1. Community
  2. Eyes
  3. Blepharitis

What should I add to my treatment?

Posted , 7 users are following.

rita02437
rita02437

I am new to this website. Was diagnosed with bleph 3 months ago.

Mine is probably not too offensive, No crusting or flaking but eyes are very sore and the eyelids  painful. I clean eyes with baby shampoo. After washing my face I wipe it with paper towels to void reinfection. I take Omega3 2000mg plus evening primrose and multivitamins.

I've been always appearance oriented. So not wearing eye make up is upsetting. My eye doctor who is also an eye surgeon stated that bleph

is not CURABLE but could be controled. Forgot to say I am also using erythromicin ointment. 

The only relief I get is from very warm compresses. I warm up a small bag with flaxseed in a microwave for 1 min. then I put it on the plastic bag that cover compress. It gives me entire 15 min. of a very warm compress.

When I miss a day of compress I am miserable. 

What  am I doing wrong or what should be added ?

Any suggestion will be appreciated.

0 likes, 26 replies

26 Replies

Next
  • dawn90509
    dawn90509 rita02437

    Posted

    I tried using manuka honey and after 6 months had two eye doctors tell me they see no trace of blepharitis.  The eye doctors do not have a cure, they only manage the disease.  But that does not mean a cure is not out there.  I have absolutely no symptoms and wear eye makeup.
    • rita02437
      rita02437 dawn90509

      Posted

      Manuka honey? Internally or on th lids?

      Thank you for the response.

    • dawn90509
      dawn90509 rita02437

      Posted

      Hi Rita,

      I use it on the lids and let it go into the eyes......If you go to Blepharitis discussions on this site.....scroll down until you see "Using Manuka Honey to Cure Blepharitis?" Read that discussion.  I go into detail.  Also, I ordered Nail Tees by Fran Wilson on Amazon for application instead of using q-tips.  It made application easier.  If you cannot find the discussion or need help in any way, let me know.  Dawn

    • rita02437
      rita02437 dawn90509

      Posted

      Dear Dawn, 

      This site is full of  the kindest people.So many responses.

      All of you  are my dear friends.

      I send my love to  all of you.

  • fiona51388
    fiona51388 rita02437

    Posted

    Hi Rita, I think as you are relatiely new to bleph, I myself have had it just three years, so still something of a nube,its important to get it under control as soon as possible, so you may like to try an anti histamine such as cetrizine, 30g daily, obviously speak to your specialist about this if unsure but I find them invaluable, they take off about a good 65% of my symptoms, and also blephagel, the GEL rather than blephasol is so extremely cooling applied generously whenever I have a flare, that I don't know where I'd be without it, try to leave a lot of the gel in and around the eye for as long as you can bear without wiping with a tissue, then it will really do its job and thirdly, and I now use this nightly, lacrilube ointment, along the edges just inside the eye, best nightly as it does blur the vision somewhat being an ointment, is also having great long term benefits.

    The only other advice I can give is that sometimes less is more and to scrub away at this complaint "cavalier fashion" does more harm than good, it can really be counter productive and damage the layers of the tissue you are desperately coping with, if you get my drift, so gently does it with any routine, hope this helps, Fiona

    • fiona51388
      fiona51388

      Posted

      PS  I forgot to say, that with the cetrizine and the blephaGEL and lacrilube my symptoms generally are down about 80%, no exageration, and flare ups are reduced by about 75%, so obviously I can't claim its gone and conversely I've had doctors tell me they can't see any bleph in my eyes but it very much depends when they actually see you, but I know I still have it, just with my particular routine, drastically reduced so worth thinking about trying some of it, I feel.

    • rita02437
      rita02437 fiona51388

      Posted

      Thank you, dear Fiona for the response to me and other entries on this sight. I will certainly follow your advice  coming  from your long experience: three years!!! That's a very long time. 

       

    • rita02437
      rita02437 fiona51388

      Posted

      My Dear Fiona,

      This is not to undermine your input on Citerizene.

      We are all biologically different. What works for you might not work for me.

      My eye doctor declined prescription of Cetirizine. She indicated that  any anti-histamine dries out eyes. 

      However I will still try Claritin.

    • fiona51388
      fiona51388 rita02437

      Posted

      Hi Rita, don't get me wrong, I don't find it dries my eyes and can't help but think you should have been given the opportunity to at least try cetrazine for yourself before making a decision, basically when my bleph is in full flow my eyes STREAM constantly so even if it does dry them surely that can only be a good thing in a way?

    • pamela48771
      pamela48771 rita02437

      Posted

      I take fexafenadine which is a stronger antihistamine than cetirizine, which I'd been taking for years for rhinitis, and my eyes are fine with it. At the moment it is colder here than other winters we have had recently so it's extra warm in the house with the central heating which is drying and any shop or indoor public place. You can get cetirizine over the counter in the UK. If you can buy an antihistamine ver the counter where you live just try it yourself. Nearly all of my effective eye care routine is down to what I have evolved for myself by trying tips I've received from other sufferers. 

      Only you you know how big a problem eye dryness is for you. 

      Bleph is affcted by the environment, heat, cold, wind, humidity etc and lots of other elements - everyone is different.

      not only has the high dose of omega3 which I take has helped with the redness and information, my eyes do not burn with dryness any more. Check out on line the effect omega3 has against omega6 in the eyes. From memory I think it counteracts the solidification of the oils thus enabling the eye to be better lubricated. Look for the clinical trial using 6,000mgs omega3 in bleph sufferers. X

       

    • fiona51388
      fiona51388 rita02437

      Posted

      With my type of blepharitis, and I don't know about anybody else's, they WEEP persistently and consistently, does that clarify things?

    • rita02437
      rita02437 pamela48771

      Posted

      Hello Pamela,

      Many thanks for your detailed response. I won over several deseases but bleph is such a puzzle.I'd love to travel to UK for cetirizine and SHOPPINGlol but can't leave my ill husband.

      I know for sure that Claritin is drying my eyes. I will try other antihistamines. Meanwhile I've read somewhere that dry eyes PARADOXICALLY stream tears. But if you feel better this is the most important orientation.

      This site is our hope.

       

  • tbcjr
    tbcjr rita02437

    Posted

    I do my hot compress with a folded washcloth and hot water. I finish up with an aggressive massage of my eyelashes with the washcloth. Very soothing and if I get a stye I knock it out with minocycline.

    Good luck.

    • fiona51388
      fiona51388 tbcjr

      Posted

      My only thoughts on this is that as you say "aggressive" you could well be knocking out the "good" oils along with the bad, up to you of course.

Back to top
Next

Report or request deletion

Thanks for your help!

We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.