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Wonky wonky wonky

Posted , 4 users are following.

meggailey
meggailey

Hi everyone, was wondering if you could answer a few questions. 

I have congenital scoliosis and I look incredibly wonky, however I understand why this is. Something I don't understand is my hip shapes. I'm guessing they're out of line aswell, as you can see they are. But the left side of my body is completely straight.. no curve or anythingwhere as the right looks normal, with the hip shape. Anyone have any idea why this is? 

thanks meg 

0 likes, 11 replies

11 Replies

  • Becca88
    Becca88 meggailey

    Posted

    My lumbar spine bends towards the left, and as I am led to believe, to relieve pain or bodily imbalance, the muscles in my back tried to straighten my spine, forcing my right hip to stick out 5-6 inches. Sortof confusing, but think of it as me leaning towards the left to subconsciously try and straighten my spine, making my hips totally uneven (my left side is totally straight). So that might be what your body is doing, it is just trying to equalize itself 
    • meggailey
      meggailey Becca88

      Posted

      Your hip shapes sound almost identical to what mine look like. Suppose that does make sense! Thankyou smile x

      Just another thing, as you have scoliosis uourself, do you feel pain? The internet says it doesn't hurt but my god I am always in pain! 

    • Becca88
      Becca88 meggailey

      Posted

      I feel an extreme amount of pain at the base of my spine (where it originates) and then it spreads along my lower back, and on bad days to my tailbone and mid back. I underwent a series of tests to see if I had a tumor, but apparently I don't (even though I have all the symptoms and I have a growth or a hole there--right where the pain originates). So my specialist said I must have some sort of cyst and to leave it at that (I went and found a new specialist because he was rubbish). I have physio excercises I should be doing (but who ever does their physio?), I'm on pain killers and take tylenol/paracetamol twice a day or when needed. And I have a tens machine which really helps the pain.

      Especially if it is your muscles that I trying to 'fix' your back, it can cause ALOT of strain on them, that's what my physiotherapist told me. And because you sortof bend sideways, the muscles on the opposite side are trying to pull the spine to the centre but the muscles on the other side are trying to ease the pain by pulling you more. If that makes sense?

    • Beryl65
      Beryl65 meggailey

      Posted

      My consultant told me that the younger you are the less pain you are in. that is if you were born with the condition, As you get older I am 67 in January and have a very degenerate spine and have suffered terrible pain for the last 5 yrs. I take strong opiates but the only way I can get relief is to lie down with a hotwater bottle on my back and one the front.

      I am having the surgery in January and hope it will help me smile

       

  • elizabeth142
    elizabeth142 meggailey

    Posted

    Oh dear Hun

    I had a diagnosis of scoliosis in my lower back last year. I'm waiting for  a spinal treatment 

    , when they are going to hopefully give me more movement. But I also appear to  have arthritis in my back too.

    Anyway il be glad when I get sorted out.

    But my left leg is 1 cm shorter than my right leg.

    So my shoulders are not sitting right either.

    Have you done a selfie, and see how bad your posture actually looks.

    Look at yourself in a long mirror.

    And see how you stand. 

    😊

    • meggailey
      meggailey elizabeth142

      Posted

      My shoulders are so uneven and wearing fitted tops means you can see the uneven-ness of my hips. I try not to look in the mirror to much, as i feel really self conscious about it x 
    • Beryl65
      Beryl65 meggailey

      Posted

      Mine showed up in my hips rather than my shoulders. I had a really noticeable right sde and was really uneven. They won't do anything unless the leg diffrence is more than 25mm. I was told there are only a handful of surgeons that do the kind of surgery I had on my 3rd hip.I had to go to Leeds. Thers is one in London and one in Birmingham i believe. I had mine done for the pain though rather than the way I looked at the time but i must admit i look ten times better now .
  • Beryl65
    Beryl65 meggailey

    Posted

    Myright hip was like yours due to leg length disgepancy after 2nd hip relacement. I have now had  a 3rd op and it looks quite good, although it hasn't got rid of my scoliosis pain. I can now go ahead ang hav emy spine surgery.
    • elizabeth142
      elizabeth142 Beryl65

      Posted

      Hi Beryl.

      I had six injections in my lower spine, last Friday and I must say that movement is better. But there is still a bit if discomfort. 

      I guess early days yet.

      It wasn't a very nice experience, I was adamant I wouldn't be sedated.

      I walked from theatre, and found myself dropping. I was whisked into a wheelchair, 

      And was given fruit juice to drink. 

      I felt terrible. I hadn't had anything to eat or drink since 11 pm the night before. 

      I really paid for it!

      It's better to be put to sleep for more than one injection I think. 

      I was a bit scared to do that.

      I don't like being put to sleep against my own will.

      But since last Friday, I can certainly see some benefit from it.

      Don't carry heavy shopping though. 

      Not a good idea.

      Just rest as much as possible afterwards.

      My lower back has slight curvature, they said it wasn't bad enough for an operation.

      But I also have arthritis in my lower back too.

      I have to go for a six month check.

      I have 1 centi metre difference in my left leg.

      So pain is always going to be hanging around someway in me.

      I notice the shortness more when I wear flats. I try to wear a little heel when I'm out and about. I feel more stable..

      😊 

    • Beryl65
      Beryl65 elizabeth142

      Posted

      Hi Eliazbeth< gosh you were lucky to be offered sedation, i had 6 injections 3months ago and didn't get anything. i had 4 facet joint and 2 nerve root blocks, when i first had injections about 9 yrs ago i had sedation then as it was private. they only covered me for a couple of years as i had to have them every4 months i had to go on the nhs. i can honestly say i have never been given sedaion even though it was the same dr. gosh="" you="" were="" lucky="" to="" be="" offered="" sedation,="" i="" had="" 6="" injections="" 3months="" ago="" and="" didn't="" get="" anything.="" i="" had="" 4="" facet="" joint="" and="" 2="" nerve="" root="" blocks,="" when="" i="" first="" had="" injections="" about="" 9="" yrs="" ago="" i="" had="" sedation="" then="" as="" it="" was="" private.="" they="" only="" covered="" me="" for="" a="" couple="" of="" years="" as="" i="" had="" to="" have="" them="" every4="" months="" i="" had="" to="" go="" on="" the="" nhs.="" i="" can="" honestly="" say="" i="" have="" never="" been="" given="" sedaion="" even="" though="" it="" was="" the="" same="">
    • elizabeth142
      elizabeth142 Beryl65

      Posted

      Oh gosh I'm surprised that you were not offered sedation. How crazy is that??

      It's painful, and they should have given you the option.

      NHS seems to be better in other places.

      I must say my part of London is good with the NHS.

      The doctor I have now has been the best practice, I've ever joined!

      I saw an osteopath last year. And that's when it was discovered what I had wrong with my back.

      Anyway years later at least I know now.

      Better late than never!😊

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