. She said there is a link with autoimmune diseases and food and I should just carry on doing what I am doing and discharged me completely. I don't even need to go for an annual check up! If you google dairy and sugar you will see that they are both hugely inflammatory to the body. Give it a go - you have nothing to loose. I think it took probably 3-4 weeks before I saw a difference. I do think we are all different tho and have LS for different reasons and you have to try different things to see what works for you. I really hope you find out what will help you very soon so you can control it and not the other way round!!! XXX

    • ashley03204
      ashley03204 claire12259

      Posted

      Hello,

      ​Are fruit sugars okay (from whole fruits)? Or do you cut out sugar completely?

      Thanks..

    • kathleen65757
      kathleen65757 ashley03204

      Posted

      Whole fruit and vegetables are extremely important to keep in the diet. 

      I am fine with the natural sugars found in fruit and I am a diabetic.

      The enemy foods are processed ones and cakes and biscuits etc.

      Real food is what our bodies crave. 

    • hanny32508
      hanny32508 kathleen65757

      Posted

      Same here Kathleen, real foods.  Leave all the processed out.  It's the added sugar, the gluten, alcohol and caffeine I have to leave out as well.  Limited dairy.  

  • matlor
    matlor soso86525

    Posted

    Hi just to say I have self diagnosed whilst I wait for a consultants appointment and have started treatment as well. This would interfere with the bipsy results but as I heard that they do not always do a biopsy but see if it responds to treatment of Betnovate. So that is what I am doing and it does seem to be more comfortable after a couple of weeks.

    I thought about diet but I do not want to lose weight either. I tend to eat healthily anyway and have always avoided strict elimination diets because it is so difficult to be sure of the results. I may look into it further though and see if there is any science behind it. Lots of useful info on the management of it in other forums.

     

    • soso86525
      soso86525 matlor

      Posted

      I am using betnovate, which my gyno has prescribed but it looks like it is making things worse. The plaques are getting bigger and I did tell him so but he keeps telling me to continue using it. 
  • kathleen65757
    kathleen65757 soso86525

    Posted

    I would insist on having it properly diagnosed so you are on the right track.

    With the diet I would eat well considering your low weight such as full cream milk, butter, cheese, meat with fat still on, lot of fruit and vegetables and even some chocolate. 

    When my grandson was underweight my daughter was told to give him cream as well. Bread as well except white bread because to get it white they use a nasty chemical, bleach.

    I have never found any connection to food but I do suspect autoimmune as I have several of those. My specialists have advised no food connections and they are a research hospital.

    I do avoid sugar as I am a diabetic. Also, I have crohns so I have enough to balance with that as well.

    Everyone should have a healthy diet for the most part anyway.

    NowI have been diagnosed with osteoporosis especially in the back so putting everything into perspective there are worse things than LS once you get good at managing it which takes a while.

    • kathleen65757
      kathleen65757 soso86525

      Posted

      All the more reason for a diagnosis as then the actual cause can be addressed. All the best soso86525!
    • matlor
      matlor kathleen65757

      Posted

      Yes it is difficult to get everything in perspective especially when young but as we age we accept things start going wrong with our bodies. The awful photos that can be seen are frightening but that is worst case senario most probably untreated for years and there are many around with controlled symptoms and deformity but they would not warrant a photograph.

      I am always hesitant to try faddy diets and only if there is scientific evidence  would I consider it. The same with lotions and potions as I was tempted with my sons eczema to try everything to get relief but you have to be systematic and only try one change at a time. Also give it time to work unless there was an obvious allergic reaction..

      These chronic conditions do take time to get on top of them.

    • kathleen65757
      kathleen65757 matlor

      Posted

      I could not agree more. I use the ointment prescribed and the moisturiser prescribed by my specialists. I do not touch my diet except to address my conditions which include osteoporosis which needs calcium so dairy is necessary as well as some other vitamins like D. I am not dairy intolerant thankfully and K2 is in there which also helps the osteoporosis. I have enough to balance with diabetes and crohns without starting to eliminate vital nutrients. I am more concerned with having a balanced and nutritious rich diet. 

      LS is not the worst thing I have but I am careful to keep it under control which is easily doable with Advsntan fatty ointment used most days.

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